Finally a treatment plan I can agree with

[Travs]

I wrote here in this group a couple of months ago while in the middle of a PMR flair after tapering off Prednisolone to zero. I couldn't get Rheumatology to allow me to go back on Pred without first having a face to face appointment. I waited a month for the letter a further month for the appointment date and then 2 days before I was called to cancel as the Rheumy was off sick. At this point I went against my usual accepting demeanour and kicked up a bit, That worked they got me in within a week.

Then I had to prove it was PMR and not a frozen shoulder even though I was complaining about my legs and hips. I have a feeling my appointment was more about training the junior Dr how to do a shoulder scan than helping me but hey ho.

Finally Im to change to sub cut Methotrexate and go back on to Pred at 7.5 reducing to 4 or 5 but likely to be on steroids long term.

I'm happy with that just a shame I have had to suffer for months with pain and immobility when I knew all along.

The moral of the story is to stand up for yourself they may have done all the study and passed exams but there is no substitute for lived experience.

Finally Im taking control of my disease and not rolling over to the whim of the latest rheumatology trend.

[piglette]

I know doctors do tend to take the attitude that if people don’t come back and complain after the first time everything is fine and they can forget about them. Unfortunately it does pay to make a fuss within reason.

[PMRpro Ambassador]

I agree with piglette - and pleased you having a minor strop got results! I suspect that the main reason rheumies have this idea PMR is self-limiting is because patients give up the unequal fight and go off the radar. Good GPs do realise it lasts longer. Bad GPs are probably worse than a bad rheumy ...

[SheffieldJane]

How utterly frustrating. “ Go back to go, do not collect £200”. It is not inevitable that you won’t get down again. Wishing you lots of luck.

[bonmaine]

TY for yr input. Im about to see my 3rd rheumy. Wonder why the relationships don't seem to flow smoothly. I was misdiagnosed with RA vs PMR. Trying to get them to treat it is a constant battle. This site helps to validate the frustration.

[PMRCanada]

Good for you! Hope the new treatment plan works for you.

[Rachmaninov2]

I am taking 7mg Pred and 7.5 mg Methotrexate Tablets (changing to sub cut next week).

I’m wondering if that combination worked for you and how you are doing now. Thanks.

I realise this was posted 9 months ago.