Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,561 members • 38,610 posts

All posts for April 2024

calcium supplement

Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium supplement being prescribed for some friends (female). Is that something everyone on...

Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium suppleme...

Winckle

•2 months ago

2 Replies

Holiday advice

Hi All, I am travelling to Turkey in a few weeks for a holiday and am concerned about getting PMR pain and ruining the holiday. I currently take 6.5mg of...

Hi All, I am travelling to Turkey in a few weeks for a holiday and am concerned...

Markandevie

•2 months ago

9 Replies

Symptoms of flare?

Having been on 5mg pred for four months, I have begun tapering to 4.5 mg to 4mg at 4-weekly intervals. On a few days I have varying degrees of fatigue, mood...

Having been on 5mg pred for four months, I have begun tapering to 4.5 mg to 4mg ...

kangaroojohn

•2 months ago

2 Replies

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Pred increase

Having increased my dose as you advised for another 5 days, I wonder what I should do if I still feel like I did before, when I go back to the lower dose. Is...

Having increased my dose as you advised for another 5 days, I wonder what I sho...

Clucket

•2 months ago

5 Replies

Tapered to zero Pred (DSNS)

I am now wondering how long it takes for my blood glucose to return to a normal range? I've been eating a strict keto diet for the last 20 months, I've been...

I am now wondering how long it takes for my blood glucose to return to a normal ...

PipandDots

•2 months ago

1 Reply

Enhanced Annuity

Does anyone know if GCA qualifies for an enhanced annuity in the UK?

kalgoorlie

•2 months ago

6 Replies

Question on PMR and Temporal Arteritis

Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person...

Does anyone know: would an MRI show Temporal Arteritis or would a person need a ...

Musiclady18

•2 months ago

1 Reply

Can't squat or raise arms without pain?

I have tapered down to 1 mg Prednisone over three years (from 15mg). I have the same weird symptoms that I've always had. If I squat, my legs feel an extreme...

I have tapered down to 1 mg Prednisone over three years (from 15mg). I have the ...

Greytree

•2 months ago

8 Replies

Famotidine

I have been on 20mg of Famotidine for about a year, over the past 6 months while taking Famotidine I seem to have developed heartburn has any one else suffered...

I have been on 20mg of Famotidine for about a year, over the past 6 months while...

Phed

•2 months ago

8 Replies

steroids

can I take cod liver oil capsules with steroids

Wesie59

•2 months ago

14 Replies

CATARACT SURGERY & PRED

Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring...

Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, si...

Missus835

•2 months ago

27 Replies

Prednisone and DOMS

Is the inflammation from PMR (which I unfortunately have) and the inflammation from DOMS (delayed onset muscle soreness, which I also regularly have) somewhat...

Is the inflammation from PMR (which I unfortunately have) and the inflammation f...

soreoldbiker

•2 months ago

6 Replies

Tapering Regime while on Kevzara (or other biologic)

I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six). I am grateful I was allowed to try Kevzara after 9 years on prednisone and...

I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six)....

artfingers

•2 months ago

18 Replies

Taking Betmiga with Pred for Urine Control?

Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency...

Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and ...

Motida

•2 months ago

5 Replies

Breathing issues

Good afternoon, I wonder if any of you have experienced this? Approximately year ago I started having breathing problems, only when walking and within a few...

Good afternoon, I wonder if any of you have experienced this? Approximately yea...

Strider68

•2 months ago

3 Replies

how to get 1mg doses in pred?

Where I live there is no 1mg pred . The smallest dose is 2.5mg . I’m trying to taper and I would require 1mg pred . Should I use a tablet cutter ?

Where I live there is no 1mg pred . The smallest dose is 2.5mg . I’m trying to t...

Udupik

•2 months ago

19 Replies

New & Confused with GCA

Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank,...

Hello, I’m asking for help and advice as the wife (and carer) for my husband who...

Hidden

•2 months ago

159 Replies

Cardiff Meeting

The next meeting is on Thursday 18th April at 11.30 in the Central Library, meeting room 4.

The next meeting is on Thursday 18th April at 11.30 in the Central Library, mee...

slewis

•2 months ago

8 Replies

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D...

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm...

Shadowboxes

•2 months ago

13 Replies

Low enough pred to get low cortisol symptoms?

I feel rotten. Am on 6 mgs prednisolone— 4 in am, 2 at night. Bad fatigue esp in early afternoon, resulting in need to nap, shoulders and legs feel weak, no...

I feel rotten. Am on 6 mgs prednisolone— 4 in am, 2 at night. Bad fatigue esp ...

Merryfield

•2 months ago

35 Replies

PMR question with up coming MRI

My journey with PMR. In August 2023 the doctor thought I had a muscle issue so they prescribed ibuprofen 800 mg every eight hours and Zanaflex for 4 mg every...

My journey with PMR. In August 2023 the doctor thought I had a muscle issue so t...

Ford29

•2 months ago

10 Replies

Any suggestions for how to improve my poos

Hello all. My apologies for the title of this post, but I didn’t know how to phrase it. I was diagnosed with GCA in January 2023 and have been on Prednisone...

Hello all. My apologies for the title of this post, but I didn’t know how to phr...

Handloomweaver

•2 months ago

22 Replies

Staying on low dose for ever?

Hi Everyone, I am on 3mg/2.75mg taper. Could anyone tell me what the advantages of tapering below 5mg, as opposed to just staying on 4 or 5 indefinitely where...

Hi Everyone, I am on 3mg/2.75mg taper. Could anyone tell me what the advantages ...

Temoral

•2 months ago

4 Replies

GP Patient Forum Page

I have copied this off PMRGCAuk Facebook page on to my GP Surgery Patients Facebook Page. Maybe others on the forum could do the same if your on Facebook and...

I have copied this off PMRGCAuk Facebook page on to my GP Surgery Patients Face...

Estellemac

•2 months ago

2 Replies

Questions about rise in HbA1c

Hi, I started on prednisolone 20mgs on 26th January this year for 4 weeks, tapering 1mg every two weeks, currently on 16mgs (10 mgs am, 6mgs pm). HbA1c last...

Hi, I started on prednisolone 20mgs on 26th January this year for 4 weeks, taper...

Tribie

•2 months ago

39 Replies

Wound healing and Steroid Use

I have been on Prednisone for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara. I have noticed...

I have been on Prednisone for just over a year. I am down to 10mg and cannot tit...

lovemylife23

•2 months ago

10 Replies

Low dose pains

Hi there, I’ve been on pred for around 7 years now for PMR. I’ve managed to get down to 1.5mg a couple of times but I’m struggling with shoulder and back pain...

Hi there, I’ve been on pred for around 7 years now for PMR. I’ve managed to get ...

Suzan62

•2 months ago

49 Replies

Cortisol test result

Hi, I have just had some blood test results come back today. Currently on 5.5mg, but have been taking 6mg (Sat 30th..Sun, Mon, Tues) as have had lots going...

Hi, I have just had some blood test results come back today. Currently on 5.5mg...

Saffron23

•2 months ago

22 Replies

Unexplained pain in the mornings:

I recently began tapering from 15mg after my PMR diagnosis down to 10mg over a couple of months, following the usual NHS protocol, but on 10mg I began to get...

I recently began tapering from 15mg after my PMR diagnosis down to 10mg over a c...

Sally_Bones43

•2 months ago

1 Reply

side effects from 40mg for GCA

I have had PMR for two years down to 5mg last week headaches sore scalp and jaw. Put on 40mg br Rheumy back to see him this week . All pains gone but horrible...

I have had PMR for two years down to 5mg last week headaches sore scalp and jaw....

Buster1610

•2 months ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

calcium supplement

Holiday advice

Symptoms of flare?

Pred increase

Tapered to zero Pred (DSNS)

Enhanced Annuity

Question on PMR and Temporal Arteritis

Can't squat or raise arms without pain?

Famotidine

steroids

CATARACT SURGERY & PRED

Prednisone and DOMS

Tapering Regime while on Kevzara (or other biologic)

Taking Betmiga with Pred for Urine Control?

Breathing issues

how to get 1mg doses in pred?

New & Confused with GCA

Cardiff Meeting

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

Low enough pred to get low cortisol symptoms?

PMR question with up coming MRI

Any suggestions for how to improve my poos

Staying on low dose for ever?

GP Patient Forum Page

Questions about rise in HbA1c

Wound healing and Steroid Use

Low dose pains

Cortisol test result

Unexplained pain in the mornings:

side effects from 40mg for GCA

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