Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,569 members • 38,625 posts

All posts for April 2022

Does no stiffness mean a misdiagnosis?

I was diagnosed with PMR September of 2020. Three blood tests were indicating inflamation. CRP, ESR and GFR (I think). None of the numbers were extremely...

I was diagnosed with PMR September of 2020. Three blood tests were indicating ...

orangemax

•2 years ago

52 Replies

Stuffed but working on it.

I do find this alternative website very difficult t use but...a gem perhaps? I am on the no1 and no2 best treatments- by any other name. Polymyalgia Rheumatica...

I do find this alternative website very difficult t use but...a gem perhaps? I a...

ignatz

•2 years ago

22 Replies

Finally saw a rheumatologist

I've been experiencing PMR for about 10 months now and finally saw a Rheumatologist for the first time yesterday! That about sums up the state of the of the...

I've been experiencing PMR for about 10 months now and finally saw a Rheumatolog...

1957tuibird

•2 years ago

19 Replies

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The top of my hands and feet are swollen - PMR?

I am joining this forum again as I may after all have PMR. I am seeing a Reumatologist tomorrow. He has to evaluate my work capacity for my insuerace company....

I am joining this forum again as I may after all have PMR. I am seeing a Reumato...

krillemy

•2 years ago

10 Replies

Rheumatologist

I went to see a Rheumatologist on Monday. I was quite apprehensive, having read so many bad reports on this forum. But he was a very nice young man, very...

I went to see a Rheumatologist on Monday. I was quite apprehensive, having read...

ChrisinNam

•2 years ago

27 Replies

lymphatic drainage

anyone all of a sudden have clear fluid come out of your lower leg when it is swollen??

anyone all of a sudden have clear fluid come out of your lower leg when it is sw...

calicojoy41

•2 years ago

5 Replies

Oh no is this a flare up ???

Hi, I was diagnosed in August 2020 after having a bad time with covid! I started on 15 mg for the first year & started tapering down the year after 2mg by...

Hi, I was diagnosed in August 2020 after having a bad time with covid! I started...

Lowercwmtwrch

•2 years ago

10 Replies

5th Covid jab???

Just received a message from NHS Vaccine, "our records show you are eligible for a Covid 19 booster vaccination but have not yet had one, blah blah blah! So,...

Just received a message from NHS Vaccine, "our records show you are eligible for...

JanboC

•2 years ago

23 Replies

Adverse effects from taking prednisilone and anticholinergic drugs?

Hallo wonderful people, I recently had an episode of transient global amnesia, which with hindsight was embarrassing since I was giving a talk at the time!...

Hallo wonderful people, I recently had an episode of transient global amnesia, ...

humlies

•2 years ago

11 Replies

Question regarding dexamethasone eye drops

Hi everyone, Hope you are all well, or as much as you can be. I wonder if someone can help me, I’ve just had cataract surgery last Thursday, all is well but...

Hi everyone, Hope you are all well, or as much as you can be. I wonder if some...

2013mayo

•2 years ago

9 Replies

The pain has moved?

Now 4 yrs into PMR with prednisolone at 7mg daily, about 4 months ago I started to get pain/ache in my upper pec muscles and now suffer if I lift a heavy...

Now 4 yrs into PMR with prednisolone at 7mg daily, about 4 months ago I started ...

HamishPMR

•2 years ago

5 Replies

Failing to reduce again

I am so fed up with this disease. Having failed to reduce last year I ended up back on 10mg by the end of the summer. GP tends to leave me to manage myself but...

I am so fed up with this disease. Having failed to reduce last year I ended up b...

DogAgilityObsessed

•2 years ago

11 Replies

Tabs interfering 🥺

Wondering, felt dreadful today Legs felt very week It was as if the pred had done nowt 🥺 Night before i took a tab I asked doctor for To help with...

Wondering, felt dreadful today Legs felt very week It was as if the pred had d...

Ronzy

•2 years ago

17 Replies

Is it a flare?

Diagnosed last September and have been able to lead a fairly normal life since apart from stiffness and tiredness. Had got down to 11 mg tapering slowly until...

Diagnosed last September and have been able to lead a fairly normal life since a...

Jayveedee

•2 years ago

15 Replies

Cheap bum implants

I can't tell you how my PMR is at the moment because I fell downstairs 2 days ago. A lump the size of a melon came straight up and my hubby took a picture to...

I can't tell you how my PMR is at the moment because I fell downstairs 2 days ag...

MiloCollie

•2 years ago

12 Replies

Moon face

Has anyone gotten moon face on 5mg prednisone and steroid injections?

gpi4

•2 years ago

3 Replies

Need Shoulder Replacement Surgery

My shoulder is destroyed from osteo arthritis and is painful 24/7. My surgeon won’t operate until I am “low enough” on prednisone. How low is low enough? I...

My shoulder is destroyed from osteo arthritis and is painful 24/7. My surgeon wo...

Darkchocolate1

•2 years ago

11 Replies

PMR and Itching?

I've been diagnosed with PMR for 4 years now, taking Pred during every day, and just worked down to 6.0mg / day, taking it in the morning at breakfast time...

I've been diagnosed with PMR for 4 years now, taking Pred during every day, and ...

apttony

•2 years ago

35 Replies

Low Prednisolone dose and eyesight

My 96 year old mum has been on Prednisolone since 2014 for GCA after a lengthy stay in hospital she was discharged on just 1mg having been on 6mg on admission,...

My 96 year old mum has been on Prednisolone since 2014 for GCA after a lengthy s...

4sibbs

•2 years ago

14 Replies

Pain medications?

Is it difficult in the UK to obtain prescription pain medication? Here in the U.S. doctors send you to a Pain Management doctor upon which you are given a...

Is it difficult in the UK to obtain prescription pain medication? Here in the U...

patrickd

•2 years ago

8 Replies

Methotrexate info

I had a reaction to methotrexate I had trouble with flare ups the specialist put me in Micophenalate that suited me better I am now down to 4mg prednisalone...

I had a reaction to methotrexate I had trouble with flare ups the specialist put...

Touting

•2 years ago

1 Reply

Charity/

Each year a link for people to vote for their particular charity is posted and then those that want to vote for PMR GCA UK. It has has been successful in...

Each year a link for people to vote for their particular charity is posted and...

jinasc

•2 years ago

3 Replies

Attendance allowance for my husband

Thank you to everyone who has replied to me I will get on with it. Wish me luck and I'll let you know if I'm successful

Thank you to everyone who has replied to me I will get on with it. Wish me luck...

Jayjay27

•2 years ago

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Half my usual dose for PMR

Due to a mix up with me placing a repeat prescription and probably not being specific enough, I’ve ended up taking 4mg of Pred daily instead of 8mg, for the...

Due to a mix up with me placing a repeat prescription and probably not being spe...

braininjurythepits

•2 years ago

6 Replies

Alternative therapy, a follow-up

Years ago when I was early in my PMR journey I started going to a physiotherapist who offers low intensity light therapy. You can read a series of posts I...

Years ago when I was early in my PMR journey I started going to a physiotherapis...

HeronNS

•2 years ago

20 Replies

attendance allowance in UK

can anyone help me please it has been suggested that my husband applies for attendance allowance and I wondered if anyone had any success or...

can anyone help me please it has been suggested that my husband applies ...

Jayjay27

•2 years ago

18 Replies

Severe neck pain - PMR/GCA?

I’m sitting here in pain whenever I turn my head from side to side or down or lie down. Lying on my back also causes pain in the upper back above my...

I’m sitting here in pain whenever I turn my head from side to side or down o...

Mstiles

•2 years ago

28 Replies

Post Covid flare up and doctors!

Has anyone had Covid and been left with a big flare up of PMR pain? I had the antivirals which stopped me from getting worse and am now testing negative. But...

Has anyone had Covid and been left with a big flare up of PMR pain? I had the ...

SusyTe

•2 years ago

91 Replies

When is the best time to take pred, I’m on 7.5 mg

I’m not taking my pred until maybe 9.30 am, if I start taking it at say, 5am, do I have to eat something

I’m not taking my pred until maybe 9.30 am, if I start taking it at say, 5am, do...

Carathedog

•2 years ago

7 Replies

Exercise , PMR and Hip replacement

At last I've had a second opinion on my hip pain and the surgeon immediately agreed the op was necessary. The first surgeon last September said the pain was in...

At last I've had a second opinion on my hip pain and the surgeon immediately agr...

oscarandchloe

•2 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Does no stiffness mean a misdiagnosis?

Stuffed but working on it.

Finally saw a rheumatologist

The top of my hands and feet are swollen - PMR?

Rheumatologist

lymphatic drainage

Oh no is this a flare up ???

5th Covid jab???

Adverse effects from taking prednisilone and anticholinergic drugs?

Question regarding dexamethasone eye drops

The pain has moved?

Failing to reduce again

Tabs interfering 🥺

Is it a flare?

Cheap bum implants

Moon face

Need Shoulder Replacement Surgery

PMR and Itching?

Low Prednisolone dose and eyesight

Pain medications?

Methotrexate info

Charity/

Attendance allowance for my husband

Half my usual dose for PMR

Alternative therapy, a follow-up

attendance allowance in UK

Severe neck pain - PMR/GCA?

Post Covid flare up and doctors!

When is the best time to take pred, I’m on 7.5 mg

Exercise , PMR and Hip replacement

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