Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for February 2023

On holiday, added 5mg this morning

On the 30th November started tapering from 2.25 to 2mg. 5 weeks later completed taper successfully and decided to remain on 2mg until after I had come home...

On the 30th November started tapering from 2.25 to 2mg. 5 weeks later completed ...

Mazxstitch

•1 year ago

4 Replies

High Platelets

My hubby is the sufferer, he is 65 and has had PMR for four years. He started on 15mg of Prednisolone and has had a few up and downs but is currently on 4mg....

My hubby is the sufferer, he is 65 and has had PMR for four years. He started on...

Hollieby

•1 year ago

6 Replies

Wondering about splitting daily dose

Following from previous post I upped to 12.5mg as it seemed that the bivalent booster for covid had reactivated my pmr....conjecture agreed on here. I have...

Following from previous post I upped to 12.5mg as it seemed that the bivalent bo...

Ebiker

•1 year ago

9 Replies

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Immunity Question

Hi all, I'm a GCA patient since AUG 2022. Long story short, I've been more or less on high doses of PRED since then. Currently, I'm on 40 MG, and will be...

Hi all, I'm a GCA patient since AUG 2022. Long story short, I've been more or ...

montebello

•1 year ago

17 Replies

DEXA scan results

Well, always good to get some good news. Lumbar Spine Z -Score = 0.3 (Previous 2 years ago 0.5 ) T- Score = 0.0 (Previous 2 years ago...

Well, always good to get some good news. Lumbar Spine Z -Score = 0.3 (P...

Bcol

•1 year ago

3 Replies

Adrenal start-up advice needed

I was diagnosed with PMR in July 2021 and started on 15mg. I have got through 2-3 hiccups with the help of this forum, and have now just settled at 6mg after...

I was diagnosed with PMR in July 2021 and started on 15mg. I have got through 2...

jinoadby

•1 year ago

36 Replies

increase in pain and stiffness on reducing pred

I had to increase pred up to 15mg after recurrence of symptoms on reducing too quickly from 20 to 10 mg. Reduced now to 12.5 mg after 3 weeks on 15. Have...

I had to increase pred up to 15mg after recurrence of symptoms on reducing too q...

Hidden

•1 year ago

32 Replies

Tapering

Hello to this wonderful sight. I haven't been on here for a while, the main reason that whenever a question arises I always seem to find the answers in someone...

Hello to this wonderful sight. I haven't been on here for a while, the main reas...

Smilie67

•1 year ago

46 Replies

Shingles after GCA

I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left...

I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with viti...

pugrescue

•1 year ago

5 Replies

Methotrexate ;)

Well it happened! My first Rheumatologist appointment since my last 5 minute rush job in 2019..... As I expected everything I have an issue with was explained...

Well it happened! My first Rheumatologist appointment since my last 5 minute rus...

Hidden

•1 year ago

24 Replies

Pain in right hip and leg

I have been getting pain & tingling in my right hip and leg since June 2022. I though it was sciatica at first but when I went to my GP she sent me for an...

I have been getting pain & tingling in my right hip and leg since June 2022. I...

195536

•1 year ago

15 Replies

Leg ache/pain from PMR or Pred?

Having been on Pred for 2.5 years having had real problems decreasing, & when I getting to 7/8mg life became intolerable. New Rheumy asked what is worse not...

Having been on Pred for 2.5 years having had real problems decreasing, & when I ...

Purpleprimate

•1 year ago

31 Replies

Should I up my Pred while I am fighting Covid?

I have tested positive for Covid & am really poorly. I am on 5 mg and slowly tapering down to 4.5 mg at the moment. Should I increase my Pred while fighting...

I have tested positive for Covid & am really poorly. I am on 5 mg and slowly tap...

JEMOK

•1 year ago

8 Replies

Steroids and Ibuprofen

I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My...

I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in...

Washingup

•1 year ago

64 Replies

Fatigue

I just completed a taper from 6.5 to 6 mg and am exhausted all the time. Taper is old dose one day, new dose next day, alternating between two, then 3 weeks at...

I just completed a taper from 6.5 to 6 mg and am exhausted all the time. Taper i...

Anonnomus

•1 year ago

25 Replies

I didn't see this in the FAQ section - what is DOMS?

What is DOMS?

christi48

•1 year ago

4 Replies

Arithmias

Good evening dear people,I was wondering hom many of us get all sort of cardic problem, particularly arithmias? I just feel that the medication- prednisolone...

Good evening dear people,I was wondering hom many of us get all sort of cardic p...

Svete

•1 year ago

10 Replies

PMR and vigorous exercise

Anyone’s experiences with resuming more vigorous exercise - i.e. running/hiking/biking/XC skiing for 1-3 hours after PMR diagnosis/prednisone tx after...

Anyone’s experiences with resuming more vigorous exercise - i.e. running/hiking/...

Sweatbee2

•1 year ago

16 Replies

Arthritis, PMR or both.

I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR....

I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still ...

Hughie1951

•1 year ago

11 Replies

sudden flare or/ and doing too much?

Three years of pmr with two bad flares. On 2mg for 6 months. Gentle swimming and yoga every other day. Have got, quite quickly, very severe spasm pain in back...

Three years of pmr with two bad flares. On 2mg for 6 months. Gentle swimming and...

Evamollie

•1 year ago

2 Replies

Many Thanks

The support from so many of you has meant the world to me. My husband and I have a very tough week ahead but we can do it. I’ve increased my prednisone from 4...

The support from so many of you has meant the world to me. My husband and I have...

Blackcatlover

•1 year ago

4 Replies

Does this tiredness ever go?

Been on pred for just over three years, and yes the pain has almost gone, only says hello I’m still here, if I do something silly, like picking something heavy...

Been on pred for just over three years, and yes the pain has almost gone, only s...

Dorsetgirl17

•1 year ago

11 Replies

Advice please

Had a blood test Friday but Doctor said I only needed ESR . Always had CRP as well but he said no need . I’m a bit wary as anything I’ve asked for Dexa Scan...

Had a blood test Friday but Doctor said I only needed ESR . Always had CRP as ...

Nanny71

•1 year ago

13 Replies

New affliction with PMR/GCA

So after 8 or so months on prednisone (started at 60 mg) for PMR and GCA, along with 10weeks of Actemra, I am down to 25 mg pred. Noticed a new problem for...

So after 8 or so months on prednisone (started at 60 mg) for PMR and GCA, along ...

Joseph14612

•1 year ago

6 Replies

Split Prednisone or one dose daily?

Many with PMR seem to have extreme fatigue when tapering prednisone. I’m curious if anyone who was splitting their daily dose went to once per day in an...

Many with PMR seem to have extreme fatigue when tapering prednisone. I’m curio...

Macadoo

•1 year ago

6 Replies

OUT OF BREATH

I am on Actemra which has helped me to get down to 5mg of pred a day!! But I have a problem with losing my breath, do other people have this problem?...

I am on Actemra which has helped me to get down to 5mg of pred a day!! But I h...

calicojoy41

•1 year ago

9 Replies

What a surprise!!!!

As you all know I've been going thru alot of stress with the water pipe burst at xmas.We re still in hotel which is a bit bothersome.The surprise for me was I...

As you all know I've been going thru alot of stress with the water pipe burst at...

Hunter134

•1 year ago

9 Replies

DOMS or a flare?

Since stupidly messing up my steroid dose over Christmas I was just starting to fell a little better at the beginning of last week. As a result I did a little...

Since stupidly messing up my steroid dose over Christmas I was just starting to ...

Tiggy70

•1 year ago

53 Replies

Stress, thrush, flare

Dear people I really need your help. My husband of 55 years has just been diagnosed with stage three cancer. I’ve been a mess. We are going to Mass General...

Dear people I really need your help. My husband of 55 years has just been diagno...

Blackcatlover

•1 year ago

31 Replies

Root Canal/steroids/antibiotics-avoid?

Hi folk, About 3 months ago. I had a tooth abscess. I was given a course of amoxicillin that dealt with the infection but gave me terrible Thrush that took...

Hi folk, About 3 months ago. I had a tooth abscess. I was given a course of am...

Bramble2000

•1 year ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

On holiday, added 5mg this morning

High Platelets

Wondering about splitting daily dose

Immunity Question

DEXA scan results

Adrenal start-up advice needed

increase in pain and stiffness on reducing pred

Tapering

Shingles after GCA

Methotrexate ;)

Pain in right hip and leg

Leg ache/pain from PMR or Pred?

Should I up my Pred while I am fighting Covid?

Steroids and Ibuprofen

Fatigue

I didn't see this in the FAQ section - what is DOMS?

Arithmias

PMR and vigorous exercise

Arthritis, PMR or both.

sudden flare or/ and doing too much?

Many Thanks

Does this tiredness ever go?

Advice please

New affliction with PMR/GCA

Split Prednisone or one dose daily?

OUT OF BREATH

What a surprise!!!!

DOMS or a flare?

Stress, thrush, flare

Root Canal/steroids/antibiotics-avoid?

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