PMR and pain areas -nor sure if hip pain or PMR relapse

[HeartMe]

I have had pain in my groin area and along the side of my pelvis in the past 10 days. I thought it might be from arthritis getting worse and should get an x-ray to see if it is. However, now my thigh, buttocks and L3 - S1 hurts big time within the last few days I can’t even sit on the can without extreme pain. I am going to call my rheumatologist today, but was donering if others have this pain pattern including the groin. Last time I had these issues I had pain on both sides of my body. This past yea I have been tapering off Prednisone for a major lung disorder. I was hoping to be weaned off by next month and have hesitated going back to the Rheumatologist doctor, since my treatment for PMR was Prednisone. Just FYI—I take Mycophenolate and Ofev, which are heavy duty meds already with possible serious side effects. Thanks.

[PMRpro Ambassador]

Those are symptoms seen in greater trochanteric pain syndrome - used to be called trochanteric bursitis but the syndrome includes the piriformis effects too - the buttock and low back pain.

nhsaaa.net/allied-health-pr...

[HeartMe in reply to PMRpro]

I thought this is what I had before my PMR diagnosis the first time. I did all types of steroid injections including the trochanter area, which had no effect. Prednisone helped in one day and by day two I was not in pain anymore.

[PMRpro Ambassador in reply to HeartMe]

It can be part of PMR - myofascial pain syndrome (MPS) is thought by some to be the underlying pathology mechanism in PMR but it can exist in its own right as well when it may appear only on one side. In PMR it tends to be more evenly distributed. For me, a PMR flare almost always starts with an MPS episode like you describe, I had one in March - even ended up in the ED because I simply couldn't move! They weren't much help, my rheumy was though - luckily I had an appointment with him later that day. He uses high dose NSAID infusions and neural therapy - very effective! Been struggling with it all summer but it is improving now - had other problems adding to it which made walking difficult.

[nuigini in reply to PMRpro]

This is great info. Presently have mild pain in left hip only and only when getting into bed at night. The exercises may help to nail it in the bud. Many thanks.

[York54 in reply to PMRpro]

Thankyou for the link, my rheumy thinks this is what I have and has referred me to the physios. Could be a long wait so will try the exercises in the article👍👍👍

[PMRpro Ambassador in reply to York54]

It's actually been a long wait - I was referred to rehab back in March and the shortage of doctors and the summer has delayed everything - the rehab doctor who has to approve everything fixated on the bursitis which he likes to treat with his lithotripsy machine - brilliant and normal would be 2 session 2 weeks apart and a third 3 or 4 weeks later. I had to wait 2 months to see the doc and another nearly 2 months for the first 2 sessions and a further 2 months for the third which I had yesterday. HOWEVER - he asked about the rest so I said the back problem - what i was referred to originally - is a bit better but still a probem, aching rather than sharp scream out loud pain. So I FINALLY have the physio referral - and the secretary rang to offer a first appointment on Tuesday. So once the switch was flicked - very quick response. Not the original physio but I haven't seen her for about 5 years so it probably doesn't matter - the best one left to go to another hospital. She was really good.

[York54 in reply to PMRpro]

Good luck☘️, I know you have said this is an ongoing problem for you. My physio before for arms, fingers and hands was being told what to try and then leaving me to get on with it! Only started with this after Pred stopped ☹️. Last night was particularly bad , had to get up and find a pillow to put between my knees! Couldn’t sleep but enjoyed listening to some of the Frost tapes on BBC sounds .

[KASHMIRI1 in reply to York54]

I was lucky enough to see a physio and the exercises in the link are the exact ones the physio gave me. I found the standing on one leg made my pain issues worse.

[KASHMIRI1 in reply to PMRpro]

Thank you for that link l have been diagnosed with this recently.

[HeartMe]

Thanks for your info. This time the pain is much worse, What is MPS? I can’t take or even use NSAIDs due to GI bleed. I know I need to see the doc. Hope you feel better soon.

[PMRpro Ambassador in reply to HeartMe]

mayoclinic.org/diseases-con....

[PMRpro Ambassador in reply to PMRpro]

And

my.clevelandclinic.org/heal...