Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2023

Ups & Down of PMR

I was diagnosed with PMR in Aug 2023, prior to which I had severe pain and mobility issues. Having responded well to Pred I have become pain free. I’ve started...

I was diagnosed with PMR in Aug 2023, prior to which I had severe pain and mobil...

SpaghettiWestern99

•6 months ago

6 Replies

Steroids, statins, strange query

I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis. From mid September I started to suffer an intermittent throbbing, burning pain...

I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis....

Bluey-1

•6 months ago

27 Replies

A future without screening colonoscopies.

interesting developments for diagnosing bowel cancer. https://www.medscape.com/viewarticle/990465 Many of us experience gut symptoms with our diseases, I for...

interesting developments for diagnosing bowel cancer. https://www.medscape.com/...

SheffieldJane

•6 months ago

39 Replies

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PMR symptoms or pred?

Diagnosted August 2023 with PMR. Started at 40 mg pred. Now at 16.25 mg. I have gastritis, insomnia, increased urination, exhaustion, trouble thinking and...

Diagnosted August 2023 with PMR. Started at 40 mg pred. Now at 16.25 mg. I have ...

Alohaoillady

•6 months ago

4 Replies

Splitting pred doses - help?

Diagnosed with PMR August 2023. I started at 40 mg and now down to 16.25. If I take full dose in the morning, pain returns and I have to wait til noon to have...

Diagnosed with PMR August 2023. I started at 40 mg and now down to 16.25. If I t...

Alohaoillady

•6 months ago

13 Replies

Does pred cause gastritis?

Diagnosed August 22, 2022 with PMR. Started at 40 mg pred now down to 16.25. This week extreme upper stomach pain no matter when or what I eat. Trying bland...

Diagnosed August 22, 2022 with PMR. Started at 40 mg pred now down to 16.25. Thi...

Alohaoillady

•6 months ago

52 Replies

past my sell by date

yesterday I had an eye test and the optician asked if I was “still !” using eye drops in my very dry eyes. He said I should do so hourly. I wasn’t aware I was...

yesterday I had an eye test and the optician asked if I was “still !” using eye ...

AnniesRyder5

•6 months ago

15 Replies

Ophthalmologist Visit

I just wanted to report on the exam by the ophthalmologist today. He said everything looks good. Optic nerve looks fine. He agreed (with all of you!) that my...

I just wanted to report on the exam by the ophthalmologist today. He said every...

Lenore58

•6 months ago

4 Replies

Is this a flare? And this headache.....?

Hi Everyone Since my first post, explaining the Rheumy didn't think I had GCA, and recommended a super fast taper from 60mg Pred to zero in 5 weeks. It went...

Hi Everyone Since my first post, explaining the Rheumy didn't think I had GCA, a...

JoysFollyNZ

•6 months ago

21 Replies

early pension due to I’ll health

hi I was wondering if anyone had considered or taken their work pension early , due to ill health from polymyagia Rheumatica ? I’m thinking not but worth an...

hi I was wondering if anyone had considered or taken their work pension early ...

maxistar

•6 months ago

17 Replies

Endocrinologist wants me to taper faster

Hi everyone, I just had my first appointment with an endo, and she agrees with my two rheumies in that I do *not* have PMR. When I described my intermittent...

Hi everyone, I just had my first appointment with an endo, and she agrees with ...

sferios

•6 months ago

8 Replies

Satisfactory Rheumatology Appointment

Some of you will know that for the past 6mths I've been experiencing a few issues regarding the re-emergence of some symptoms, that seem to have resulted in...

Some of you will know that for the past 6mths I've been experiencing a few issue...

Kendrew

•6 months ago

49 Replies

Repeat of recent back surgery and a Dexa question!!!

It has taken me over a week to put this down, I'm still in shock. The recent lumbar surgery I had in june needs to be redone!!! I'm putting it down to the...

It has taken me over a week to put this down, I'm still in shock. The recent lu...

powerwalk

•6 months ago

21 Replies

follow up to my travel insurance query

I want to thank everyone who replied to my enquiry re travel insurance. I contacted all the suggested companies and was amazed at the different quotes for...

I want to thank everyone who replied to my enquiry re travel insurance. I conta...

Sukian

•6 months ago

5 Replies

Group therapy for arthritic pain including PMR

Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully...

Does anyone know of any face-to-face groups within the Portsmouth area? Or, doe...

Markandevie

•6 months ago

11 Replies

Depression as side effect of long term prednisone use?

I’m at the 6 and a half year mark for PMR. Currently at 2. Have been struggling with lower energy and feeling blah for weeks. I see my Dr next month and will...

I’m at the 6 and a half year mark for PMR. Currently at 2. Have been struggling ...

bunnymom

•6 months ago

11 Replies

Helpful you tube channel

prednisone pharmacist is a you tube channel I found yesterday. She is on the medication herself. Thought I’d pass on the info as this community has helped me...

prednisone pharmacist is a you tube channel I found yesterday. She is on the med...

bunnymom

•6 months ago

5 Replies

Why does Pred need to be taken with food? Do they cause water retention and weight gain?

Just wondered how much and the kind of food has to be taken with the cheaper Pred and why? If you can get the coated tablets do they need to be taken with...

Just wondered how much and the kind of food has to be taken with the cheaper P...

Motida

•6 months ago

22 Replies

Feeling considerably better but fleeting pain in upper arm

Hi, I am now on half a mg of pred and feeling better than I have done for 2 years or so; however for the last couple of weeks ( not sure if every night- will...

Hi, I am now on half a mg of pred and feeling better than I have done for 2 year...

Animalover65

•6 months ago

12 Replies

migraine. Caused or worsened by PMR

I have been getting phenomenal migraines over the last month. All day every day, worse in the morning. Also pain up into scalp on one side next to left eye....

I have been getting phenomenal migraines over the last month. All day every day,...

Predderman2020

•6 months ago

16 Replies

GCA Eyesight Anxiety

Hello, I am feeling quite anxious now, because my long-distance sight seems worse today. I am definitely seeing double (at a distance) and cannot focus...

Hello, I am feeling quite anxious now, because my long-distance sight seems wo...

Lenore58

•6 months ago

8 Replies

First dose of pred today

I have made a few postings recently about my probable returning PMR. I took my first 10mg dose of pred this morning following the recurrence of symptoms and...

I have made a few postings recently about my probable returning PMR. I took my f...

SudsSuds

•6 months ago

5 Replies

In so much pain and feeling poorly

Hi folks, Last Friday while squeazing the edge of the mattress into the corner of a fitted sheet I had an excruciating shooting pain across the middle of my...

Hi folks, Last Friday while squeazing the edge of the mattress into the corne...

strawclutching

•6 months ago

14 Replies

Back pain

I am reducing meds from 7 to 6 using the slow method. Last week I had really bad back lower back pain which came on suddenly then went off 2 days later. This...

I am reducing meds from 7 to 6 using the slow method. Last week I had really ba...

toniaell

•6 months ago

19 Replies

Bad AI symptoms. Should I raise my pred for a few days?

Hi everyone, Over the last three weeks I have been doing pretty well on 7 mg pred, but the last two days I have this constant anxiety feeling in my stomach....

Hi everyone, Over the last three weeks I have been doing pretty well on 7 mg pr...

sferios

•6 months ago

7 Replies

GCA Worries

Hopefully you’ll recall that 2 weeks ago I was diagnosed with GCA and put on 60 mg. Prednisone after a positive temporary biopsy. My vision has been ok, except...

Hopefully you’ll recall that 2 weeks ago I was diagnosed with GCA and put on 60 ...

Lenore58

•6 months ago

11 Replies

Adrenal insufficiency and dosage

I searched this site but didn't find this article. For me the top takeaway was "Mean prednisolone dose the last 3 months and basal P-cortisol were the best...

I searched this site but didn't find this article. For me the top takeaway was "...

papadapadoo

•6 months ago

1 Reply

How long does the deathly fatigue phase tend to last when adrenals are kicking in at lower doses of Pred?

Probably a "piece of string" type question, but what has been your experience of the time it takes to get energy, get-up-and-go, and oomph back to age...

Probably a "piece of string" type question, but what has been your experience of...

Dochaz

•6 months ago

35 Replies

need advise please

I’m female 77 years old diagnosed in February 2022 with PMR with typical symptoms pain across shoulders unable to get off toilet needed to lift my leg to get...

I’m female 77 years old diagnosed in February 2022 with PMR with typical symptom...

M1222

•7 months ago

6 Replies

leg pain

Hello everyone I was diagnosed with PMR in July. Started on 15mg of pred it helped but I was still in a lot of pain in the evening and mornings. Came on here...

Hello everyone I was diagnosed with PMR in July. Started on 15mg of pred it he...

Rosiecavapoo

•7 months ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2023

Ups & Down of PMR

Steroids, statins, strange query

A future without screening colonoscopies.

PMR symptoms or pred?

Splitting pred doses - help?

Does pred cause gastritis?

past my sell by date

Ophthalmologist Visit

Is this a flare? And this headache.....?

early pension due to I’ll health

Endocrinologist wants me to taper faster

Satisfactory Rheumatology Appointment

Repeat of recent back surgery and a Dexa question!!!

follow up to my travel insurance query

Group therapy for arthritic pain including PMR

Depression as side effect of long term prednisone use?

Helpful you tube channel

Why does Pred need to be taken with food? Do they cause water retention and weight gain?

Feeling considerably better but fleeting pain in upper arm

migraine. Caused or worsened by PMR

GCA Eyesight Anxiety

First dose of pred today

In so much pain and feeling poorly

Back pain

Bad AI symptoms. Should I raise my pred for a few days?

GCA Worries

Adrenal insufficiency and dosage

How long does the deathly fatigue phase tend to last when adrenals are kicking in at lower doses of Pred?

need advise please

leg pain

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