Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,622 members • 38,765 posts

All posts for April 2022

Tramadol

I have started using Tramadol instead of Cocodamol. I’ve been on it for five days but I am exhausted- very tired, dizzy. How long should I continue before...

I have started using Tramadol instead of Cocodamol. I’ve been on it for five d...

Constance13

•2 years ago

27 Replies

melatonin

Does melatonin help RLS or cause augmentation?

Camry2020

•2 years ago

1 Reply

Dermatitis

Haven’t posted anything for a long time but am a daily consumer of your wise words. My question is whether reducing prednisolone can result in triggering...

Haven’t posted anything for a long time but am a daily consumer of your wise wor...

Watercolorist

•2 years ago

22 Replies

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My GCA Story

Hi everyone. Last June I became a member of the GCA club, though not by choice. I wanted to share my story in case others experience somethig similar. It...

Hi everyone. Last June I became a member of the GCA club, though not by choice....

Preacherball

•2 years ago

12 Replies

Tocilizumab

I may be going on tocilizumab for GCA. The GCA is symptonless but found on scan I am very scared of losing vision but am also scared of sideaffects of...

I may be going on tocilizumab for GCA. The GCA is symptonless but found on scan ...

WaltzG

•2 years ago

53 Replies

09:00am fasting Cortisol = 414nmol/L

Happy Easter everyone and hope you are having a lovely weekend. The sun is shining here (UK) this morning and so that always helps. In my previous posts - I...

Happy Easter everyone and hope you are having a lovely weekend. The sun is shini...

Slosh

•2 years ago

4 Replies

Can tapering exacerbate fatigue?

Hi there . Firstly I have found this site so useful ,thank you all. My question. I was Diagnosed with PMR in December and started on 15mg of predisolone . It...

Hi there . Firstly I have found this site so useful ,thank you all. My question....

Marek1

•2 years ago

12 Replies

2mg to 1mg

Hi, I have tapered down over approx 14months from 25mg of prednisolone to 2mg without any big problems or flares. However, I have tried a couple of times now...

Hi, I have tapered down over approx 14months from 25mg of prednisolone to 2mg wi...

DaveyJohn

•2 years ago

13 Replies

GCA flare with Covid

Hi everyone, I have been on 7.5mg prednisone since beginning of Mar. down from 60 mg last Apr. (onset of GCA). My rheumy in Canada, had me taper from 10mg to...

Hi everyone, I have been on 7.5mg prednisone since beginning of Mar. down from 6...

Shanghi

•2 years ago

7 Replies

Interleukin 13 serum Is high 10 pg/ml

My wife who is suffering from gca from last 9 months and is present on 10 mg prednisone . A special inflammation blood test was perform and in report only...

My wife who is suffering from gca from last 9 months and is present on 10 mg pre...

Rajuguide

•2 years ago

4 Replies

Positive thoughts and Easter Sunshine

Morning everyone. 🌄 The sun is shining and just wanted to say a big thank you to all who take the time to boost the confidence of fellow warriors on this...

Morning everyone. 🌄 The sun is shining and just wanted to say a big thank you t...

Temoral

•2 years ago

2 Replies

Very Disappointed. letter from my controlling Doctor

Dear Mr Barber, I have received a letter from rheuamtology who says that we can manage your symptoms in general practice and they do not routinely need to see...

Dear Mr Barber, I have received a letter from rheuamtology who says that we can...

Ronzy

•2 years ago

31 Replies

Headache in temples

I was diagnosed with GCA in 2018 but I never had the headache in my temples as a symptom. For the last 2 months I have had sharp pain in both temples and then...

I was diagnosed with GCA in 2018 but I never had the headache in my temples as a...

luv2read

•2 years ago

12 Replies

Increased food allergies due to lazy adrenal glands?

Hi Has anybody else experienced a sudden increased allergy to foods you’ve eaten/ drunk all your life and are wondering why? I’m wondering if my very lazy,...

Hi Has anybody else experienced a sudden increased allergy to foods you’ve eaten...

wendyanne49

•2 years ago

10 Replies

PEMF therapy

Hello, has anyone tried PEMF therapy and did it help PMR? Just discovered that there is a wellness hub nearby that does it and wondered if it may help the...

Hello, has anyone tried PEMF therapy and did it help PMR? Just discovered that ...

Sufferinginsilence

•2 years ago

21 Replies

Information

Hi all I'm an old member, Haven't posted for along while, I'm trying anew drug Axathioprine I've been taking it for six weeks has anyone else tried...

Hi all I'm an old member, Haven't posted for along while, I'm trying an...

Sailormo

•2 years ago

9 Replies

At Zero!......

Not daring to post as state of zero pted could indeed be a false dawn! Who knows? PMR symptoms started in 2017. Diagnosed October the same year. By autumn...

Not daring to post as state of zero pted could indeed be a false dawn! Who knows...

MamaBeagle

•2 years ago

16 Replies

Should the pain return after the first taper?

Hi everyone - my first post as only "diagnosed" with PMR 3/4 weeks ago as a process of elimination. I was on 15mg and now have decreased to 12.5mg and after...

Hi everyone - my first post as only "diagnosed" with PMR 3/4 weeks ago as a pro...

LozzaSandstrom

•2 years ago

22 Replies

DEXA scan

Sorry It seems to be all questions from me atm. I had my DEXA scan yester day and the T readings have gone from spine -0.9 to spine -1.8 femur -0.8 to -1.2...

Sorry It seems to be all questions from me atm. I had my DEXA scan yester day an...

Pawscat11

•2 years ago

4 Replies

Curveball: Actemra and Fosamax!

I got a second opinion on my PMR situation and the new doc immediately wanted to put me on Actemra and Fosamax. I didn't agree to do it yet, so I could query...

I got a second opinion on my PMR situation and the new doc immediately wanted to...

Greytree

•2 years ago

72 Replies

Why am I so tired?

PMR and GCA for four years. Now taking 3 mgs of prednisolone. About 7pm I feel so very weary and exhausted. The only consolation is it’s nearly bedtime. If...

PMR and GCA for four years. Now taking 3 mgs of prednisolone. About 7pm I feel s...

Reddev

•2 years ago

17 Replies

Increasing Pred dosage during a flare

I hope I have understood the advice for increasing Pred dosage during a flare. As I understand it you go up to 5mg over the dosage you last felt comfortable on...

I hope I have understood the advice for increasing Pred dosage during a flare. A...

Jomaur

•2 years ago

11 Replies

Possible flare

After writing my post three days go and feeling so good about myself. This is what happened next. I started experiencing pain in my shoulder blade on the left...

After writing my post three days go and feeling so good about myself. This is w...

Tinasleepyhead

•2 years ago

5 Replies

A worrying few days!

Last Thursday I had a very bad headache - only occasionally get these and they only last a day. But this time it was still there on Friday Morning and it was...

Last Thursday I had a very bad headache - only occasionally get these and they o...

Janann25

•2 years ago

5 Replies

Surgery and prednisone

I am starting to get very nervous about my carpel tunnel/ trigger finger surgery in May 4th. My concern is that my neck and shoulder pain came back and I could...

I am starting to get very nervous about my carpel tunnel/ trigger finger surgery...

Plains

•2 years ago

28 Replies

Same old same old

Well here I am again still stuck in fatigued and stiff sore body trying to just drag myself on. It been 3 mths since my synatchen test that was normal. So...

Well here I am again still stuck in fatigued and stiff sore body trying to just...

Avadip12

•2 years ago

3 Replies

High fever & PMR

Hi, I was diagnosed in August 2020 after a bad bout of covid. Dr diagnosed me through bloods & put me on 15 mg for first 6 months then started tapering, was...

Hi, I was diagnosed in August 2020 after a bad bout of covid. Dr diagnosed me th...

Lowercwmtwrch

•2 years ago

4 Replies

Split doses

Hi. What is your opinion on splitting your dose, I’m currently on 10 following a flare, but I’m not an early riser, and wondered if splitting would be a...

Hi. What is your opinion on splitting your dose, I’m currently on 10 following a...

Carathedog

•2 years ago

5 Replies

Long term joint damage

Hi, any thoughts on whether if you decide to have pred as low as you can tolerate and put up with a certain level of pain whether there is long term damage to...

Hi, any thoughts on whether if you decide to have pred as low as you can tolerat...

Towdy

•2 years ago

13 Replies

Unexplained Leg and Thigh Pain

Morning all, not sure that this anything to do with the forum and I wasn't going to mention it until my long chat with the doctor yesterday morning. Since...

Morning all, not sure that this anything to do with the forum and I wasn't going...

Bcol

•2 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Tramadol

melatonin

Dermatitis

My GCA Story

Tocilizumab

09:00am fasting Cortisol = 414nmol/L

Can tapering exacerbate fatigue?

2mg to 1mg

GCA flare with Covid

Interleukin 13 serum Is high 10 pg/ml

Positive thoughts and Easter Sunshine

Very Disappointed. letter from my controlling Doctor

Headache in temples

Increased food allergies due to lazy adrenal glands?

PEMF therapy

Information

At Zero!......

Should the pain return after the first taper?

DEXA scan

Curveball: Actemra and Fosamax!

Why am I so tired?

Increasing Pred dosage during a flare

Possible flare

A worrying few days!

Surgery and prednisone

Same old same old

High fever & PMR

Split doses

Long term joint damage

Unexplained Leg and Thigh Pain

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