Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2024

scalp tenderness

I reduced my pred from 4mg to 3mg on 26th December. I am suffering from scalp tenderness and slight pain at the bottom of my skull. It does seem to ease...

I reduced my pred from 4mg to 3mg on 26th December. I am suffering from scalp te...

Lynlea

•4 months ago

4 Replies

PMR and new COVID mNRA vaccine

I was 1 month off prednisone in March 2021 when I received the second of two initial (Moderna) vaccines. PMR came back within a couple days; could not lift...

I was 1 month off prednisone in March 2021 when I received the second of two ini...

PUMC

•4 months ago

23 Replies

Use of NSAIDs in lieu of steroids

Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine...

Prompted to post for the first time by Bobbykins ( couple of days prior) suggest...

Daveydog

•4 months ago

17 Replies

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Annoyed!

After my previous post “Is this PMR or something else?” I went for another chiropractor appointment for my arm. Apparently it is a trapped nerve in my neck. A...

After my previous post “Is this PMR or something else?” I went for another chiro...

Decsgran

•4 months ago

1 Reply

BBC radio 4 programme "Just One Thing" about what causes age-related inflammation and 5 tips to prevent it, broadcast on 5th January 2024

I found this an interesting listen. PMR and GCA weren't mentioned specifically, but the life-style advice given by Prof Janet Lord to manage inflammation and...

I found this an interesting listen. PMR and GCA weren't mentioned specifically, ...

Dochaz

•4 months ago

15 Replies

Is it okay to weight train?

I know, I know, it's an odd question and I'm not entering for Miss Universe but wondering whether I could do some upper/lower body toning (carefully) since I...

I know, I know, it's an odd question and I'm not entering for Miss Universe but ...

IdasMum

•4 months ago

17 Replies

what should I expect to possibly happen

I just had my Actemera infusion on January 4th. I am leaving for FLA on the 29th and had hoped to get my infusion before leaving. Since it’s three days early...

I just had my Actemera infusion on January 4th. I am leaving for FLA on the 29th...

Plains

•4 months ago

3 Replies

Pred and CVD

This is one for the experts I think. I have found plenty of academic literature on the association between long term pred use and cardiovascular disease, even...

This is one for the experts I think. I have found plenty of academic literature ...

Jontie

•4 months ago

5 Replies

Tummy upset

I am currently stable on 3mg which I reduced to in early December. I was planning to taper to 2.5 about now, but I had a very bad cold after Xmas that has now...

I am currently stable on 3mg which I reduced to in early December. I was planni...

jinoadby

•4 months ago

3 Replies

Adrenal crisis

What would it take to bring on an adrenal crisis? How many megs of pred? How many days going without? I'm sure it depends on a lot of factors, but just...

What would it take to bring on an adrenal crisis? How many megs of pred? How m...

winfong

•4 months ago

16 Replies

Confusion and concentration

Has anyone experienced confusion and memory loss as a result of GCA. And also lack of concentration just wondering how prelevant these symptoms can be?

Has anyone experienced confusion and memory loss as a result of GCA. And also la...

Helliwelli12

•4 months ago

6 Replies

Reducing preds

Hi all .can you tell me how to reduce from 10mg.down to 9mg over what length of time ...my doc suggest reducing 1mg every 2 months ....I think that is to...

Hi all .can you tell me how to reduce from 10mg.down to 9mg over what length of...

ritter

•4 months ago

14 Replies

Super vitamins

I cannot believe it, I have just come across a super new vitamin pill costing between 149 pounds sterling up to over seven hundred pounds for 180 days supply....

I cannot believe it, I have just come across a super new vitamin pill costing be...

piglette

•4 months ago

36 Replies

Doctor,do they care

My sister now been told she has PMR, that was her Rheumatologist she has been seeing for her arthritis. Gave her steroids, one week 20mg week 2, 15mg week 3,...

My sister now been told she has PMR, that was her Rheumatologist she has been se...

Harrywogan

•4 months ago

16 Replies

Help severe Sciatica 😢

I'm struggling to walk with severe sciatica I'm down to 4 mg on my steriods . Should I up my steriods and see if this helps the pain killers I've been given...

I'm struggling to walk with severe sciatica I'm down to 4 mg on my steriods . Sh...

rachelbell

•4 months ago

39 Replies

GCA & polymyalgia rheumatica

I was diagnosed with GCA 8 years ago. All medical attention has been focussed on steroids & methotrexate etc. throughout. Now, at the age of 75 I am finding...

I was diagnosed with GCA 8 years ago. All medical attention has been focussed o...

Saintmalo

•4 months ago

4 Replies

Can MRI cause a flare?

I attended the hospital early yesterday for an MRI scan on my throat and neck and pain was widespread through my body yesterday evening and worse this morning....

I attended the hospital early yesterday for an MRI scan on my throat and neck an...

Zebedee44

•4 months ago

19 Replies

Flare?

Hi. I’m at 2mg of Pred and I started reducing slowly to 1.5 last week. Yesterday and today, my back feels very stiff and sore. I’ve forgotten the difference...

Hi. I’m at 2mg of Pred and I started reducing slowly to 1.5 last week. Yesterday...

Suedeshayes

•4 months ago

10 Replies

ESR 39

Hi I’m wondering what you guys think about this ESR blood test result of 39 ? The rheumy says it’s normal . A gp at my surgery said it’s normal for my age...

Hi I’m wondering what you guys think about this ESR blood test result of 39 ?...

TedTheMaineCoon

•4 months ago

11 Replies

foggy

I have brain fog from both fibromyalgia and PMR. It’s so embarrassing! Sometimes I cannot finish a sentence or pronounce a word correctly. I read that...

I have brain fog from both fibromyalgia and PMR. It’s so embarrassing! Sometimes...

KKRb

•4 months ago

12 Replies

Groin pain

The last few days my back has finally come right, I was just getting excited about being able to walk again but yesterday I started getting this awful pain in...

The last few days my back has finally come right, I was just getting excited abo...

Kiwisufferer2019

•4 months ago

15 Replies

Prednisone and Muscles

A concern stemming from the very few questions I was able to successfully ask of the new to me Rheumatologist without being sssshhh'd.... She ordered a Muscle...

A concern stemming from the very few questions I was able to successfully ask of...

newsusy

•4 months ago

9 Replies

thank you PMRGCAuk

just wanted to reach out and thank everybody in this community. I have been helped and felt supported throughout my PMR journey.

just wanted to reach out and thank everybody in this community. I have been he...

Bobbikins

•4 months ago

2 Replies

adrenal

not rena

Shaza123

•4 months ago

2 Replies

What do I do when I get to Zero Pred?

Good afternoon and Happy New Year to everyone out there. Such a fantastic and knowledgeable 'family'. Bless you all.I am due to go to New Zealand on 17th Jan...

Good afternoon and Happy New Year to everyone out there. Such a fantastic and kn...

Tabletennis123

•4 months ago

42 Replies

Temporal artery biopsy

Biopsy did not show positive result but I am told to continue tapering the prednisolone. How common is this?

Biopsy did not show positive result but I am told to continue tapering the predn...

Helliwelli12

•4 months ago

19 Replies

reducing Prednisolone

I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood...

I have had PMR for eight years and for the last five, I have been on 3 mg of pr...

Bobbikins

•4 months ago

26 Replies

renal crisis

just wondering if anyone can advise me. I’ve been coming down my steroids and I’m now on 8 mg been doing half a mil every two weeks . I’ve been having sickness...

just wondering if anyone can advise me. I’ve been coming down my steroids and I’...

Shaza123

•4 months ago

9 Replies

PET scan and Pred.

I have just had a PET scan in Guildford, referred by Prof Hughes and I thought I would share my experience regarding taking Pred. as there seems to be a lot of...

I have just had a PET scan in Guildford, referred by Prof Hughes and I thought I...

suzy1959

•4 months ago

13 Replies

Colonoscopy and pred

I'm having a colonoscopy on Thursday. I have been told to leave off the 2mg pred I take early morning until after the procedure (the appointment is for...

I'm having a colonoscopy on Thursday. I have been told to leave off the 2mg pred...

Broseley

•4 months ago

42 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

scalp tenderness

PMR and new COVID mNRA vaccine

Use of NSAIDs in lieu of steroids

Annoyed!

BBC radio 4 programme "Just One Thing" about what causes age-related inflammation and 5 tips to prevent it, broadcast on 5th January 2024

Is it okay to weight train?

what should I expect to possibly happen

Pred and CVD

Tummy upset

Adrenal crisis

Confusion and concentration

Reducing preds

Super vitamins

Doctor,do they care

Help severe Sciatica 😢

GCA & polymyalgia rheumatica

Can MRI cause a flare?

Flare?

ESR 39

foggy

Groin pain

Prednisone and Muscles

thank you PMRGCAuk

adrenal

What do I do when I get to Zero Pred?

Temporal artery biopsy

reducing Prednisolone

renal crisis

PET scan and Pred.

Colonoscopy and pred

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