Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2023

The seemingly good, bad and ugly rheumatologists

Due to an administrative error I had the pleasure of an appointment with a third rheumatologist yesterday. Same old story however - you cannot have PMR at...

Due to an administrative error I had the pleasure of an appointment with a third...

Body_bonkers

•7 months ago

49 Replies

Don’t know where to start

I have had Polymyalgia and Giant Cell since 12/2016. Started off high dose of 50 mg worked great helped with pain n mobility immensely. Then to 30 then 20 now...

I have had Polymyalgia and Giant Cell since 12/2016. Started off high dose of 50...

Hidden

•7 months ago

12 Replies

Ginger

Interesting article on Ginger and possible benefits for people with Autoimmune diseases....

Interesting article on Ginger and possible benefits for people with Autoimmune d...

Newcomer22

•7 months ago

6 Replies

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Chat amongst forum members

As a subscriber to this forum over the past six years and having benefited hugely from the wisdom on this site, can I just ask whether “off topic” responses...

As a subscriber to this forum over the past six years and having benefited hugel...

Zebedee44

•7 months ago

66 Replies

8 months on pred - Update from recent bloods

I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml...

I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CR...

Gimme

•7 months ago

42 Replies

Eye trama

Just wondering if I'll have up pred for a day or two,my husband poked me in the eye,got drops from doc hopefully won't have to go hospital ,not cut just...

Just wondering if I'll have up pred for a day or two,my husband poked me in the ...

Harrywogan

•7 months ago

16 Replies

discomfort or??

I am currently on 8 mg after tapering from initial 15 mg dose after PMR diagnosis and almost Immediate relief of symptoms. I have tapered from 15 to 12.5 to...

I am currently on 8 mg after tapering from initial 15 mg dose after PMR diagnosi...

Fishtacoqueen

•7 months ago

8 Replies

Pain deep in thigh muscles and upper arms PMR or something else?

I have tapered from 15mg to 1mg since May 2022 and have been at 1mg for a month, feeling pretty good. However for the last week I have considerable pain in the...

I have tapered from 15mg to 1mg since May 2022 and have been at 1mg for a month,...

PipandDots

•7 months ago

34 Replies

Swollen temples

Woke up today with swollen tender temples both sides Pred no affect is there anything I can do, vision not good.

Woke up today with swollen tender temples both sides Pred no affect is there any...

Doublef

•7 months ago

32 Replies

Plantar fascia tear, due to long-term prednisone use?

Following sudden and agonising heel pain on Monday morning, I've seen my physio. He says it's an unusual injury, but likely due to long-term steroids. I have a...

Following sudden and agonising heel pain on Monday morning, I've seen my physio....

HelenDaisy

•7 months ago

13 Replies

Frequent Infections

Good morning. I have had PMR and GCA since 2018. I’m now on 3 mgms of pred daily. I have recently come out of hospital with gastro enteritis. It is very...

Good morning. I have had PMR and GCA since 2018. I’m now on 3 mgms of pred daily...

garden49

•7 months ago

4 Replies

Purpura

Hi everyone, I’ve started getting purpura on my legs again, they all cleared up for about 6 months and now they are back, I’m so disappointed, I’ve not not...

Hi everyone, I’ve started getting purpura on my legs again, they all cleared up ...

2013mayo

•7 months ago

20 Replies

North East Skinny Dip

Just a follow up on my questions about the timing and taking of more than my usual 5mg pred prior to this charity event in aid of MIND….. I had no need to...

Just a follow up on my questions about the timing and taking of more than my usu...

suelm

•7 months ago

8 Replies

Cardiff meeting

The next meeting of the group is on Friday 6th October in the Central Library at 11.30, Peter Cronin room.Any one welcome to attend.

The next meeting of the group is on Friday 6th October in the Central Library at...

slewis

•7 months ago

1 Reply

Upping pred replies

Thanks to all with support buy can u tell me why the health unlocked screen has split in half when I go to sight is it a blip at their end as all my ather...

Thanks to all with support buy can u tell me why the health unlocked screen has...

Livlife1972

•7 months ago

12 Replies

Ferrous sulphate

Can anyone help please with the best time of day to take these tablets? Or any experience with having taken them? It's all well and good to say take on an...

Can anyone help please with the best time of day to take these tablets? Or an...

gillsky8

•8 months ago

13 Replies

Authoritative source about flares

I recently had a bad cold and developed considerable pain in the shoulders and arms. My taper had me at 8mg at that point, but to mitigate the pain I went up...

I recently had a bad cold and developed considerable pain in the shoulders and a...

papadapadoo

•8 months ago

8 Replies

Not exactly PMR but advice please about post menopausal dryness.

Since I was diagnosed with PMR in 2017 I have had frequent episodes of cystitis requiring antibiotic treatment. These seemed to be made worse by the Calcium...

Since I was diagnosed with PMR in 2017 I have had frequent episodes of cystitis ...

Zebedee44

•8 months ago

21 Replies

prednisone pain

recently there was discussion about prednisone pain when reducing the prednisone. Not sure how I can tell pred. Pain from pmr pain? Will pain medication help...

recently there was discussion about prednisone pain when reducing the prednisone...

Linny3

•8 months ago

5 Replies

This year's PMRGCAuk AGM

I have just re-watched the recording of this Zoom AGM and it was time well spent both times round. It was chaired by Dr Vanessa Quick, whose work and ideas...

I have just re-watched the recording of this Zoom AGM and it was time well spent...

tangocharlie

•8 months ago

73 Replies

Rheumatologist

Please could I have a recommendation for a rheumatologist within 50 miles. I live in Gloucestershire . Thanks .

Please could I have a recommendation for a rheumatologist within 50 miles. I l...

LikesKnitSewGarden

•8 months ago

9 Replies

Prednisolone weight issues

I have been on prednisolone for about 2 years now, starting at 25mg . I have reduced this down to 3mg but have a lot of pain. I have put on 2 stone, mostly...

I have been on prednisolone for about 2 years now, starting at 25mg . I have red...

Linbin1

•8 months ago

21 Replies

Pain free dressing removal!

Had to go to Pharmacist to check on one of those skin tears we’re prone to. She was so horrified at the bruising as I took off the dressing that she used this...

Had to go to Pharmacist to check on one of those skin tears we’re prone to. She ...

Thelmarina

•8 months ago

48 Replies

All at sea

Some of you were kind enough to help out a few weeks ago. In summary a flare which i thought i had largely got over. Started a drop from 1.5mg to 1mg and...

Some of you were kind enough to help out a few weeks ago. In summary a flare wh...

NickWarwick

•8 months ago

29 Replies

Doctor thinks not pmr

Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but...

Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of pre...

Petertaffy

•8 months ago

7 Replies

Fragile Skin and cuts, increased CRP and Chest Infection and reducing pred.

Hi you lovely people it doesnt seem that long since my last post asking for your advice regarding my 86 year old mums struggles with achilles tendonitis before...

Hi you lovely people it doesnt seem that long since my last post asking for your...

Buchanan16

•8 months ago

16 Replies

Sleep Cycles on Prednisone

I am on 40 mg prednisone for CGA. My sleep has not improved from the lower dosage. When I get sleepy, I lie down and sleep for 2 hours. Wake up very alert...

I am on 40 mg prednisone for CGA. My sleep has not improved from the lower dosag...

Groda

•8 months ago

8 Replies

Time of absorption for gastro-resistant prednisolone???

Just gone to get mum’s next box 2.5mg & she has been given gastro-resistant tablets 🤷‍♀️🤷‍♀️ Must have been a bad day at pharmacy as they had also written...

Just gone to get mum’s next box 2.5mg & she has been given gastro-resistant tabl...

RT18

•8 months ago

21 Replies

Can a fall cause a flare?

I fell at work yesterday on a wet floor and landed on my right side hurting my hip and shoulder. Today I started off feeling sore and bruised down my right...

I fell at work yesterday on a wet floor and landed on my right side hurting my h...

Mfaepink1973

•8 months ago

15 Replies

my biggest problem now is out of breath low oxygen very little energy Doctors seam to put it down to AF But I am not sure

sorry got carried away My oxygen is only 88 when I am sat down wish I could afford to go private I know lots of people with af which are not breathless...

sorry got carried away My oxygen is only 88 when I am sat down wish I could a...

Ronzy

•8 months ago

48 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2023

The seemingly good, bad and ugly rheumatologists

Don’t know where to start

Ginger

Chat amongst forum members

8 months on pred - Update from recent bloods

Eye trama

discomfort or??

Pain deep in thigh muscles and upper arms PMR or something else?

Swollen temples

Plantar fascia tear, due to long-term prednisone use?

Frequent Infections

Purpura

North East Skinny Dip

Cardiff meeting

Upping pred replies

Ferrous sulphate

Authoritative source about flares

Not exactly PMR but advice please about post menopausal dryness.

prednisone pain

This year's PMRGCAuk AGM

Rheumatologist

Prednisolone weight issues

Pain free dressing removal!

All at sea

Doctor thinks not pmr

Fragile Skin and cuts, increased CRP and Chest Infection and reducing pred.

Sleep Cycles on Prednisone

Time of absorption for gastro-resistant prednisolone???

Can a fall cause a flare?

my biggest problem now is out of breath low oxygen very little energy Doctors seam to put it down to AF But I am not sure

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