More about the presentation by the Irish doctor p... - PMRGCAuk

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More about the presentation by the Irish doctor posted about this week relating to GCA in PMR

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 pegpowell posted about a doctor running a rapid access clinic in Tallaght, Ireland - and this is the abstract of her presentation, Very interesting for those of us with PMR - and who might have GCA ...

Peg's post is here

healthunlocked.com/pmrgcauk...

and the abstract is here

acrabstracts.org/abstract/c....

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Charlie1boy profile image
Charlie1boy

Very interesting. Think I’m glad I didn’t know this at diagnosis!!! My GP did ask me, at the time, whether I had been suffering from headaches, but I hadn’t.

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PMRproAmbassador in reply to Charlie1boy

But headaches are more likely cranial GCA - PMR is probably related to the LVV form of GCA. It is time it percolated into the awareness that this is a continuum and not black or white PMR/GCA. Mukhtayar at the Norfolk and Norwich hospital told us he screens everyone presenting as PMR for GCA/LVV. He starts well, shame the longterm is less good.

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Longtimer in reply to PMRpro

I t's the only thing that I remember was different about him....he did the screening on me under my arms...when it came to my head, he asked if I had ever been in an accident! I laughed and said, are you struggling to find my brain!...no sense of humour......I had the feeling I was a guinea pig and he didn't know what he was doing....no surprise there then!

Missus835 profile image
Missus835

Thank you Pro. I'm going to show this abstract to my GP on Monday. My rheumy hadn't heard of an ultrasound for GCA being done here in NS. 🙄

Dochaz profile image
Dochaz

I've said this before, but I really believe that a significant proportion of people presenting with PMR symptoms could also have subclinical LVV and only if testing were routine would the true numbers be known. I was "lucky" to find an on the ball hospital internist who quickly scheduled a Petscan for me before start of treatment despite zero head symptoms. It turned out I had GCA/LVV as well as PMR.

I know it's a matter of funding for the majority of health systems, though 😕

PMRpro profile image
PMRproAmbassador in reply to Dochaz

Oh absolutely - on all counts!

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