Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,422 members • 38,308 posts

All posts for January 2024

useful podcast on inflammation prevention.

https://podcasts.apple.com/gb/podcast/zoe-science-nutrition/id1611216298?i=1000640533762

https://podcasts.apple.com/gb/podcast/zoe-science-nutrition/id1611216298?i=10006...

LJhome

•5 months ago

1 Reply

Swelling on face

I am experiencing swelling on my face on the same side that I had a temporal artery biopsy has anyone else experienced this and should I be concerned?

I am experiencing swelling on my face on the same side that I had a temporal art...

Helliwelli12

•5 months ago

10 Replies

SKIN ISSUES

Hi all and Happy New Year! I hesitate to ask because of the "one more thing" effect. Has anyone had tiny, pimple-like bumps all over their skin, randomly,...

Hi all and Happy New Year! I hesitate to ask because of the "one more thing" eff...

Missus835

•5 months ago

7 Replies

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Bruising

I noticed someone mentioned bruising. I have hurt my right thump two weeks back cutting up veg. The whole of the thumb pad is dark mauve The pharmacist said...

I noticed someone mentioned bruising. I have hurt my right thump two weeks back...

Motida

•5 months ago

7 Replies

Advice please with cold and PMR

For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the...

For the first time in nearly a year, I have a cold and where I before just go on...

Markandevie

•5 months ago

9 Replies

Update - Not Polymyalgia?

Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck,...

Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. ...

Purplelamp

•5 months ago

4 Replies

more unwell and confused

I’ve been becoming more and more unwell generally over the past few months. Some of this is due to continual Herpes two attacks and now taking Valaciclovir...

I’ve been becoming more and more unwell generally over the past few months. Some...

Bennijax

•5 months ago

12 Replies

exercise?

I'm wondering if daily exercise (50 min at the gym) could be making me stuck at 12.5 mg? I've tried several slow tapers but only made it from 20 mg to 12.5...

I'm wondering if daily exercise (50 min at the gym) could be making me stuck at ...

jwichmann

•5 months ago

11 Replies

Everything is normal on tests

Well, the ESR and CRP results from yesterday are in and are totally normal. ESR 11 < 20mm/h CRP 4.1 <8 mg/l As I am sure many if you have experienced, this...

Well, the ESR and CRP results from yesterday are in and are totally normal. ESR ...

Harrisonboy

•5 months ago

29 Replies

latest here

After a flare up of GCA in October and increased Pred to 60mg as small increased doses just weren’t working I had a phone consultation with my rheumatologist,...

After a flare up of GCA in October and increased Pred to 60mg as small increased...

TizzyS

•5 months ago

3 Replies

out of date Pred

For 2 weeks I have been taking 1 mg prednisone which was out of date in March ‘23. Would it have been effective as I seem to have some returning symptoms of...

For 2 weeks I have been taking 1 mg prednisone which was out of date in March ‘2...

tgca

•5 months ago

11 Replies

Pain in my knees after walking

Since July 23 I've been reducing pred from 15mg to 11.5mg. I walk the dog every day for between 15 - 30 minutes. I excercise most days for aprox 15 mins. I...

Since July 23 I've been reducing pred from 15mg to 11.5mg. I walk the dog ever...

Bobbury

•5 months ago

3 Replies

GCA/blurry eyesight

I was diagnosed with PMR in August 2021 and have managed with Pred having had 2 flares at 9mg and one when down to 7mg. I am now on 10mg and reducing very...

I was diagnosed with PMR in August 2021 and have managed with Pred having had 2 ...

Cadden

•5 months ago

12 Replies

Happy New Year

Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after...

Not much to post here but felt motivated to greet this helpful community into 20...

marionofnorwich

•5 months ago

19 Replies

Pred and stomach upsets

I’m just wondering if being on Pred makes my stomach more easily upset? I’ve been on it for 2 years now, but have always taken it with Omeprazole. I’ve noticed...

I’m just wondering if being on Pred makes my stomach more easily upset? I’ve bee...

Apple6

•5 months ago

17 Replies

PMR / Prednisone

I personally am critical of going up or down on prednisone dosage. I was diagnosed with PMR about 4 years ago and have had bouts of low and high doses in the...

I personally am critical of going up or down on prednisone dosage. I was diagnos...

GucciPaddy

•5 months ago

7 Replies

Glasgow Support Group

Our first meeting of the new year is on Monday 8 January from 2pm to 4pm. We meet in the offices of Health Alliance Scotland in the Venlaw Building at 349 Bath...

Our first meeting of the new year is on Monday 8 January from 2pm to 4pm. We mee...

RichardC

•5 months ago

8 Replies

Changes at 6.5

Tiptoeing my way down from 7mg (started in Dec. 2022 at 20) to 6.5, I noticed that I no longer bruise so easily (yay!) and my allergic contact dermatitis has...

Tiptoeing my way down from 7mg (started in Dec. 2022 at 20) to 6.5, I noticed th...

papadapadoo

•5 months ago

10 Replies

Leflunomide

Does anyone have any experience with Leflunomide as a steroid sparing drug as my rheumy wants me to try this after refusing methotrexate. She wants me off pred...

Does anyone have any experience with Leflunomide as a steroid sparing drug as my...

gemmalaura

•5 months ago

36 Replies

Polymyalgia rheumatica

A happy and healthy new Year t o everyone. I haven't posted anything for last six months but would now like some advice. I was originally on 15ms...

A happy and healthy new Year t o everyone. I haven't posted anything for last s...

magslg

•5 months ago

18 Replies

Swam today for the 1st time since diagnosis

I swam this morning! the first time since September 23 (I was diagnosed in October and put on 15mg, now down to 10mg) this is a big deal for me because up...

I swam this morning! the first time since September 23 (I was diagnosed in Octo...

MalloryMoss

•5 months ago

20 Replies

Compression socks

I occasionaly get swelling to my lower legs and ankles, when I saw the Rheumatology nurse last September, she put in her notes that I have "mild pitting oedema...

I occasionaly get swelling to my lower legs and ankles, when I saw the Rheumatol...

Golf-1

•5 months ago

36 Replies

pain beneath right shoulder

Hello and Happy New Year to this wonderful community. I posted a short while ago to say that I have additionally been diagnosed with osteoporosis of the spine...

Hello and Happy New Year to this wonderful community. I posted a short while ago...

Fishponds50

•5 months ago

11 Replies

Injury or a flare?

I was coming home yesterday and filled the car with petrol but when pulling the pump out my left shoulder started to hurt like a pulled muscle. This morning...

I was coming home yesterday and filled the car with petrol but when pulling the ...

Markandevie

•5 months ago

10 Replies

iitchy skin

hi,just wondering if you can help me,I have very itchy skin,all my body.body.can suggest what it can be,been putting E45 cream on it.it.does help.help.do I...

hi,just wondering if you can help me,I have very itchy skin,all my body.body.can...

Flosy

•5 months ago

10 Replies

Total knee replacement

19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build...

19 days post op - been very tough especially when COVID thrown into the mix! My ...

Toffeeboyblue

•5 months ago

2 Replies

My rheumy tele-consultation due to Covid.

HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. A couple of weeks back I had a tele-consultation with my rheumy as I had Covid....

HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. ...

IdasMum

•5 months ago

33 Replies

flare

Hi this is the beginning of my fifth year with PMR and I was down to 2 1/2 pred. Three months ago I tore both Rotating cuffs in my shoulders, it was...

Hi this is the beginning of my fifth year with PMR and I was down to 2 1/2 pred....

Dukeyears

•5 months ago

9 Replies

PMR symptoms after steroid injection 12 days ago

Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted just before Christmas about awful shoulder and neck pain and that I saw a...

Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted...

MsWhistledown

•5 months ago

6 Replies

PMR still tapering

Happy New Year to all! Approximately 3 weeks ago, I tapered dow to 1/4 of a tablet. I was having a great deal of pain and terribly fatigued. It was suggested...

Happy New Year to all! Approximately 3 weeks ago, I tapered dow to 1/4 of a tab...

RaisinBran

•5 months ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

useful podcast on inflammation prevention.

Swelling on face

SKIN ISSUES

Bruising

Advice please with cold and PMR

Update - Not Polymyalgia?

more unwell and confused

exercise?

Everything is normal on tests

latest here

out of date Pred

Pain in my knees after walking

GCA/blurry eyesight

Happy New Year

Pred and stomach upsets

PMR / Prednisone

Glasgow Support Group

Changes at 6.5

Leflunomide

Polymyalgia rheumatica

Swam today for the 1st time since diagnosis

Compression socks

pain beneath right shoulder

Injury or a flare?

iitchy skin

Total knee replacement

My rheumy tele-consultation due to Covid.

flare

PMR symptoms after steroid injection 12 days ago

PMR still tapering

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