steroid tapering plan

[kezzybabes]

Well back on the Pred journey with big PMR relapse and now trying to gather lost info from last time about tapering. I remember there being a blueprint I used from this site which was very helpful but can’t find it. Would be great if someone could point me to it.

[SnazzyD]

Oh dear, that’s a shame. The last time you posted was 4 years ago; enough time to start thinking it was just a bad dream!

From the FAQ’s on this page, under “T” there is a section on tapering plans. Here is the link

healthunlocked.com/pmrgcauk...

What have you been told to do by the doctor?

[kezzybabes in reply to SnazzyD]

Oh that’s great thank you! It was the dead slow and stop one I used last time. Been told to do usual NHS doc tapering system of 3 weeks 15mg, 3weeks 12.5mg, 3 weeks 10 mg…etc etc- just too much of a drop for me.

[SnazzyD in reply to kezzybabes]

I suppose the silver lining is that this isn’t your first rodeo and that is cutting out the early days learning curve. Clutching at straws here, you must be frustrated.

[kezzybabes in reply to SnazzyD]

The good old fashioned Scottish word is scunnered!!!!

[GwenTheHen16 in reply to kezzybabes]

Hi, I seem to have had a similar journey to you and have been going up and down since diagnosis in February 2022. I am currently at 8mg and been fine since following advice on here. You sound very clued up on where to look as I didn’t and only had my gp to go by!

[kezzybabes in reply to GwenTheHen16]

In the words of celine dion, it’s all coming back to me now! 🎶

[GwenTheHen16 in reply to kezzybabes]

love it! 😊

[DorsetLady PMRGCAuk volunteer]

Main two here -

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

[kezzybabes in reply to DorsetLady]

Thank you x

[PMRpro Ambassador]

Welcome back - we're still here even if you don't want to be here. Everyone I know who has had 2 episodes says they were totally different so maybe you will be lucky.

[kezzybabes]

oh I do hope so PMRpro … just got to remind myself about my Alendronic Acid questions….

[Tiggy70]

Sorry to hear the dreaded PMR has raised its ugly head again. As others have said you are much better informed to deal with it this time around. Best wishes and good luck 🌸