Hello,
A couple of things, for some reason I stopped receiving the HU notifications?
Hopefully by posting this question it puts me back in the swing of things. 5 days ago I tapered down from 6mm Pred to 5mm Pred. The stiffness in hips and shoulders returned immediately. I'm persevering , but my question is how long should I continue with the 5mm, or how long do the increased symptoms last during the taper? I am always surprised at the difference 1mm makes.
Thank You
If pain appears immediately it could be steroid withdrawal. It normally lasts a couple of days or so. PMR reaction usually takes a little longer, if you still have pain it is possible you have reduced too low. A 1mg reduction is quite high. It is 20%. I normally reduce by 0.5mg at that level.
Immediate pain suggests steroid withdrawal but it should then improve over the following couple of weeks as your body gets used to the new dose. Is it at least the same? Or worsening?
Did you just go from every day 6 to every day 5mg? Or did you use one of the slowed tapers? That is about a 17% dose change - 10% is the maximum recommended step down so 1.2mg at a time would be better too.
Look at your profile page and look at your setting and see what you have selected and saved. If that doesn't help - contact HU Support and ask for their help.
I went straight from 6mm to 5mm. I will try with the 1/2 mm see how that goes. It's pretty much the same, perhaps an increase in shoulder pain.
Most of us find that under 10mg, we need 1/2mg drops and must follow a slower plan. Like the dead slow or every other day, etc. 1mg all at once is going to be hard.
Re notifications -
Quick check list - before you contact HU or post on forum
a. Check your email notifications by tapping avatar (top right of screen). There you have a choice of what email notifications you receive - you don’t have to agree to any or all - see picture below.
b. Check your spam/junk folder
c. Try logging out of HU and in again
d. Try logging out of your email and logging back in.
e. Has your devise IOS been recently updated? If so check all of above
f. HU may have updated something..which you/we may not be aware of, so check a,b,c. &d
g. Contact HU.. help centre - see banner at bottom of screen
h. Don’t panic! Shouting at device may relieve your tension, but it does little else.🤔
How long before Pred to work
Below 7 mg pred, how long should I persevere with a taper once bilateral pain arises?
