At Zero!......: Not daring to post as state of zero... - PMRGCAuk

PMRGCAuk

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At Zero!......

MamaBeagle profile image
16 Replies

Not daring to post as state of zero pted could indeed be a false dawn! Who knows? PMR symptoms started in 2017. Diagnosed October the same year. By autumn 2018 I was down to 6mg. In spite of selling up in France and returning to England, a son who was living with us (long story) and who was in the middle of a psychotic breakdown on our return I.

I've had a couple of flares, caught early and stubbed out with help and advice from our wise women on the Forum. The last of these flares was last summer. Since then I tapered slowly down from 3mg. Staying at each dose for a month and decreasing in 0.5mg steps.

I've had a few aches this week but these responded immediately to Ibuprofen which I am now reducing.

Keeping fingers crossed all goes well.

Thanks to everyone for all their help and support.

Mama B

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MamaBeagle
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16 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

🤞

SheffieldJane profile image
SheffieldJane

So sorry for your troubles. Cautiously happy for your remission - it has certainly been tested. You have been through so much trauma and changes of late. Shshsh! Fingers crossed for you! 🤗🌷

Telian profile image
Telian

You’ve done really well with everything you’ve had/got going on. Fingers crossed for a continuing recovery. 🌺

PMRpro profile image
PMRproAmbassador

Long may it last!

MamaBeagle profile image
MamaBeagle in reply to PMRpro

Seconded👍

piglette profile image
piglette

If the Ibuprofen is working at least it is probably not the PMR trying to raise its ugly head again.

MamaBeagle profile image
MamaBeagle in reply to piglette

That was my thinking too, fingers very crossed.

powerwalk profile image
powerwalk

Best of luck! Hope it goes well.

MamaBeagle profile image
MamaBeagle in reply to powerwalk

🤞thank you

borednow profile image
borednow

Well done you! Softly, softly and all that.

MamaBeagle profile image
MamaBeagle in reply to borednow

Oh yes indeed!

Whitner profile image
Whitner

Wonderful news!! So happy for you!!

MamaBeagle profile image
MamaBeagle

Thank you. I'm willing it not to be a temporary reprieve!

Lonsdalelass profile image
Lonsdalelass

That's great news, so pleased you made it! It gives us all hope in our journeys. I'm on my way to zero for a second time of asking....keeping everything crossed.

MamaBeagle profile image
MamaBeagle in reply to Lonsdalelass

Where are you now? It is do tempting to rush when the dose seems so small, but as Pro keeps reminding everyone ½mg is a lot! Good luck😊

Lonsdalelass profile image
Lonsdalelass in reply to MamaBeagle

I'm at 0.5, on a slow taper to zero 🤞. Thanks for your good wishes.

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