The UK GCA Consortium are looking for patients with GCA or PMR as part of their study into the causes of the diseases. More information can be found here: researchforthefuture.org/st...
It is UK based and any volunteers will need to be able to travel to Salford Royal Hospital (Greater Manchester),
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You're too far away 
- if I were in the UK, I'd register wherever I was. But northern Italy - nah ...
Just commenting to bring this up to more peoples attention. I have applied but actually got the info on Twitter 😉
I've applied. Now let's see if it is for real.
Sent response.
Did you hear anything SheffieldJane ? Bcol & l had an email to say the trial was full…
Fran_Benson For Info
Thank you Mrs Nails - good to know :). They might not have needed many patients to take part. Last time we publicised patient involvement (the Leeds PMR Voices project) they received 300 responses - which is fantastic that so many people want to be involved, but does mean that some will be disappointed.
I’ve applied. I wrote this in the comments section.
I was diagnosed at 50. Then diagnosis questioned due to age. PET/CT showed was PMR. Broken ankle recently. Interested to note PMR symptoms disappeared whilst immune system dealt with it. Making a slight reappearance after three weeks. I think this could be an interesting point.
Yes l put a brief outline in the comments box too.
I've already given blood for this study, but at Leeds, where I note the research originates.
I noted that too - when did you give blood?
Yes me too. The last time I had an appointment with Sarah. As I volunteer for any research that might help our conditions, I am not sure if this was the same study. They certainly took a lot of tubes of blood. This was February 9th this year.
Hi Everyone that’s applied - check your Junk Email for a Reply & a further form to complete.
MrsN
For patients with GCA vasculitis
Is Avascular Necrosis common in PMR/GCA patients?
GCA and PMR, chickens and eggs
