Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2024

Newbie member with lots of questions!

This is the first time I have ever joined a forum like this. (As a friend said to me, well done for joining a club you never wanted to be a member of!). I am...

This is the first time I have ever joined a forum like this. (As a friend said t...

•3 months ago

steroid tapering plan

Well back on the Pred journey with big PMR relapse and now trying to gather lost info from last time about tapering. I remember there being a blueprint I used...

Well back on the Pred journey with big PMR relapse and now trying to gather lost...

•3 months ago

PMR YoYo again

Since dropping to 5mg from my temporary 8mg, I have only been on 5mg for 3 days. I am now experiencing pain across my shoulders and neck pain along with...

Since dropping to 5mg from my temporary 8mg, I have only been on 5mg for 3 days....

•3 months ago

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PMR back after yoyoing from 3mg to 8mg for 12 days, then back to 4mg.

I just don't know what to do any more! Just over 26months on Prednisone. Tapered down to 0 and had to jump to 5. Tapered Dead Slow to less than 1mg and had...

I just don't know what to do any more! Just over 26months on Prednisone. Taper...

•3 months ago

"Deathly fatigue"

I am down to 4 mg and though usually I have some fatigue the first couple of day after shifting the dosage downward, this is way more than that -- I can hardly...

I am down to 4 mg and though usually I have some fatigue the first couple of day...

•3 months ago

weight, diet and statins?

currently down to 5mg, generally chugging along ok, still working, but feeling occasional fatigue so assume I’m getting towards my own adrenals firing back...

currently down to 5mg, generally chugging along ok, still working, but feeling ...

•3 months ago

Care for GCA reverting to GP from Rheumy?

Is there any protocol for when the care of a Consultant for GCA ends? After nearly 3 years I am on 3.5 mg pred. I have an ambivalent relationship with my...

Is there any protocol for when the care of a Consultant for GCA ends? After ne...

•3 months ago

GCA relapse

I’ve had GCA for a year now and was wondering what a symptoms you have when a relapse happens?

I’ve had GCA for a year now and was wondering what a symptoms you have when a re...

•3 months ago

biceps pain

Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , neck , thighs but have developed severe pain in bicep area. I thought it might...

Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , n...

•3 months ago

Diet and arthritis

Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroids down but have never got below 2/3 mg a day. Last year I had a particularly...

Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroid...

•3 months ago

taking Pred in the night advise please

HI I think I've read all the advice I can find on taking some of the pred dose in the early hours but I wonder if someone would be kind enough to talk through...

HI I think I've read all the advice I can find on taking some of the pred dose i...

•3 months ago

Blood work

Hello all-just looked at my blood tests and sed rate is 11, creatine kinase is 50. Are these the correct tests? And are they showing elevated results? I know...

Hello all-just looked at my blood tests and sed rate is 11, creatine kinase is 5...

•3 months ago

Blood pressure monitor advice

I started taking Leflunomide today and know one of the regular things to be monitored is my blood pressure. To save the 8 mile (45 minute) round trip to the GP...

I started taking Leflunomide today and know one of the regular things to be moni...

DogAgilityObsessed

•3 months ago

Alendronic Acid and diverticulosis

since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as...

since my Rheumy discovered I have two fractured vertebra, she is insisting I tak...

•3 months ago

Methotrexate and infections

Hi. I started taking methotrexate as a steroid sparer at the end of Dec 2023. I have recently picked up a throat/chest infection and am coughing madly. Should...

Hi. I started taking methotrexate as a steroid sparer at the end of Dec 2023. I ...

•3 months ago

Neck ache - PMR? I don't think so.

I've had horrible neck pain (ache) for 5 days now. Okay overnight but as soon as I am sitting at my screen (I am there a lot) I am in pain. My px'd analgesia...

I've had horrible neck pain (ache) for 5 days now. Okay overnight but as soon a...

•3 months ago

More about the presentation by the Irish doctor posted about this week relating to GCA in PMR

pegpowellposted about a doctor running a rapid access clinic in Tallaght, Ireland - and this is the abstract of her presentation, Very interesting for those...

pegpowellposted about a doctor running a rapid access clinic in Tallaght, Irela...

Ambassador•3 months ago

update on sore Nipple!

so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the...

so did go to see the Dr who agreed my breasts were quite tricky to diagnose due ...

•3 months ago

Can PMR effect hip, pelvic area

Hello everyone, I have been on prednisolone for just over three weeks, pain in neck, shoulders & arms have improved . I thought my low back had gone into...

Hello everyone, I have been on prednisolone for just over three weeks, pain in n...

•3 months ago

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