Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2022

GCA condition steroid effects or both?

I was diagnosed with GCA two months ago and tapered down to 17.5 mg steroids from 60 mg. I have had insomnia from the start which is improving as the steroid...

I was diagnosed with GCA two months ago and tapered down to 17.5 mg steroids fro...

Bluey-1

•2 years ago

6 Replies

Does anyone know if prednisone affects the results of PET scan to detect cancer as well as affecting results of PET scan to detect LVV

I was very interested to read the discussion about the effects of prednisone in making a PET scan ineffective in detecting LVV and PMR. Is this the same...

I was very interested to read the discussion about the effects of prednisone in ...

Kt1943

•2 years ago

14 Replies

methotrexate question

My last blood work has shown a slightly elevated blood work for the liver. The figure is 36u/l (35u/l being high normal) Thru the past 6 years my numbers...

My last blood work has shown a slightly elevated blood work for the liver. The ...

Linny3

•2 years ago

12 Replies

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Flare or not?

I have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad...

I have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6...

Esmeruth7

•2 years ago

6 Replies

is it GCA?

Been off the forum for a while lots of ups and downs, mobility severely limited due to PMR in legs. Over the last week I have had a flu like illness with...

Been off the forum for a while lots of ups and downs, mobility severely limited...

Bonsaigirl

•2 years ago

2 Replies

is it GCA?

Been off the forum for a while lots of ups and downs, mobility severely limited due to PMR in legs. Over the last week I have had a flu like illness with...

Been off the forum for a while lots of ups and downs, mobility severely limited...

Bonsaigirl

•2 years ago

5 Replies

Autoimmune disease (a/i) and risk for cardiovascular disease (CVD)

The other week someone posted about a study saying pred increases the risk of CVD. Here is one posted on LupusUK that related CVD and autoimmune disease. The...

The other week someone posted about a study saying pred increases the risk of CV...

PMRpro

Ambassador•2 years ago

18 Replies

covid related or PMR

I posted on here last week My GP doesn't think it's PMR and more likely to be post covid symptoms that mimic PMR. Have reduced pred to 12.5 from 15 for...

I posted on here last week My GP doesn't think it's PMR and more likely to be...

simps999

•2 years ago

13 Replies

OH - PMRRevisited Pred Management Query

I wish the man had writen down what GP told him rather than relying on memory! 20mg Pred dail for wo weeks then down to 15, thne 12.5 and then to taper off...

I wish the man had writen down what GP told him rather than relying on memory! ...

Nuff1

•2 years ago

6 Replies

Extreme weakness in arms...anyone else have this problem?

I do have arthritis in my shoulders and knees in addition to having PMR for 6years but gradually I am now experiencing extreme weakness in my shoulders and...

I do have arthritis in my shoulders and knees in addition to having PMR for 6y...

Pris80

•2 years ago

16 Replies

OH PMR Re-visited

OH was diagnosed PMR and GCA in June 2018 - To GP one day with symptoms; she took bloods and next day he was sent to the Rapid Asessment Unit (so-called)...

OH was diagnosed PMR and GCA in June 2018 - To GP one day with symptoms; she too...

Nuff1

•2 years ago

3 Replies

Moving to Wales! Recommendations of Rheumatologists/ Spinal surgeons appreciated.

Good morning all. I am relocating to Wales tomorrow after more than 40 years in NW London. Can anyone recommend a rheumatologist and a spinal surgeon...

Good morning all. I am relocating to Wales tomorrow after more than 40 years i...

AliDeJ

•2 years ago

15 Replies

I have PMR and blood pressure just plummeted for no reason. Ideas???

I live in Australia. I started with PMR in late August 2021. It was hit with 50mg of Pred and that stopped the excruciating pain it's tracks. Then the hard...

I live in Australia. I started with PMR in late August 2021. It was hit with 50m...

Hidden

•2 years ago

8 Replies

Swimming!

Hi - I had a wonderful afternoon on the beach dipping in and out of warm sea water (first time for 20 years or so!!). Now I’m wondering about joining a Leisure...

Hi - I had a wonderful afternoon on the beach dipping in and out of warm sea wat...

Thelmarina

•2 years ago

15 Replies

Not Getting daily Summaries

I don’t know why, but I’m not receiving the daily notifications of questions asked in this group now. Can someone help me figure out why? Thanks.

I don’t know why, but I’m not receiving the daily notifications of questions ask...

Daylily2000

•2 years ago

4 Replies

fingers and forearms

No one seems to talk about numb thumbs,and prickllytnumbs, I drop a lot of things, and on bad days I feel like my index finger is numb also.i am currently...

No one seems to talk about numb thumbs,and prickllytnumbs, I drop a lot of th...

Poodleshrimp

•2 years ago

4 Replies

PMR and pain areas -nor sure if hip pain or PMR relapse

I have had pain in my groin area and along the side of my pelvis in the past 10 days. I thought it might be from arthritis getting worse and should get an...

I have had pain in my groin area and along the side of my pelvis in the past 10 ...

HeartMe

•2 years ago

12 Replies

Should I contiue with latest drop when feeling dreadful fatigue etc most days?

From previous posts you will know that I started knock out fatigue in May after some stress.I was on 6.5mg pred. Slow tapering plan and understanding more...

From previous posts you will know that I started knock out fatigue in May after...

Ebiker

•2 years ago

26 Replies

Jaw Claudication Question

Hi all, I'm into my 3rd week of high PRED usage (60 mg for 2 weeks, now on 50 mg for another 2 weeks) for GCA as confirmed by temporal biopsy. Looking back...

Hi all, I'm into my 3rd week of high PRED usage (60 mg for 2 weeks, now on 50 m...

montebello

•2 years ago

49 Replies

A useful link about Methotrexate

I hope this works: https://creakyjoints.org.au/patientpreprheum/ You need to scroll down to get the podcast. The transcript is available if you press the...

I hope this works: https://creakyjoints.org.au/patientpreprheum/ You need to ...

SheffieldJane

•2 years ago

33 Replies

Tapering advice please

Can someone please direct me to the link where I can find the dosage reduction advice? Thanks.

Can someone please direct me to the link where I can find the dosage reduction a...

Fedslady

•2 years ago

1 Reply

Results dilemma

This morning an envelope came with my latest results from my rheumy appointment; blood tests. I am worried that my liver results will be bad because I have...

This morning an envelope came with my latest results from my rheumy appointment;...

Broseley

•2 years ago

37 Replies

BEST TIME TO TAKE PRED

first month taking Pred 12 x5 mg a day just wondering is there a best time to take them,should it be mornings, evenings or very late at night? Any advice...

first month taking Pred 12 x5 mg a day just wondering is there a best time to t...

WHL67

•2 years ago

27 Replies

Rare as hens teeth

I had a phone call from my Doctor’s surgery asking would I make an appointment to have a face to face appointment with her about my PMR. After scraping...

I had a phone call from my Doctor’s surgery asking would I make an appointment t...

Dorsetgirl17

•2 years ago

31 Replies

Incorrect diagnosis???

I’m a bit stunned tbh. Yesterday I had my first ever meeting with a rheumatology consultant, having been diagnosed with GCA in June 2021. She told me that my...

I’m a bit stunned tbh. Yesterday I had my first ever meeting with a rheumatology...

Octi

•2 years ago

38 Replies

feedback

Well my friends, my Rheumy appointment went well. I managed to avoid seeing the dragon consultant and got a kinder one. He agreed a slow taper to zero. Hooray....

Well my friends, my Rheumy appointment went well. I managed to avoid seeing the ...

Alazarin

•2 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2022

GCA condition steroid effects or both?

Does anyone know if prednisone affects the results of PET scan to detect cancer as well as affecting results of PET scan to detect LVV

methotrexate question

Flare or not?

is it GCA?

is it GCA?

Autoimmune disease (a/i) and risk for cardiovascular disease (CVD)

covid related or PMR

OH - PMRRevisited Pred Management Query

Extreme weakness in arms...anyone else have this problem?

OH PMR Re-visited

Moving to Wales! Recommendations of Rheumatologists/ Spinal surgeons appreciated.

I have PMR and blood pressure just plummeted for no reason. Ideas???

Swimming!

Not Getting daily Summaries

fingers and forearms

PMR and pain areas -nor sure if hip pain or PMR relapse

Should I contiue with latest drop when feeling dreadful fatigue etc most days?

Jaw Claudication Question

A useful link about Methotrexate

Tapering advice please

Results dilemma

BEST TIME TO TAKE PRED

Rare as hens teeth

Incorrect diagnosis???

feedback

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2022

GCA condition steroid effects or both?

Does anyone know if prednisone affects the results of PET scan to detect cancer as well as affecting results of PET scan to detect LVV

methotrexate question

﻿Flare or not?

is it GCA?

is it GCA?

Autoimmune disease (a/i) and risk for cardiovascular disease (CVD)

﻿covid related or PMR

OH - PMRRevisited Pred Management Query

﻿Extreme weakness in arms...anyone else have this problem?

OH PMR Re-visited

Moving to Wales! Recommendations of Rheumatologists/ Spinal surgeons appreciated.

I have PMR and blood pressure just plummeted for no reason. Ideas???

Swimming!

Not Getting daily Summaries

﻿fingers and forearms

PMR and pain areas -nor sure if hip pain or PMR relapse

﻿Should I contiue with latest drop when feeling dreadful fatigue etc most days?

Jaw Claudication Question

A useful link about Methotrexate

Tapering advice please

Results dilemma

﻿BEST TIME TO TAKE PRED

Rare as hens teeth

Incorrect diagnosis???

feedback

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Flare or not?

covid related or PMR

Extreme weakness in arms...anyone else have this problem?

fingers and forearms

Should I contiue with latest drop when feeling dreadful fatigue etc most days?

BEST TIME TO TAKE PRED