Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,598 members • 38,707 posts

All posts for April 2022

Osteoporosis

Good morning, I’ve now received a diagnosis of osteoporosis in my hips and spine following a DEXA scan 6 weeks ago. I have GCA diagnosed in April 2021 and have...

Good morning, I’ve now received a diagnosis of osteoporosis in my hips and spine...

Avon14

•2 years ago

23 Replies

Long distance travel with Actemra?

Apologies if this seems lightweight, in view of the serious stresses others on this forum are suffering, but does anyone have recent info on travelling with...

Apologies if this seems lightweight, in view of the serious stresses others on t...

Happyexplorer

•2 years ago

10 Replies

Relapse after having Covid

I have been in remission for about 6 months (off Prednisone since October) after having PMT for about 6.5 years. Apart from a bit of stiffness now and then I...

I have been in remission for about 6 months (off Prednisone since October) after...

Ptolemy66

•2 years ago

19 Replies

Want to take advantage of all our features? Just log in!

I’d never heard of PMR !

Thanks for letting me onto the site. I’m newly diagnosed and feel like I’ve been hit by a train. Really looking forward to reading posts which will help me...

Thanks for letting me onto the site. I’m newly diagnosed and feel like I’ve been...

Mandyq

•2 years ago

22 Replies

Well, here is a thought: Could a weekly dose of the steroid prednisone combat obesity?

Here's some food for thought ;)...

PMRpro

Ambassador•2 years ago

20 Replies

Weary, PMR Diagnosis

Hi Everyone, I am here because my husband was diagnosed with PMR about 2 weeks ago. His pain started in his shoulder and gradually went full body over the...

Hi Everyone, I am here because my husband was diagnosed with PMR about 2 weeks ...

Popsca

•2 years ago

13 Replies

Why have Pred in the early hours of the morning?

I saw my Rheumatologist today, a new one as my regular one is ill, and she said to stop taking my Pred in the early hours of the morning and have it at...

I saw my Rheumatologist today, a new one as my regular one is ill, and she said ...

crafty_grannie

•2 years ago

31 Replies

Solo international travel after 2 years shielding/4 yrs pmr/tapering preds now 17/recent covid

Next week I travel from London to Toronto to stay with my 91 year old dad who has dementia. His partner of 70yrs my mum died this time last year at 91 years....

Next week I travel from London to Toronto to stay with my 91 year old dad who ha...

writered

•2 years ago

52 Replies

Quandary!!!

Good morning all 😀. I was diagnosed with PMR April 2021 15mg. Successfully tapered to 5mg and I’m now down to 4.5mg. I’ve been on 4.5mg for almost four...

Good morning all 😀. I was diagnosed with PMR April 2021 15mg. Successfully ta...

Pangolin43

•2 years ago

57 Replies

Jardiance causing flares?

I’ve had pmr since 2014; maintaining with 5 mg prednisone. I usually have one or two flares each year. Since starting Jardiance I have had 3 flares in 2...

I’ve had pmr since 2014; maintaining with 5 mg prednisone. I usually have one or...

rlstonejr

•2 years ago

10 Replies

Flare up

My first flare since being diagnosed six months ago, I was doing ok on 5 mg, then flare, been on 7.5 for two weeks now, no change really, should I keep going...

My first flare since being diagnosed six months ago, I was doing ok on 5 mg, th...

Carathedog

•2 years ago

9 Replies

ITCHING THAT IS BELOW THE SKIN!

I finally got frustrated by this insistent itch behind and just below my left knee and looked it up. At first I thought it must be a DVT and had myself...

I finally got frustrated by this insistent itch behind and just below my left kn...

LIVEORDIEHEREIAM

•2 years ago

4 Replies

Fall & sick day rules

On Saturday I had a major fall faceplanting the floor after tripping over a pipe and unable to brace myself. Obviously I am battered and bruised but this...

On Saturday I had a major fall faceplanting the floor after tripping over a pipe...

Pawscat11

•2 years ago

5 Replies

Do as Rhuemy and Dr say re reducing pred ?

PMR for nearly 4 yrs down from about 40 pred to 5. I'm in a lot of pain. Both Rheumy and Dr say I should now come off pred at one mg per month !! The Dr...

PMR for nearly 4 yrs down from about 40 pred to 5. I'm in a lot of pain. Both Rh...

Quinacridone

•2 years ago

63 Replies

Cataract removed

I had Cataract removed yesterday, was very anxious but everyone was very nice i now got to put drops in for 4 weeks so not sure what to expect i been told...

I had Cataract removed yesterday, was very anxious but everyone was very nice ...

Annamay17

•2 years ago

12 Replies

Is earache part of GCA

I have had PMR &GCA for 5 years, starting on 60mg of pred reducing to a fortnight ago to 4mg with up and down in those 5 years. I have developed a very slight...

I have had PMR &GCA for 5 years, starting on 60mg of pred reducing to a fortnigh...

Jassarwal

•2 years ago

6 Replies

Do I really need to stop prednisolone before surgery?

I have been informed that I need to stop prednisolone 1 month prior to surgery. I am having a colon resection due to recurrent diverticulitis. When I read the...

I have been informed that I need to stop prednisolone 1 month prior to surgery. ...

krillemy

•2 years ago

12 Replies

Synacthen test tomorrow

Hi all I'm booked in for a short synacthen test tomorrow after my 9am cortisol came back as low enough to need to test further. Currently on 5.5mg/5mg...

Hi all I'm booked in for a short synacthen test tomorrow after my 9am cortisol c...

Coffeebeans

•2 years ago

22 Replies

5th Covid vaccine

I know this topic has been covered recently but I’m still confused about the 5th Covid vaccine. I’ve just rang 119 and spoken to a guy who has said they are...

I know this topic has been covered recently but I’m still confused about the 5th...

Tiggy70

•2 years ago

32 Replies

Update on my post titled Fall (a month ago)

Hi dear friends, Six weeks have passed since I had my fall. The mattress and cushion, to relieve pressure sores was really a godsend, although I still needed...

Hi dear friends, Six weeks have passed since I had my fall. The mattress and cus...

Tinasleepyhead

•2 years ago

24 Replies

Increase or stay on pred

I'm just about managing on my current dose of 9.5mg of Prednisolone after tapering down to 8.5mg, going back up to 13.5 due to pmr pains, down slowly to 9mg...

I'm just about managing on my current dose of 9.5mg of Prednisolone after taperi...

choirsinger1986

•2 years ago

21 Replies

Actrema (tocilizumab) and bladder infection

Hi everyone, I had my first infusion of Actrema this week. The infusion went fine but several hours later I started to get symptoms of a urinary tract...

Hi everyone, I had my first infusion of Actrema this week. The infusion went fin...

Charkha

•2 years ago

10 Replies

Finally a treatment plan I can agree with

I wrote here in this group a couple of months ago while in the middle of a PMR flair after tapering off Prednisolone to zero. I couldn't get Rheumatology to...

I wrote here in this group a couple of months ago while in the middle of a PMR f...

Travs

•2 years ago

6 Replies

Long term PMR

I was diagnosed 5 years ago with PMR at age of 47, was fit and healthy and regular gym goer. I just woke up one morning unable to move with incredible upper...

I was diagnosed 5 years ago with PMR at age of 47, was fit and healthy and regul...

Bellabrun

•2 years ago

15 Replies

Possible GCA.

I had cataracts surgery March 15 the left eye, March 29th right eye. Within a few days of the second surgery my headaches started. Never prone to any...

I had cataracts surgery March 15 the left eye, March 29th right eye. Within a f...

pomeranion

•2 years ago

10 Replies

GCA and steroid reduction

Hello, this I my first post but I have been following since July last year, thank you to everyone for your helpful comments. I was diagnosed with GCA in July...

Hello, this I my first post but I have been following since July last year, than...

Hidden

•2 years ago

40 Replies

UPDATE to is it a flare?

This morning I finally had a first appointment with a rheumatologist after 6 months. Still in awful pain in my left hip which I’ve had all this week. However...

This morning I finally had a first appointment with a rheumatologist after 6 mon...

Jayveedee

•2 years ago

15 Replies

Rheumatologists idealistic tapers

Thank you for all the advice I support I receive from fellow PMR and GCA people. From the links on the site and especially the stories/advice you all have to...

Thank you for all the advice I support I receive from fellow PMR and GCA people....

Susan1705

•2 years ago

13 Replies

Possible GCA Headaches

Hello. Apologies for the very long post. I was diagnosed with PMR just over 2 yrs ago. Based in NW England. So far, it has been a bit of a bumpy ride with...

Hello. Apologies for the very long post. I was diagnosed with PMR just over 2 y...

Burroughs123

•2 years ago

37 Replies

BB on the road

Ok lets get the tabs out of the way, Stilton 40mg Pred, also statins and blood thinners, done. Been noticing recently ( by the way I have flat foot ) which is...

Ok lets get the tabs out of the way, Stilton 40mg Pred, also statins and blood t...

Burnley1959

•2 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Osteoporosis

Long distance travel with Actemra?

Relapse after having Covid

I’d never heard of PMR !

Well, here is a thought: Could a weekly dose of the steroid prednisone combat obesity?

Weary, PMR Diagnosis

Why have Pred in the early hours of the morning?

Solo international travel after 2 years shielding/4 yrs pmr/tapering preds now 17/recent covid

Quandary!!!

Jardiance causing flares?

Flare up

ITCHING THAT IS BELOW THE SKIN!

Fall & sick day rules

Do as Rhuemy and Dr say re reducing pred ?

Cataract removed

Is earache part of GCA

Do I really need to stop prednisolone before surgery?

Synacthen test tomorrow

5th Covid vaccine

Update on my post titled Fall (a month ago)

Increase or stay on pred

Actrema (tocilizumab) and bladder infection

Finally a treatment plan I can agree with

Long term PMR

Possible GCA.

GCA and steroid reduction

UPDATE to is it a flare?

Rheumatologists idealistic tapers

Possible GCA Headaches

BB on the road

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