Blisters: have now been off pred for nearly... - PMRGCAuk

PMRGCAuk

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Blisters

Alazarin profile image
17 Replies

have now been off pred for nearly 4 months. Still have pains on moving, but in different places.

my new hell is blood blisters, Dr thinks Pemphigus. Hooray another Autoimmune condition to add to my collection.

Anyone else suffered this.

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Alazarin profile image
Alazarin
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17 Replies
PMRpro profile image
PMRproAmbassador

Can't remember anyone here - but there were a few on the LupusUK forum.

123-go profile image
123-go

Oh! Poor you 😫. I’ve not heard of this. What is your doctor doing for you?

piglette profile image
piglette

Is it a blood blister or purpura which are much flatter on the skin and normally reddy purple?

Miserere profile image
Miserere in reply to piglette

I seem to develop purpura at the least trauma - assume because skin is weaker/thinner on steroids. Just pruned some raspberries and one has come up without me noticing. Blasted things. Just something else to add ... I hope it doesn't continue when/if I ever get off Pred.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Miserere

‘Fraid to say it does [but a lot less]..although older skin is prone to anyway….

Miserere profile image
Miserere in reply to DorsetLady

Ah, well - another thing to look forward to. Thanks, DL.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Miserere

It’s usually pruning roses for me!

Miserere profile image
Miserere in reply to DorsetLady

You have my sympathy - I love pruning, though, so will not be put off!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Miserere

Should get some gloves with longer sleeves-but never seem to think about it when in garden centre…. Or can’t find any suitable.

Miserere profile image
Miserere in reply to DorsetLady

I forget to put mine on ... until it's too late, of course. 🙃

PMRpro profile image
PMRproAmbassador in reply to Miserere

Since I got to single figure pred doses I don't develop purpurae at all! That is after 14+ years on pred.

Miserere profile image
Miserere in reply to PMRpro

I am on single figures and didn't develop it when on double ... 2.5 years on pred.

piglette profile image
piglette in reply to Miserere

I don’t know where they come from. I have just got the biggest I have ever had. I get a cheap thrill by checking them when I am swimming and check the numbers when I am resting at the end if the pool. I swear they increase when I am swimming!

Miserere profile image
Miserere in reply to piglette

Are you sure Jaws isn't in there with you???

piglette profile image
piglette in reply to Miserere

That must be it!!

Alazarin profile image
Alazarin

a proper blood blister, which bursts, messily, heals a bit, then starts again

Alazarin profile image
Alazarin

dr prescribed Betnovate cream

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