Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2022

Survey of people in the UK with rheumatic conditions about the fourth COVID 19 vaccination dose

If you follow this link to the LupusUK forum you can participate in another survey about rheumatic patients and Covid vaccination:...

If you follow this link to the LupusUK forum you can participate in another surv...

PMRpro

Ambassador•2 years ago

15 Replies

PMR a disability

I currently work on checkouts at a well known supermarket. I have been told that checkout staff will have to be multitasked on other departments. Does the...

I currently work on checkouts at a well known supermarket. I have been told that...

Koalajane

•2 years ago

27 Replies

PMR Newbie

Just came across this forum yesterday and wish I’d known about it in 2020! Considered myself reasonably fit and healthy but started getting aches and pains...

Just came across this forum yesterday and wish I’d known about it in 2020! Cons...

Ozziedays

•2 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Running and PMR

Thank you to the PMR community for all your advice since I was diagnosed with PMR/GCA in 2020. It has kept me going, I have reduced pred to 1mg a day (on a...

Thank you to the PMR community for all your advice since I was diagnosed with PM...

Tabby124

•2 years ago

30 Replies

FYI- 1mg gastro-resistant prednisolone unavailable.

Today I went down into my village to collect my prescription from that well-known high street chemist and was told gastro-resistant pred in 1mg tablets were...

Today I went down into my village to collect my prescription from that well-know...

Kendrew

•2 years ago

98 Replies

Nightmares since reducing to 6mg.

Hi all, I have 2 queries for you wonderful people that I can’t find answers to in the FAQ’s. First, since reducing to 6mg three weeks ago, I’ve been waking up...

Hi all, I have 2 queries for you wonderful people that I can’t find answers to i...

Cact

•2 years ago

79 Replies

Scuba Diving

Diagnosed with PMR in December, Am currently on 12.5mg going down to 10mg next month. Would there be any issues with scuba diving, it is quite strenuous...

Diagnosed with PMR in December, Am currently on 12.5mg going down to 10mg next ...

Hops1865

•2 years ago

8 Replies

Vision changes while on prednisone

I have had some vision changes since being on prednisone. Almost from day one my vision can get unclear off and on thru out the day. I have blamed it on the...

I have had some vision changes since being on prednisone. Almost from day one my...

Linny3

•2 years ago

50 Replies

Temple pain

Ive been suffering with a pain in my right temple as your looking at me on and off for about a month. No other symptoms but it’s nearly always there and quite...

Ive been suffering with a pain in my right temple as your looking at me on and o...

Atma123

•2 years ago

4 Replies

vitamin D problems

Sometime ago I went to see an Endocrinologist regarding my D levels which at the time were extremely low (11). He prescribed 50,000 a week dose for 6 weeks...

Sometime ago I went to see an Endocrinologist regarding my D levels which at the...

ipsidipsy

•2 years ago

13 Replies

Panic has set in

Have been reducing my Prednisolone gradually (0.5mg per month). Dropped from 7mg to 6.5mg 6 days ago and yesterday the old familiar pains started kicking...

Have been reducing my Prednisolone gradually (0.5mg per month). Dropped from 7m...

jaycee444

•2 years ago

5 Replies

Mouth ulcers

Just a quick question this morning. I am suffering from mouth ulcers. Its the third time in 8 months and I have never had any before that. is there any link...

Just a quick question this morning. I am suffering from mouth ulcers. Its the th...

Pawscat11

•2 years ago

6 Replies

Worried about gaining weight on prednisone

I've only been on prednisone a few weeks for GCA but been dieting like crazy to avoid weight gain. But I also worry I'm not eating sufficiently. Cut out salt,...

I've only been on prednisone a few weeks for GCA but been dieting like crazy to ...

Cobalt2sister

•2 years ago

44 Replies

COVID on pred

Any advice welcome,now on 12 day getting no better still showing Positive. Not feeling no better chesty and sore throat,tender tongue 😵‍💫😬 Coughing quite a...

Any advice welcome,now on 12 day getting no better still showing Positive. Not ...

Ronzy

•2 years ago

21 Replies

Help with making good use of seeing Rheumatologist for first review

Some where I read some really good advise on how to make the best use of seeing a medical person be it GP or Rheumatologist by keeping focused on what you...

Some where I read some really good advise on how to make the best use of seeing ...

carport

•2 years ago

3 Replies

Big Thankyou!

I posted about Fatigue with PMR recently and was so grateful for all your helpful responses. I have recently done 2 leisurely walks and am working out my new...

I posted about Fatigue with PMR recently and was so grateful for all your helpfu...

Jigsawlass

•2 years ago

15 Replies

Groin pain

I have Groin pain at the top of my right leg and it gets really bad when I’m walking, I have to walk slow. I have been diagnosed with Osteoporosis after...

I have Groin pain at the top of my right leg and it gets really bad when I’m wal...

Diver6

•2 years ago

26 Replies

Shocked at the colour of my teeth

Been on pred for 3 and a half years now. This weekend my OH said to me, "have you lost a tooth?". He said he couldn't see my molar tooth when I laughed. When I...

Been on pred for 3 and a half years now. This weekend my OH said to me, "have yo...

Dontwannabesick

•2 years ago

21 Replies

UK GCA Consortium looking for PMR/GCA patients for study

The UK GCA Consortium are looking for patients with GCA or PMR as part of their study into the causes of the diseases. More information can be found here:...

The UK GCA Consortium are looking for patients with GCA or PMR as part of their ...

Fran_Benson

Partner•2 years ago

14 Replies

Update on anti-virals

Like many here I was sent a pcr test to use if I got Covid because I could be eligible for anti-virals. My pcr test was positive on Saturday ( having tested...

Like many here I was sent a pcr test to use if I got Covid because I could be el...

suzy1959

•2 years ago

12 Replies

I need advice please.

I have pmr at the moment reducing to 9mg I am also on sertraline 100mg for anxiety which I've been on for 8 months and I want to reduce off them, my doctor...

I have pmr at the moment reducing to 9mg I am also on sertraline 100mg for anxie...

vangelis8

•2 years ago

21 Replies

At long last I can sleep!

I am doing a slow taper to 5 mg which is the lowest I’ve ever got to (fingers crossed) in 9 years. For the last week I have been sleeping properly and I...

I am doing a slow taper to 5 mg which is the lowest I’ve ever got to (fingers cr...

Suet3942

•2 years ago

22 Replies

Pred & HRT

Is there anybody in our lovely community taking pred and on Hrt gel or patches and if so have they been ok on the two together.

Is there anybody in our lovely community taking pred and on Hrt gel or patches a...

Daisy1624

•2 years ago

8 Replies

Cataract surgery and sick day rules

Hello more questions again I am afraid. I am about to have my second eye cataract surgery and wondered if I should look to 'Sick Day Rules' around this...

Hello more questions again I am afraid. I am about to have my second eye catarac...

Noraflorence

•2 years ago

7 Replies

Calcium pills bad for you?

Was searching to learn if I could crush calcium pills to take in water and came across this - which put me on alert! It’s not without at least some research....

Was searching to learn if I could crush calcium pills to take in water and came ...

Greytree

•2 years ago

10 Replies

Arriving here (from the Patient site) after joining "club zero"

I've been away from the PMR forum world for some time, having learned to manage my condition more easily over the years. I had worked my way down to a very low...

I've been away from the PMR forum world for some time, having learned to manage ...

DAN38655

•2 years ago

14 Replies

T score

Hi How do I find my own posts I’m trying to see if I ever had a T Score Thanks

Hi How do I find my own posts I’m trying to see if I ever had a T Score Thanks...

Uglow

•2 years ago

9 Replies

Is this a flare?

Hi, I’ve just returned from a holiday in the Maldives (lucky you I hear you all say!) except I’ve come back in a much worse state than when I went. I think...

Hi, I’ve just returned from a holiday in the Maldives (lucky you I hear you all ...

Tiggy70

•2 years ago

32 Replies

Advice please

For the second time my rheumatologist has weaned me off prednisone using Actemra. The first time I got to 1mg but stopped it because I had experienced constant...

For the second time my rheumatologist has weaned me off prednisone using Actemra...

Mahler2

•2 years ago

43 Replies

Hydrocortisone and tapering...........

If one is on HC as a pred replacement, what happens if one has a suspected PMR flare............ would one raise the HC at the same percentage as one would do...

If one is on HC as a pred replacement, what happens if one has a suspected PMR f...

billydownunder

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2022

Survey of people in the UK with rheumatic conditions about the fourth COVID 19 vaccination dose

PMR a disability

PMR Newbie

Running and PMR

FYI- 1mg gastro-resistant prednisolone unavailable.

Nightmares since reducing to 6mg.

Scuba Diving

Vision changes while on prednisone

Temple pain

vitamin D problems

Panic has set in

Mouth ulcers

Worried about gaining weight on prednisone

COVID on pred

Help with making good use of seeing Rheumatologist for first review

Big Thankyou!

Groin pain

Shocked at the colour of my teeth

UK GCA Consortium looking for PMR/GCA patients for study

Update on anti-virals

I need advice please.

At long last I can sleep!

Pred & HRT

Cataract surgery and sick day rules

Calcium pills bad for you?

Arriving here (from the Patient site) after joining "club zero"

T score

Is this a flare?

Advice please

Hydrocortisone and tapering...........

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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