I haven’t been very present in the group this last week. It’s been a very up and down time.
Briefly I’ve had an awful time, feeling confused, exhausted and abandoned.
One doctor on a telephone call upped my pred dose from 15 to 30, increased my painkillers for the better. After several bad nights both myself and my husband I were so tired neither of us were confident that we had understood what the doctor had instructed re the Pred. I booked another call and he went through my symptoms again and he questioned that PMR was the correct diagnoses. Once I had calmed down and reflected I realised several things. The pains I had in my left hip, left ankle and knees were all pre-existing conditions. The awful pain in my shoulders and stiffness were a separate issue - PMR.
After many more tears and frustration I was given a doctors appointment yesterday, 27 January. The doctor was wonderful she listened, understood, addressed both of us and was empathetic and supportive. What a relief. Result - I went straight for a hip X-ray, booked in blood tests for calcium and Vitamin D levels, the doctor is referring me to a rheumatologist and gave clear and concise instructions for painkillers and Pred. At last someone had listened and acted. Our relief was phenomenal.
I’ve purchased and am reading Kate Gilbert’s book as recommended and gaining more of an understanding and how cautious I must be re my recovery.
Since that appointment I have slept long and well. Such joy.
Watch this space for progress next week.