Ups & Down of PMR: I was diagnosed with PMR in Aug... - PMRGCAuk

PMRGCAuk

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Ups & Down of PMR

SpaghettiWestern99 profile image

I was diagnosed with PMR in Aug 2023, prior to which I had severe pain and mobility issues. Having responded well to Pred I have become pain free. I’ve started a reduction and I’m currently 3 weeks into a 10mg reduction.

I’m able to be active, something which I’m really grateful for. The downsides have been nausea, dizziness, fatigue, anxiety, depression, and being off work. When people ask me what’s it’s like I often respond that I’ve been through the wringer, it’s not pleasant and you don’t know what each day is going to be like. Bit of a nightmare.

The positives are that I am getting better, but it’s a rollercoaster of a ride. Having this forum & keeping a diary has been a huge help.

Long way to go yet and really appreciate everyone on here

Male, 52 & active runner (until PMR)!

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SpaghettiWestern99 profile image
SpaghettiWestern99
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6 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good to hear…. and you know where we are when you need us….

SpaghettiWestern99 profile image
SpaghettiWestern99 in reply toDorsetLady

DorsetLady - thank you. I check in daily, it keeps me sane!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSpaghettiWestern99

Keeps you sane? Lucky you 😊…

Sukydee profile image
Sukydee

It certainly is a rollercoaster in every way. Glad to hear that you are getting better. I too was an active runner, knocking out 15 miles before breakfast, training for ultra marathons. It’s hard to accept the changes that PMR forces upon us. Hoping your PMR journey goes smoothly.

Merryfield profile image
Merryfield

Dear Spaghetti-you are a toughie to deal with all the side effects of pred and PMR. Wishing you the best.

SheffieldJane profile image
SheffieldJane

A diary is a great idea. I wish I’d thought of it. A record of all the tests and symptoms, response to tapering, the impact of activities and of stress. It would be a good way of managing the disease and maintaining perspective.

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