feedback

[Alazarin]

Well my friends, my Rheumy appointment went well. I managed to avoid seeing the dragon consultant and got a kinder one. He agreed a slow taper to zero. Hooray. Also agreed to physio.

Interestingly he re assured me that once gone it was unlikely to recur. Not sure about that one, but I plod on. Day at a time.

[SheffieldJane]

Wow! Fingers crossed for. You!

[PMRpro Ambassador]

"he re assured me that once gone it was unlikely to recur"

Is that PMR or GCA? Wonder what he calls unlikely? I only know a few GCA patients where it relapsed but I know more PMR patients. The propensity to relapses remains life-long - so that comment has to rank alongside "it'll be gone in 2 years ..."

[Alazarin in reply to PMRpro]

They were my thoughts exactly Pro

[piglette]

I think a lot of people with PMR when it reoccurs is when they get to zero and are over enthusiastic to stop the steroids when the PMR is still lurking.

[Suffererc in reply to piglette]

That’s me when I got to 2/1.5. Told myself it was gone. 😂🤣now back to 2.5/2 taper. Will I ever learn 😜

[cycli]

How is it going now? do hope you are still ok. It is always good to hear positive news.

[Alazarin in reply to cycli]

I’m doing well. The night and day sweats are largely gone, so much better sleep. Far less grumpy😀