Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2023

movement

I have PMR and last night I fell out of bed it took me 40mins to get up. My body wouldn’t move. Is this normal for the condition. My movement is quite slow. I...

I have PMR and last night I fell out of bed it took me 40mins to get up. My body...

PickleballWetheral

•1 year ago

7 Replies

Hospital day care operation

I wanted to let everyone know what a good result and excellent treatment I had at my local hospital Queen Elizabeth Woolwich yesterday during a Hysteroscopy...

I wanted to let everyone know what a good result and excellent treatment I had a...

Oboes22

•1 year ago

7 Replies

Do natural supplements work to reduce high cholesterol?

While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had...

While strictly not a PMR issue I know there are a few whose cholesterol has rise...

Pr0jection

•1 year ago

48 Replies

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Covid dosage 2023

Can’t believe I’ve got the wretched thing after cheating it for four years 😱😂. I’ve checked out the advised Covid sick day rules from Covid FAQs, thank you...

Can’t believe I’ve got the wretched thing after cheating it for four years 😱😂....

Thelmarina

•1 year ago

9 Replies

Decrease in Pred - now feeling a bit tense with sore neck & shoulders

I increased Pred from 6mg to 10 just before Christmas as I had become very anxious and felt tense around the shoulders and they began to feel stiff - I felt...

I increased Pred from 6mg to 10 just before Christmas as I had become very anxio...

Miserere

•1 year ago

20 Replies

GCA starting dose relapse?

Hi Seems I might have a relapse, not that much symptoms but elevated inflammation markers so I think the reumy might want to be preemptive and ”nip it in the...

Hi Seems I might have a relapse, not that much symptoms but elevated inflammati...

Gilmor

•1 year ago

45 Replies

New here, need some advice please, has pmr returned and what should i do?

Hi I was diagnosed with PMR in 2011. Although i had what i believe are fairly common symptoms (debilitating stiffness/pain around shoulders and front of hips,...

Hi I was diagnosed with PMR in 2011. Although i had what i believe are fairly c...

exdd

•1 year ago

8 Replies

PMR sudden horrific pain

I have been diagnosed with PMR on Dec. 14th after the horrific pain others have described here. Shoulders, hips, knees, buttocks - to the point I could barely...

I have been diagnosed with PMR on Dec. 14th after the horrific pain others have ...

Ke115000

•1 year ago

67 Replies

Brief update on my lower Intestinal Tract Capsule Endoscopy.

Just to let you know that the procedure went fine. Although the camera was a little larger than an Omega 3 high strength capsule, I found that with the right...

Just to let you know that the procedure went fine. Although the camera was a lit...

SheffieldJane

•1 year ago

41 Replies

Increased predisinol

Hi everyone you may recall my husband is on his journey with pmr he was decreased quite quickly from 20 ,15,10 abd finally five.You may recall the pain came...

Hi everyone you may recall my husband is on his journey with pmr he was decrease...

andfio

•1 year ago

3 Replies

Insomnia after being on higher dose pred

well, have posted my history these last couple mos, so was on 40 mgs pred, strted Dec 30, for suspected GCA, on for one week, had blood work done on Jan 5,...

well, have posted my history these last couple mos, so was on 40 mgs pred, strte...

arvine

•1 year ago

3 Replies

How long to stay on 2.5

I have been on pred for PMR for 7 years. I was on 3.5mg then 3mg for all of last year so I'm an ultra slow dropper but with no pain. I'm busy so it's...

I have been on pred for PMR for 7 years. I was on 3.5mg then 3mg for all of last...

diana1998

•1 year ago

19 Replies

Taking a pred break..

Hi all, I had a repeated high potassium blood test recently, and thinking it might be linked to some of my meds (propranolol/ etoricoxib) I decided to take a...

Hi all, I had a repeated high potassium blood test recently, and thinking it mig...

David-F

•1 year ago

23 Replies

approaching a medical appointment armed to the hilt ….

PMRpro asked me to repost a response to another member in a new thread accessible to everyone. This is long, but I hope it helps someone. I used to work as...

PMRpro asked me to repost a response to another member in a new thread accessibl...

Knittingyahoo

•1 year ago

23 Replies

Help needed

my husband was diagnosed in March 2022 and given 15 mg steroid. The initial result was remarkable but only lasted for a month at the most. Since then he has...

my husband was diagnosed in March 2022 and given 15 mg steroid. The initial resu...

Janonline1234

•1 year ago

13 Replies

not sure if this is the right page for BP meds

I was prescribed Imladapine for high BP 10 days ago. All was good at first until after taking for 8 days I feel so unwell. Dizzy/woozy head/nausea and...

I was prescribed Imladapine for high BP 10 days ago. All was good at first unti...

Doraflora

•1 year ago

18 Replies

Blisters

have now been off pred for nearly 4 months. Still have pains on moving, but in different places. my new hell is blood blisters, Dr thinks Pemphigus. Hooray...

have now been off pred for nearly 4 months. Still have pains on moving, but in ...

Alazarin

•1 year ago

17 Replies

Update on last blood test

surprised by call from GP just now. Apologised for not calling sooner. I had ‘Asked my GP’ if I could raise the Pred a bit as I was having a flare . As she...

surprised by call from GP just now. Apologised for not calling sooner. I had ‘...

Suffererc

•1 year ago

18 Replies

question for those with sight loss…….

can I ask of those that have experienced sight loss, has this been since your GCA diagnosis (and possibly already getting treatment) or was it part of the...

can I ask of those that have experienced sight loss, has this been since your GC...

Cfmad298601

•1 year ago

3 Replies

prednison taken alternate days for chronic pmr

hi there Friends, just wondering if any of you chronic pmr “sufferers” have tried to take prednison on alternate days instead of on a daily basis and what...

hi there Friends, just wondering if any of you chronic pmr “sufferers” have tr...

Kaaswinkel

•1 year ago

28 Replies

Post Leflunomide Update

After coming off Leflunomide in November 2022, I am now up from 5.5 to 15 mg Prednisone. Finally the pain is subsiding in my left shoulder- it was constantly...

After coming off Leflunomide in November 2022, I am now up from 5.5 to 15 mg Pre...

Alebeau

•1 year ago

14 Replies

Painful stomach

I have just been through 2 days of excruciating stomach pain brought on by taking fish oil tablets. I saw my Dr today and he said it's a reaction to fish...

I have just been through 2 days of excruciating stomach pain brought on by takin...

Raewynne

•1 year ago

37 Replies

HealthUnlocked app

Hi all - I seem not to be able to access or post anything via the app. I can if redirected from an email. I eventually thought to uninstall the app and...

Hi all - I seem not to be able to access or post anything via the app. I can if...

Slosh

•1 year ago

2 Replies

Confused

Having been diagnosed with PMR five years ago - and not having had the most straightforward of experiences - I really thought that I’d experienced most of the...

Having been diagnosed with PMR five years ago - and not having had the most str...

Janann25

•1 year ago

20 Replies

hippie

hi can anyone please give any advice this week I have been feeling anxious can steroids make me feel like this on 8mg at moment

hi can anyone please give any advice this week I have been feeling anxious can s...

Hippie22

•1 year ago

27 Replies

reducing prednisone with slow method

I have been reducing for 2 months and have gone from 15mg daily to 12. Things are going pretty good. I have tweaked it a little and wonder what anyone thinks...

I have been reducing for 2 months and have gone from 15mg daily to 12. Things ar...

Linny3

•1 year ago

10 Replies

Frustration

I find it hard when people say that they know someone who has been taking prednisolone for polymyalgia for 16 years with no side effects. The person involved...

I find it hard when people say that they know someone who has been taking predni...

Hidden

•1 year ago

29 Replies

Pain below buttocks both sides. Rheumatologist says could be from PMR but who knows.

PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been normal for over a year now. I’m on 2mg prednisone. — To see whether I may be in...

PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been nor...

SusanEleven

•1 year ago

31 Replies

Missing profiles

there are still quite a few people asking for help without filling in their profile. Without knowing whether you have PMR or GCA, how long you have been...

there are still quite a few people asking for help without filling in their prof...

Koalajane

•1 year ago

6 Replies

Reduce or not to reduce

I have been doing the DSNS method 0.5mg at a time since 5mg and have now reached 1mg. I have stayed on 1mg for 3 weeks as 1st thing in the morning I have a...

I have been doing the DSNS method 0.5mg at a time since 5mg and have now reached...

Retallack

•1 year ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

movement

Hospital day care operation

Do natural supplements work to reduce high cholesterol?

Covid dosage 2023

Decrease in Pred - now feeling a bit tense with sore neck & shoulders

GCA starting dose relapse?

New here, need some advice please, has pmr returned and what should i do?

PMR sudden horrific pain

Brief update on my lower Intestinal Tract Capsule Endoscopy.

Increased predisinol

Insomnia after being on higher dose pred

How long to stay on 2.5

Taking a pred break..

approaching a medical appointment armed to the hilt ….

Help needed

not sure if this is the right page for BP meds

Blisters

Update on last blood test

question for those with sight loss…….

prednison taken alternate days for chronic pmr

Post Leflunomide Update

Painful stomach

HealthUnlocked app

Confused

hippie

reducing prednisone with slow method

Frustration

Pain below buttocks both sides. Rheumatologist says could be from PMR but who knows.

Missing profiles

Reduce or not to reduce

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