Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2024

PMR treatment and effects on osteoporosis

I was diagnosed with PMR in Jan 2023 and have just completed the weaning of prednisone over the last year. As soon as i stopped taking the final 1mg of...

I was diagnosed with PMR in Jan 2023 and have just completed the weaning of pred...

arctowellness

•4 months ago

12 Replies

Nausea - is it the pred, or something else?

Hello and thank you for the constant flow of useful insights. I know that stomach problems are a known side effect of steroid use, but I couldn’t see anything...

Hello and thank you for the constant flow of useful insights. I know that stomac...

calibriel

•4 months ago

4 Replies

Dermatitis

The other day there was a post about dermatitis. A number of people wrote about E45 cream. Well, of course, Amazon sells it and I ordered a tube. I have to...

The other day there was a post about dermatitis. A number of people wrote about...

Miacaro45

•5 months ago

4 Replies

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Why did my Rheumatologist Up my Prednisone?

Was dx'ed with GAC early October after going to Emerg. Long story short, I have been tapering prednisone since and was down from 60 to 12.5 mg using a tapering...

Was dx'ed with GAC early October after going to Emerg. Long story short, I have ...

newsusy

•5 months ago

21 Replies

Taper Complete…

I have stopped taking prednisone after 18 months of use and slowly reducing the dose. It has been just 2 weeks, so I know my PMR misadventure will still be...

I have stopped taking prednisone after 18 months of use and slowly reducing the ...

LabradorH

•5 months ago

14 Replies

Pmr- Gca spectrum disorder - new treatment

see this interesting link to new research & treatment...

Digory

•5 months ago

2 Replies

Collagen Supplements and Prednisolone

Someone has recommended Collagen supplements to help treat tennis elbow. Does anyone know if it’s safe to take with Pred (currently on 0.75mg)?

Someone has recommended Collagen supplements to help treat tennis elbow. Does an...

Dorothy61

•5 months ago

7 Replies

side affects long term prednisone

Been on pred since oct 2016, year ago was put on 40 mgs again, suspected GCA, but test showed negative , have reduced to 6 mgs so far, been fee mos on that...

Been on pred since oct 2016, year ago was put on 40 mgs again, suspected GCA, bu...

arvine

•5 months ago

41 Replies

Update: Pred 3 and a half weeks completed

Quick update and my usual questions to follow 🙄..... So, I managed to get through my two weeks on 15mg and tapered down on to 12.5mg where I will stay for a...

Quick update and my usual questions to follow 🙄..... So, I managed to get throu...

Paulx222

•5 months ago

24 Replies

Cold showers

Interesting article about the benefits of cold water therapy on inflammation and the immune system. Anyone any experience? MtS...

Interesting article about the benefits of cold water therapy on inflammation and...

Mervetheswerve

•5 months ago

69 Replies

pain with slow taper

I’ve been on prednisolone since early July and have tapered down to 13.5 from 20. I had to go back up to 15 for a couple of weeks after getting Covid, but am...

I’ve been on prednisolone since early July and have tapered down to 13.5 from 20...

Nanatoo

•5 months ago

8 Replies

PMR BOARD

My fellow band of brothers, I would love to say a massive thank you to the board members of our malady.To¦ PMRpro, DorsetLady, Piglette to name but a few Once...

My fellow band of brothers, I would love to say a massive thank you to the board...

Petertaffy

•5 months ago

7 Replies

Balance

For most of my 80 years I had excellent balance; then came PMR. I fell several times and only tentatively negotiated the bleachers in the gym where my grandson...

For most of my 80 years I had excellent balance; then came PMR. I fell several t...

papadapadoo

•5 months ago

4 Replies

bursitis

Happy and healthy New Year everyone. I am down to 1mg of pred and have developed, what my osteopath says, is bursitis . Also arthritis has flared up in my...

Happy and healthy New Year everyone. I am down to 1mg of pred and have develope...

Bubble56

•5 months ago

11 Replies

Heavy cold, lots of mucus…

Upped my Pred from 1/4mg to 2mg yesterday. Prior to increase I was shaking and having been through adrenal insufficiency once before, I took the larger dose....

Upped my Pred from 1/4mg to 2mg yesterday. Prior to increase I was shaking and h...

Exflex

•5 months ago

5 Replies

Slight Cold and Actemra

I caught a slight cold over the holidays which I’ve had for about a week and a half. It’s been nothing more than a runny nose and congestion. Very mild. I...

I caught a slight cold over the holidays which I’ve had for about a week and a h...

Lenore58

•5 months ago

10 Replies

Why does my rheumatologist want me to go onto Methotrexate when I am on a low does of Prednisolone and am getting good symptom relief?

I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologist has wanted me to go onto Methotrexate. I have never achieved total symptom...

I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologis...

Siena62

•5 months ago

11 Replies

Thanks to all here - split dose over 24 hrs evenly?

Anyone tried splitting dose of Pred over 24hrs to help taper - is it worth a try ? Thanks to everyone here such a supportive, knowledgeable group.I was...

Anyone tried splitting dose of Pred over 24hrs to help taper - is it worth a try...

Digory

•5 months ago

5 Replies

Melon Udrigle

To Tangocharlie. I would just like to say that my first appointment was a telephone appointment, my GP immediately from the symptoms diagnosed PMR, she...

To Tangocharlie. I would just like to say that my first appointment was a telep...

mellonudrigle

•5 months ago

11 Replies

Starting trial of prednisone I'm so sick

The doctor agreed to give me a trial of prednisone. I am concerned of the amount. 60mg for 3 days 40mg for 3 days 20mg for 3 days I pray I am doing the...

The doctor agreed to give me a trial of prednisone. I am concerned of the amoun...

Harrisonboy

•5 months ago

40 Replies

Can what you eat help diminish PMR?

Prof Tim Spector of Zoë and U.S. Medical Director Dr Will Bulsiewicz talking about inflammation , auto immune disease, and what influences this in terms of...

Prof Tim Spector of Zoë and U.S. Medical Director Dr Will Bulsiewicz talking abo...

Seekingasolution

•5 months ago

50 Replies

Thankyou for all the Christmas and New Year wishes and something for Epiphany

Here in northern Italy we have many traditions over this time of year and with Saturday being the end of the 12 days of Christmas I thought I would show you...

Here in northern Italy we have many traditions over this time of year and with S...

PMRpro

Ambassador•5 months ago

41 Replies

Alendronic acid tablets 😠

I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the...

I’ve been taking these for a few months and understand that they have to be swal...

Cfmad298601

•5 months ago

68 Replies

Return to work, tapering & adrenals

Some good news…. After being off work since July I’ve started back on a phased return this week. At the same time I’m down to 6mg of Pred (from 15mg in Aug)...

Some good news…. After being off work since July I’ve started back on a phased ...

SpaghettiWestern99

•5 months ago

4 Replies

Fatigue

Well, at 5 mg pred I am experiencing what I've been reading here called "deathly fatigue." I guess this is it for months to come. At the moment I don't have...

Well, at 5 mg pred I am experiencing what I've been reading here called "deathly...

Paulagcl

•5 months ago

4 Replies

Back to square one

Having reduced to 7mg over last 3 months I am noticeably struggling. Have concluded that 10mg was the least I can manage on and have to wait for Doctors...

Having reduced to 7mg over last 3 months I am noticeably struggling. Have concl...

gillsky8

•5 months ago

17 Replies

painkilling spinal injections

Happy New Year everyone. Haven’t written for ages. Briefly, l am nearly 80 and have had PMR and GCA for six years and am on 5mgs Pred. Since August l find l am...

Happy New Year everyone. Haven’t written for ages. Briefly, l am nearly 80 and h...

Alwynk

•5 months ago

45 Replies

GP appointment and blood tests - will recent steroid injection skew results?

Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for...

Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. We...

MsWhistledown

•5 months ago

12 Replies

Patient participation and involvement - please tell me your thoughts and ideas

I've been asked to a do a bit of a talk for some clinical staff and researchers at Leeds teaching hospitals about the benefits of involving patients. In other...

I've been asked to a do a bit of a talk for some clinical staff and researchers ...

tangocharlie

•5 months ago

84 Replies

GCA and type 2 diabetes

Hi all Warriors Since being on prednisone (since July 2023 at 60mg, now at l6mg) my A1C has slowly crept up. Had blood work yesterday and A1C is now at 7.1....

Hi all Warriors Since being on prednisone (since July 2023 at 60mg, now at l6mg...

Groda

•5 months ago

31 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

PMR treatment and effects on osteoporosis

Nausea - is it the pred, or something else?

Dermatitis

Why did my Rheumatologist Up my Prednisone?

Taper Complete…

Pmr- Gca spectrum disorder - new treatment

Collagen Supplements and Prednisolone

side affects long term prednisone

Update: Pred 3 and a half weeks completed

Cold showers

pain with slow taper

PMR BOARD

Balance

bursitis

Heavy cold, lots of mucus…

Slight Cold and Actemra

Why does my rheumatologist want me to go onto Methotrexate when I am on a low does of Prednisolone and am getting good symptom relief?

Thanks to all here - split dose over 24 hrs evenly?

Melon Udrigle

Starting trial of prednisone I'm so sick

Can what you eat help diminish PMR?

Thankyou for all the Christmas and New Year wishes and something for Epiphany

Alendronic acid tablets 😠

Return to work, tapering & adrenals

Fatigue

Back to square one

painkilling spinal injections

GP appointment and blood tests - will recent steroid injection skew results?

Patient participation and involvement - please tell me your thoughts and ideas

GCA and type 2 diabetes

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