PMR / Prednisone

[GucciPaddy]

I personally am critical of going up or down on prednisone dosage. I was diagnosed with PMR about 4 years ago and have had bouts of low and high doses in the intervening years with very little impact. I dreaded having to be on steroids for a long period with all their scary side affects!

I am now off prednisone for three months due, I think, to perseverance and scepticism that I really had PMR. I now and then get the symptoms similar to those of PMR but am not convinced I have it!! It was around the time just before I stopped taking prednisone that I was diagnosed with prostate cancer (low level fortunately) and am receiving radiation therapy.

Interestingly my GP felt the concentration on the cancer would likely remove the PMR symptoms or at least reduce them significantly caused, I guess, of my brain focusing on the cancer! This is precisely what occurred - one wonders!!

I do get some neck and lower back aches but since starting some neck and back exercises I got from a visit to a Physiotherapist the aches have greatly reduced almost to the stage where I don’t notice having aches at all!

I therefore question the symptoms allegedly due to PMR and I believe perhaps you might consider seeking advice other than from a Rheumatologist. This, I stress, is not to lose complete faith in a Rheumatologist but feel that PMR is too readily blamed for the symptoms you undoubtedly suffer as I did for four years or more.

I wish you luck in your journey.

[PMRpro Ambassador]

It sounds as if you meant this as a reply to someone - but it has come up as a new thread, Who did you mean it for?

[GucciPaddy in reply to PMRpro]

I replied (I believed!) to Glyngin by clicking on the required spot on the email I received. Once again I don’t seem to get my replies right - I don’t know why as I followed the right procedure I thought! But thank you for pointing my error out. Just don’t know how I got it wrong! When I clicked on the email reply prompt it took me to her full msg and displayed a reply option which I did.

[PMRpro Ambassador in reply to GucciPaddy]

Don't think it is you - it is HU!!!!!

[Racer2024 in reply to PMRpro]

You’re right! Oops. I’m not sure how to get back to the original comment I was replying to.

Is it possible for you to delete it please.

[Racer2024 in reply to Racer2024]

Oh dear this is getting confusing. Sorry.

[Koalajane in reply to Racer2024]

I am really confused now between you and Paddy!

[PMRpro Ambassador in reply to Racer2024]

Did you get a notification for MY reply to GucciPaddy?

This has happened a few times - obviously another intermittent HU glitch!!!!!!! Let's all ignore it since no, I can't do anything, my powers don't extend that far.