Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for April 2024

PMR Flare

So I think I might be in full flare. Last September, I was told to taper off pred. I ignored what I was told about being down to zero by the end of the year...

So I think I might be in full flare. Last September, I was told to taper off pr...

Gimme

•5 months ago

12 Replies

One more year on and no progress with tapering

I’m feeling utterly fed up as I seem to be making no progress with my tapering and I’m now just into my third year of PMR. Last year after a flare I settled at...

I’m feeling utterly fed up as I seem to be making no progress with my tapering a...

Laineydee

•5 months ago

2 Replies

Ignorance of some GPs...a cautionary tale...

Yesterday I went to my surgery to collect next lot of pred and was told I needed a dr's review. I have never been refused pred before in 8 years. I insisted on...

Yesterday I went to my surgery to collect next lot of pred and was told I needed...

diana1998

•5 months ago

8 Replies

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Steroid shot.

Hi my fellow PMR suffers, has anyone had a cortisone shot while taking Pred, and was everything after, a little apprehensive xx

Hi my fellow PMR suffers, has anyone had a cortisone shot while taking Pred, and...

Harrywogan

•5 months ago

17 Replies

5/7 week tapering schedule

thank you Dorset Lady and PMRpro. Very much appreciate your help with the tapering schedule. Groda

thank you Dorset Lady and PMRpro. Very much appreciate your help with the taper...

Groda

•5 months ago

1 Reply

Hello - I'm new to all this.

Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of...

Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg stero...

Positive__

•5 months ago

52 Replies

Can PMR weakened muscle cause curvature of the spine?

I finally saw a doctor at the pain clinic today. Since being diagnosed with PMR in 2018 I have lost 15cm in height. In 2020, just before lockdown, I was...

I finally saw a doctor at the pain clinic today. Since being diagnosed with PMR...

Omanain

•5 months ago

13 Replies

UPDATE ON CATARACT SURGERY

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much...

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peez...

Missus835

•5 months ago

61 Replies

dexa scan redults

Previous dexa scan in 2021 said my t score -2.0. Last month I had a dexa. I can see my recent dexa scan results on the NHS app. It said L2 spine t score -2.6...

Previous dexa scan in 2021 said my t score -2.0. Last month I had a dexa. I can ...

Ilovetotravel

•5 months ago

3 Replies

CGA - tapering schedule for 5 and 7 week tapering

Can someone please send me a link for 5 and 7 week tapering schedules. I would like to print them off. I have CGA since July 2023, down from 60 mg pred to...

Can someone please send me a link for 5 and 7 week tapering schedules. I would ...

Groda

•5 months ago

5 Replies

Prescribed Alendronic Acid and Lansaprozal at start of treatment. Are they necessary?

greetings! Now on Day 7 of 15mg Pred. Stiffness and general pain considerably reduced, but persistent pain from frozen shoulder. Sleeping much better,...

greetings! Now on Day 7 of 15mg Pred. Stiffness and general pain considerabl...

Scaredofpred

•5 months ago

19 Replies

Extrapred for colonoscopy?

I would appreciate advice on whether I should add to my normal 3mg for the day of a colonoscopy. The endocrine advice line at my hospital seems overwhelmed....

I would appreciate advice on whether I should add to my normal 3mg for the day o...

SID3

•5 months ago

20 Replies

Upped Pred but Have I Overdone it?

I have no doubt foolishly carried on the same level of pred, even dropping (and failing) down to 9mg for a day), after my husband's death in June and...

I have no doubt foolishly carried on the same level of pred, even dropping (and...

Alchemy8

•5 months ago

16 Replies

Does Maxidex steroid add to Pred dose?

I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on...

I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex fou...

Motida

•5 months ago

7 Replies

Advice on PMR for lawyer

Help needed please! I am in the middle of a very stressful divorce from an incredibly abusive husband. In the latest batch of legal documents, my husband is...

Help needed please! I am in the middle of a very stressful divorce from an inc...

Andypan

•5 months ago

21 Replies

Working

Hi, I am under investigation for GCA and have been taking pred for about 6 weeks. The Rheumatologist titration down as scan was clear and bloods all ok. At...

Hi, I am under investigation for GCA and have been taking pred for about 6 week...

lovelillies

•5 months ago

9 Replies

rheumatologist swapped pred for NSAID

Having been diagnosed by my GP with PMR almost 2 years ago, then referred to rheumatologist after suspected GCA (later thought unlikely) I have tapered down...

Having been diagnosed by my GP with PMR almost 2 years ago, then referred to rhe...

Reedmaker

•5 months ago

6 Replies

Swollen hand

swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood...

swollen painful hand ( just the one thank goodness) any connection with steroid ...

peggy1920

•5 months ago

14 Replies

Where to begin……….

A month ago I had a total hip replacement - in and out on same day which seems to be a policy with many hospitals now. Stayed a week with my sister then home...

A month ago I had a total hip replacement - in and out on same day which seems t...

jaycee444

•5 months ago

7 Replies

steroid management in nursing home

mum is now in a good nursing home - but we are having real issues with her prednisolone and in particular sick day rules. GP is ok ish - but wants to be asked...

mum is now in a good nursing home - but we are having real issues with her predn...

RT18

•5 months ago

11 Replies

Kerfufalmelodious

I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then...

I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone w...

Kerfufalmelodious

•5 months ago

14 Replies

PMRGCAuk members' magazine is on the way (spring 24 edition)

Spring NewsWire is on its way out to members this week. Do look out for your postal or digital copy. If you haven't received your digital copy by Friday 12th...

Spring NewsWire is on its way out to members this week. Do look out for your pos...

Fran_Benson

Partner•5 months ago

2 Replies

Tapering Prednisolone below 5mg

Having started at 20mg 2 years ago, I am currently on week 2 of the DL 5 week tapering Plan from 5.5mg to 5.0mg, which was always the level my GP initially...

Having started at 20mg 2 years ago, I am currently on week 2 of the DL 5 week ta...

Golf-1

•5 months ago

16 Replies

Finally off Prednisolone and methotrexate

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly after was prescribed Methotrexate. I am pleased to say that finally I have been...

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly ...

Sorop

•5 months ago

65 Replies

PMR and gastroenteritis

Diagnosed just over 2 years ago, started on 15mg prednisolone, now down to 5.5. Very slow tapering programme, following advise here, working well with...

Diagnosed just over 2 years ago, started on 15mg prednisolone, now down to 5.5. ...

waltztherapy

•5 months ago

26 Replies

Sick day rule

Can anyone tell me what the sick day rule for Pred is please. I can't seem to find it. Thanks.

Can anyone tell me what the sick day rule for Pred is please. I can't seem to fi...

Dinahmite

•5 months ago

2 Replies

osteoporosis following pmr

my pmr diagnosis coincided with the start of lockdown so I never saw a doctor. I was eventually prescribed pred and omeprazol over the phone in May 2020 and...

my pmr diagnosis coincided with the start of lockdown so I never saw a doctor. I...

Moness

•5 months ago

32 Replies

The end ??

This is more of a whinge than a question. I have been trying to reduce prednisone to 3.5mg for the last 4 months. I was diagnosed 4 years ago with PMR and...

This is more of a whinge than a question. I have been trying to reduce predniso...

Caloo650

•5 months ago

34 Replies

Fighting fatigue!

I am a 73 year old woman. Diagnosed with PMR 5 weeks ago and prescribed 15mg Prednisolene Worked well and so reduced after 3 weeks to 12.5 . But by the middle...

I am a 73 year old woman. Diagnosed with PMR 5 weeks ago and prescribed 15mg Pre...

Kingcharlesdog

•5 months ago

27 Replies

Diagnosis?

I'm in my 70's, female. I had typical PMR symptoms but my bloodwork was normal. Due to a delay in seeing my GP the blood was taken during a period of...

I'm in my 70's, female. I had typical PMR symptoms but my bloodwork was normal. ...

FreeWolf

•5 months ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

PMR Flare

One more year on and no progress with tapering

Ignorance of some GPs...a cautionary tale...

Steroid shot.

5/7 week tapering schedule

Hello - I'm new to all this.

Can PMR weakened muscle cause curvature of the spine?

UPDATE ON CATARACT SURGERY

dexa scan redults

CGA - tapering schedule for 5 and 7 week tapering

Prescribed Alendronic Acid and Lansaprozal at start of treatment. Are they necessary?

Extrapred for colonoscopy?

Upped Pred but Have I Overdone it?

Does Maxidex steroid add to Pred dose?

Advice on PMR for lawyer

Working

rheumatologist swapped pred for NSAID

Swollen hand

Where to begin……….

steroid management in nursing home

Kerfufalmelodious

PMRGCAuk members' magazine is on the way (spring 24 edition)

Tapering Prednisolone below 5mg

Finally off Prednisolone and methotrexate

PMR and gastroenteritis

Sick day rule

osteoporosis following pmr

The end ??

Fighting fatigue!

Diagnosis?

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