I was diagnosed with PMR in Aug 2023, prior to which I had severe pain and mobility issues. Having responded well to Pred I have become pain free. I’ve started a reduction and I’m currently 3 weeks into a 10mg reduction.
I’m able to be active, something which I’m really grateful for. The downsides have been nausea, dizziness, fatigue, anxiety, depression, and being off work. When people ask me what’s it’s like I often respond that I’ve been through the wringer, it’s not pleasant and you don’t know what each day is going to be like. Bit of a nightmare.
The positives are that I am getting better, but it’s a rollercoaster of a ride. Having this forum & keeping a diary has been a huge help.
Long way to go yet and really appreciate everyone on here
Male, 52 & active runner (until PMR)!