Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for February 2022

Adrenal insufficiency

Hi all I've been on split dose of prednisone for 5 yrs and now down to 3mg. I've found for past several years being exhausted and finally got my rhumitologist...

Hi all I've been on split dose of prednisone for 5 yrs and now down to 3mg. I'v...

Wizards

•2 years ago

31 Replies

ANOTHER STROKE!!

Hi everyone, any thoughts on this please? My husband was diagnosed with GCA August 2020. He had a successful taper from 70mg to currently 5. Last Saturday he...

Hi everyone, any thoughts on this please? My husband was diagnosed with GCA Augu...

Bella1310

•2 years ago

35 Replies

Getting frustrated!

Hi all, I’ve been on 2.5mg Prednisolone now since around August 2021, having started at 60mg back in November 2018. At my last conversation with the...

Hi all, I’ve been on 2.5mg Prednisolone now since around August 2021, having sta...

Lyndaki

•2 years ago

23 Replies

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Prednisolone Withdrawal Versus Flare

I have suffered from GCA for many years and know what a flare is and how to go up by 5mgs of prednisolone etc. However I was downgraded to low-grade vasculitis...

I have suffered from GCA for many years and know what a flare is and how to go u...

Stkeyna

•2 years ago

24 Replies

Hoping 5mg will be enough

Hi all..after 2 weeks on 5mg with 3 days at 10mg as per PMRpro suggestion ( thank you for that PMRpro ) I am feeling much better although not completely...

Hi all..after 2 weeks on 5mg with 3 days at 10mg as per PMRpro suggestion ( than...

Louisnhoe

•2 years ago

4 Replies

New approach to pain management

Hi all - recently I have been investigating alternative methods of pain relief and have been directed towards Sound Frequency Healing. Let me say first off, I...

Hi all - recently I have been investigating alternative methods of pain relief a...

BiteyDelano

•2 years ago

13 Replies

Another research opportunity for UK residents - chronic pain survey

https://healthunlocked.com/lupusuk/posts/147578781/volunteers-are-needed-for-a-research-study-being-conducted-by-a-trainee-psychologist-at-kings-college-london?

https://healthunlocked.com/lupusuk/posts/147578781/volunteers-are-needed-for-a-r...

PMRpro

Ambassador•2 years ago

3 Replies

Prednisolone 1mg enteric coated shortage?

Hi everyone, I'm a long time lurker but first time poster! I've got so much more information from this forum than I've ever had from my GP since being...

Hi everyone, I'm a long time lurker but first time poster! I've got so much mor...

Beesknees

•2 years ago

10 Replies

GCA Flare & Lower Extremity Vasculitis?

My GCA has been in remission for a couple years using maintenance 1 mg prednisone. In latter months of 2021 my weight dropped 12 lb, fatigue increased and CRP...

My GCA has been in remission for a couple years using maintenance 1 mg prednison...

gifford7

•2 years ago

4 Replies

Will being sick affect my steroid dose.

Hi everyone, I was sick this morning about 15-20 minutes after taking my prednisolone. Would this mean I wouldn't have digested the dose? I take 7mg at 7.30...

Hi everyone, I was sick this morning about 15-20 minutes after taking my prednis...

Chewy21

•2 years ago

6 Replies

Pred.

Hi.i have just taken 1mg extra,am on 8mg,but took 9mgs today.will it hurt.do I still take 8mgs tomorrow morning.sorry.

Hi.i have just taken 1mg extra,am on 8mg,but took 9mgs today.will it hurt.do I s...

Flosy

•2 years ago

4 Replies

One of my big problems these days is Asidd reflux,and spelling heads died

Think I’m not digesting mi pred too well ,😱😢,nead help 😵‍💫

Ronzy

•2 years ago

21 Replies

A Busybody’s Dilemma Updated- Covid jab reaction?

I posted 25 days about my friend and neighbour’s alarming symptoms. She was suffering from head, neck pain and joint stiffness and trying to get a diagnosis...

I posted 25 days about my friend and neighbour’s alarming symptoms. She was suff...

Downbytheriverside

•2 years ago

18 Replies

Does anyone ever recover with their doctor’s prednisone reducing schedule?

When I was diagnosed, my doctor made it sound so simple. He gave me a reducing schedule which didn’t work. I relapsed on 10 mg prednisone and had to start all...

When I was diagnosed, my doctor made it sound so simple. He gave me a reducing s...

nallufl24

•2 years ago

18 Replies

Primrose123

Please remove me from your forum, sorry I accidentally pressed the wrong button.. Many Thanks...Primrose123..xx

Please remove me from your forum, sorry I accidentally pressed the wrong button....

primrose123

•2 years ago

2 Replies

PMR and sciatica

I was diagnosed with PMR in august and have been on predisolone (15 ml now reduced to 8mg) . I am now suffering with my second episode of sciatica……is there a...

I was diagnosed with PMR in august and have been on predisolone (15 ml now reduc...

Mmjj

•2 years ago

10 Replies

Increasing by 1mg occasionally?

I've been on 3mg for 6 weeks and ok apart from stiffness in hips when walking. My legs feel like prosthetics but no pain. I do physio exercises to strengthen...

I've been on 3mg for 6 weeks and ok apart from stiffness in hips when walking. M...

diana1998

•2 years ago

33 Replies

Guidance please is

I saw my GP recently and he advised me that I am not immunosuppressed as I am below 7.5 mg prednisolone. Has anyone any thoughts on this as I believed it to be...

I saw my GP recently and he advised me that I am not immunosuppressed as I am be...

gemmalaura

•2 years ago

18 Replies

New email account

Smokygirl here. Only posting because I've changed my email address on here and they think I'm a new subscriber. My photo feed & hub haven't changed! Hugs to...

Smokygirl here. Only posting because I've changed my email address on here and...

Smokygirl

•2 years ago

3 Replies

Is kaleidoscopic vision a feature of GCA?

I’ve had a bout of this recently. I’m under a lot of stress at the moment but v rarely have migraines. It occurred when I was first diagnosed with pmr....

I’ve had a bout of this recently. I’m under a lot of stress at the moment but v ...

DDKRM

•2 years ago

9 Replies

Just starting out again with pmr doctor stared me on 15 mill ,I don’t feel as it is sufficient effect not lasting until morning

Just starting out again with pmr doctor stared me on 15 mill ,I don’t feel as it...

Ronzy

•2 years ago

9 Replies

Swollen lump on my lower calf?

Hi Everyone, I noticed a swelling on my right leg, lower calf today - very tender to touch and skin a little red. Just finished reducing to 11mg Pred (week...

Hi Everyone, I noticed a swelling on my right leg, lower calf today - very te...

Hopingsail

•2 years ago

14 Replies

Root canal, two surgeries and an ablation.

Over the next two months these are all needed to give me a better quality of life. I’m on 4mg of prednisone and inject Actemra once a month. My root canal is...

Over the next two months these are all needed to give me a better quality of lif...

Blackcatlover

•2 years ago

13 Replies

Pred worries

Anyone know the percentage of people contacting diabetes from taking prednisolone . That’s what doctor worry about

Anyone know the percentage of people contacting diabetes from taking prednisolon...

Ronzy

•2 years ago

7 Replies

Feeing faint after lowering prednisone

My husband has been lowering his dose of Prednisone from 10 mg at Christmas to now taking 2.5 mg. Today he collapsed, shaking, with pulse of 186.I had to hep...

My husband has been lowering his dose of Prednisone from 10 mg at Christmas to ...

Dubonnet

•2 years ago

67 Replies

Coming off Pred

Hi everyone. First post here but I’ve been following for some time. I was diagnosed with PMR in 2018 and started on 20mg of Pred. I’ve been reducing gradually...

Hi everyone. First post here but I’ve been following for some time. I was diagno...

Bobwif

•2 years ago

13 Replies

Increasing Pred dosage and swollen fingers

The last couple of days I’ve increased my Pred dosage from 4 mg up to 10 as I was experiencing pain in my shoulders and didn’t know if it was PMR or not, so...

The last couple of days I’ve increased my Pred dosage from 4 mg up to 10 as I wa...

Doraflora

•2 years ago

11 Replies

Dental problems & alendronic acid…anybody had ONJ (necrosis of jaw) please?

History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. More toothache & swelling. Off to dentists (closed for 2 years due to Covid)....

History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. M...

Pixix

•2 years ago

30 Replies

Elective surgery and Preds

Way back when the world was not different I started looking into having my Varicose Veins sorted out and was going to get them done at about the time...

Way back when the world was not different I started looking into having my Varic...

Billiebobdog

•2 years ago

7 Replies

Bad taste

I've been on prednisone since last March I have really bad taste and very dry mouth my tongue sometimes painful does anyone else suffer this on prednisone

I've been on prednisone since last March I have really bad taste and very dry mo...

jacquelinebell101

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

Adrenal insufficiency

ANOTHER STROKE!!

Getting frustrated!

Prednisolone Withdrawal Versus Flare

Hoping 5mg will be enough

New approach to pain management

Another research opportunity for UK residents - chronic pain survey

Prednisolone 1mg enteric coated shortage?

GCA Flare & Lower Extremity Vasculitis?

Will being sick affect my steroid dose.

Pred.

One of my big problems these days is Asidd reflux,and spelling heads died

A Busybody’s Dilemma Updated- Covid jab reaction?

Does anyone ever recover with their doctor’s prednisone reducing schedule?

Primrose123

PMR and sciatica

Increasing by 1mg occasionally?

Guidance please is

New email account

Is kaleidoscopic vision a feature of GCA?

Just starting out again with pmr doctor stared me on 15 mill ,I don’t feel as it is sufficient effect not lasting until morning

Swollen lump on my lower calf?

Root canal, two surgeries and an ablation.

Pred worries

Feeing faint after lowering prednisone

Coming off Pred

Increasing Pred dosage and swollen fingers

Dental problems & alendronic acid…anybody had ONJ (necrosis of jaw) please?

Elective surgery and Preds

Bad taste

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