vitamin D problems: Sometime ago I went to see an... - PMRGCAuk

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vitamin D problems

ipsidipsy profile image
13 Replies

Sometime ago I went to see an Endocrinologist regarding my D levels which at the time were extremely low (11). He prescribed 50,000 a week dose for 6 weeks and thereafter 2,000 per day.

I was fine on the 50,000 dose but since have had trouble with stomach ache when I take the 2,000 dose. I have tried various brands i.e., Holland and Barratt, Boots, Nu nutrition soft gel capsules and also a mouth spray which made me feel very unwell .

I can only come to the conclusion that it is one of the added ingredients that are causing me the problem, but find out which one is a mine field. I am wondering does anyone else have a problem with Vit D?

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ipsidipsy
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13 Replies
SheffieldJane profile image
SheffieldJane

I wonder what the Endocrinologist prescribed? Maybe you could find out and source those, presuming that you are still deficient, your body could be trying to tell you something. Get some sunshine now that it has started to appear as well.

ipsidipsy profile image
ipsidipsy in reply to SheffieldJane

Thanks for your reply. Unfortunately the ones I tolerated came in a plain white tub. Have no idea what brand the were. Will try Stexerol as dphu had no trouble with them.

Seacat30 profile image
Seacat30

Is it possible that you are now suffering from too much Vitamin D? I think digestive distress might be one of the side effects?

ipsidipsy profile image
ipsidipsy in reply to Seacat30

My last vit D test was 70 in December last but because of the trouble I have been having I have'nt regularly taken D since then.

PMRpro profile image
PMRproAmbassador

I think my husband did - but was fine with the spray.

Did they check your blood level after completing the course of high dose vit D? That would rule out the unlikely reason of the blood level being too high. You could use the same as you had for the high dose if that was OK - but just take about a third of the bottle once a week.

ipsidipsy profile image
ipsidipsy in reply to PMRpro

Thanks for your reply. Yes levels were checked an were 70, then advised to take the 2,000 per day for ever!!!!!

Chewy21 profile image
Chewy21

Have you tried the vitabiotics brand they are quite popular and available in most supermarkets. I take them at that dose and have had no trouble. Plus I know they work because mine was low last year and now its improved.

ipsidipsy profile image
ipsidipsy in reply to Chewy21

Thanks for the reply will try them and also the Stexerol as mentioned by dphu.

dphu profile image
dphu

Thank you for posting this.

I too had trouble tolerating all sorts of Vit D 😵. Thought it was just me!My consultant then prescribed Stexerol which I managed OK.

The trouble now is that my GP does not want, or is not able to prescribe Vit D and I don't think it's available OTC.

Recently when the surgery noted my Vit D was low, they did send a prescription for Stexerol to the pharmacy for me but they won't put it on repeat!

I think they do have the option to prescribe meds if they can give a reason for it.

PMRpro profile image
PMRproAmbassador in reply to dphu

I wonder if they would give you a private prescription?

dphu profile image
dphu in reply to PMRpro

I'm hoping now that the sun has shown it's face that I won't be in such need. I seem to remember being told that they are only allowed to test Vit D every 6 months??? My next test should be with Osteoporosis so I will hopefully hear then if it's still necessary.It was the surgery pharmacist recently who would not put it on repeat ~ when my current supply runs out I will approach a GP. 🤞

Bcol says she gets hers on precscription but unfortunately different CCG's have different prescribing restrictions.

I'm off to sit in the sun for a bit now 🌞

PMRpro profile image
PMRproAmbassador in reply to dphu

Still too early in the year for that sun to make vit D - not until May! But I obviously don't make vit D at all - if I don't take a supplement, the blood level falls slowly again. And I live in Italy, far enough south to be able, technically at least, to make vit D all year round.

ipsidipsy profile image
ipsidipsy in reply to dphu

Thanks for replying. Will try and get the Stexerol just might be the answer.

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