UK GCA Consortium looking for PMR/GCA patients fo... - PMRGCAuk

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UK GCA Consortium looking for PMR/GCA patients for study

Fran_Benson profile image
Fran_BensonPartner
14 Replies

The UK GCA Consortium are looking for patients with GCA or PMR as part of their study into the causes of the diseases. More information can be found here: researchforthefuture.org/st...

It is UK based and any volunteers will need to be able to travel to Salford Royal Hospital (Greater Manchester),

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Fran_Benson profile image
Fran_Benson
Partner
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14 Replies
Bcol profile image
Bcol

Sent reply back

PMRpro profile image
PMRproAmbassador

You're too far away ;) - if I were in the UK, I'd register wherever I was. But northern Italy - nah ...

MrsNails profile image
MrsNails

Just commenting to bring this up to more peoples attention. I have applied but actually got the info on Twitter 😉

jinoadby profile image
jinoadby

I've applied. Now let's see if it is for real.

SheffieldJane profile image
SheffieldJane

Sent response.

MrsNails profile image
MrsNails in reply to SheffieldJane

Did you hear anything SheffieldJane ? Bcol & l had an email to say the trial was full…

Fran_Benson For Info

Fran_Benson profile image
Fran_BensonPartner in reply to MrsNails

Thank you Mrs Nails - good to know :). They might not have needed many patients to take part. Last time we publicised patient involvement (the Leeds PMR Voices project) they received 300 responses - which is fantastic that so many people want to be involved, but does mean that some will be disappointed.

Buttonshutton profile image
Buttonshutton

I’ve applied. I wrote this in the comments section.

I was diagnosed at 50. Then diagnosis questioned due to age. PET/CT showed was PMR. Broken ankle recently. Interested to note PMR symptoms disappeared whilst immune system dealt with it. Making a slight reappearance after three weeks. I think this could be an interesting point.

MrsNails profile image
MrsNails in reply to Buttonshutton

Yes l put a brief outline in the comments box too.

Rugger profile image
Rugger

I've already given blood for this study, but at Leeds, where I note the research originates.

MrsNails profile image
MrsNails in reply to Rugger

I noted that too - when did you give blood?

Rugger profile image
Rugger in reply to MrsNails

In July 2021.

SheffieldJane profile image
SheffieldJane in reply to Rugger

Yes me too. The last time I had an appointment with Sarah. As I volunteer for any research that might help our conditions, I am not sure if this was the same study. They certainly took a lot of tubes of blood. This was February 9th this year.

MrsNails profile image
MrsNails

Hi Everyone that’s applied - check your Junk Email for a Reply & a further form to complete.

MrsN

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