Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2021

Covid and Flu, Covid then Flu.

I am invited to have both Covid and Flu jabs together but having read that they might be better separated l am now a little reluctant to have both at the same...

I am invited to have both Covid and Flu jabs together but having read that they ...

Elbowpiece

•2 years ago

10 Replies

Those of you with GCA what does 'bilateral temporal arteries were pulsatile' mean?

Hi, had rheumatology appointment last week and just received the letter sent to my GP, which included 'bilateral temporal arteries were pulsatile' and not sure...

Hi, had rheumatology appointment last week and just received the letter sent to ...

Susan1705

•2 years ago

4 Replies

Happy Thanksgiving

To all my PMR friends around the world. There's plenty for each of us to be thankful for if we just look around.

To all my PMR friends around the world. There's plenty for each of us to be than...

GOOD_GRIEF

•2 years ago

9 Replies

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Itching: steroid side-effect?

I'm on 7mg prednisolone having tapered from 15mg over 18 months with no ill-effects. Now I am experiencing outbreaks of continuous itching on shoulders,...

I'm on 7mg prednisolone having tapered from 15mg over 18 months with no ill-eff...

jezzard

•2 years ago

10 Replies

Omeprazole again!

Following UPke1's post about omeprazole a couple of days ago, I have decided to reduce my dose from 40mg daily to 20mg. this is for two reasons: 1 The GP is...

Following UPke1's post about omeprazole a couple of days ago, I have decided to ...

Sharitone

•2 years ago

14 Replies

Desperate for a diagnosis

Hi, 2.5 years ago I had all the symptoms of PMR, elevated CRP and SED rate, stiffness and pain in neck, both shoulders and both hips, unable to roll and move...

Hi, 2.5 years ago I had all the symptoms of PMR, elevated CRP and SED rate, sti...

Jmh716

•2 years ago

35 Replies

Leeds Ilkley Yorkshire Support Group Meeting

We had our first face to face meeting in Leeds Community Hub Yesterday. Its been two years since we last met. There were 8 of us who could make it. The room...

We had our first face to face meeting in Leeds Community Hub Yesterday. Its been...

Estellemac

•2 years ago

8 Replies

Calcichew and K2

Hi, My rheumatologist put me on Cacichew when she prescribed steroids 18 months ago. It has calcium and D3. I've read that one should take K2 to make sure the...

Hi, My rheumatologist put me on Cacichew when she prescribed steroids 18 months ...

Roryfederer

•2 years ago

83 Replies

Anyone of you lovely people onStatins and taking Pred. Is it OK.

May have to start taking statins.for cholesterol and on 4mg pred.Not happy xx

Harrywogan

•2 years ago

49 Replies

Doctor re sodium.

At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my...

At the beginning of September I received a copy of a letter sent by my GCA Consu...

prunus

•2 years ago

22 Replies

Weight gain/loss

I know I’m wingeing on about weight gain AGAIN but ....... has anyone joined a Slimmers World group and found it helpful? I’m down to 4 mg - weight just not...

I know I’m wingeing on about weight gain AGAIN but ....... has anyone joined a S...

Bubble56

•2 years ago

54 Replies

Delayed reaction to COVID/flu jab

Many thanks again for such an informative resource! My partner had his COVID jab AND the flu jab (I know!) on Saturday 13th November with no immediate side...

Many thanks again for such an informative resource! My partner had his COVID jab...

PMRZ

•2 years ago

2 Replies

Early Warning Symptom Perhaps?

The numbness and tingling in the legs and soles of the feet also hands has been with me the whole trip years before diagnosis and may well have been a very...

The numbness and tingling in the legs and soles of the feet also hands has been ...

cycli

•2 years ago

20 Replies

Dexa scan report

My dexa scan shows T scores Ap spine -2.9,Z score -1.6,femoral neck -T -2.3 ,Z-1.1 and total hip normal-10 yr fracture risk 13%,hip fracture risk 3 % Worsened...

My dexa scan shows T scores Ap spine -2.9,Z score -1.6,femoral neck -T -2.3 ,Z-1...

bakingD

•2 years ago

5 Replies

Sleepless in Seattle

Hi friends: Recently I’ve had days where I haven’t been able to sleep, just an increase in the insomnia problem on prednisone. I finally asked my doctor if...

Hi friends: Recently I’ve had days where I haven’t been able to sleep, just ...

Snerd

•2 years ago

24 Replies

Confused flare or not

I posted a few days ago about left shoulder pain and tight area around left neck and scapula. Increased Pred does from 5mg to 10mg and taking 800mg of Advil....

I posted a few days ago about left shoulder pain and tight area around left neck...

UmiMck

•2 years ago

16 Replies

What now???

Back in June my rheumy said that one of my bloods was out of the normal range. It was AHP , connected to the liver. He suggested I have an ultrasound on my...

Back in June my rheumy said that one of my bloods was out of the normal range. I...

York54

•2 years ago

53 Replies

Relapse and dose ?

My wife for gca. , 5 months back Started prednisone 60 with actemra weekly she was improving till 9 mg got flare went up to 10-12.5 and lastly on 40 mg as...

My wife for gca. , 5 months back Started prednisone 60 with actemra weekly sh...

Rajuguide

•2 years ago

9 Replies

Thrush

Hi.i know I have spoken about this before,but it getting very annoying,don't seem to be able to get rid of it thrush.i have tried allsorts,gel,liquid,mouth...

Hi.i know I have spoken about this before,but it getting very annoying,don't see...

Flosy

•2 years ago

8 Replies

Sjogrens syndrome

Hi all , on Monday I had a follow up appointment with my Rheumatologist, 8 weeks ago when I saw her she took lots of Bloods and was very thorough. She has told...

Hi all , on Monday I had a follow up appointment with my Rheumatologist, 8 weeks...

Toobusyforthis

•2 years ago

26 Replies

Just recently diagnosed with PMR. Symptoms started 1 week after this years “senior” flu vaccine. Just turned 65! Anyone else experience this

Flu vaccine?

DDG3

•2 years ago

18 Replies

Sorry to be annoying - can't find link that says milk does not have much calcium in it....

I have looked for it but cannot find it....anyone? Thanks in advance. Whitefish

whitefishbay

•2 years ago

48 Replies

Steroid sparers

I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocilizumab could be withdrawn. I only got a couple of replies so I guess not many...

I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocil...

marantha

•2 years ago

20 Replies

Help for Trochanteric bursitis

Any tips on helping trochanteric bursitis?I have suffered with it since twisting my hip getting off a bike that had a really high crossbar- X-rays just show...

Any tips on helping trochanteric bursitis?I have suffered with it since twisting...

bakingD

•2 years ago

21 Replies

Rheumatologist Appointment

I asked my GP to refer me to Prof Justin Mason in London as advised by a few of you on here. Prof Mason accepted my referral and I saw him the other day. He is...

I asked my GP to refer me to Prof Justin Mason in London as advised by a few of ...

DawnMezza

•2 years ago

3 Replies

How do you know when you are ready to come off steroids completely?

Diagnosed in September 2020, originally on 15 mg, thankfully and steadily reduced to 3 mg, reducing at 1mg per 6 weeks, still stiff in shoulders, buttocks and...

Diagnosed in September 2020, originally on 15 mg, thankfully and steadily reduce...

Littlejan22

•2 years ago

50 Replies

What else can I do?

First, I want to thank you all for positive comments, and good information. I believe I am getting better, as far as pain. It has been a year since I was...

First, I want to thank you all for positive comments, and good information. I ...

Poodleshrimp

•2 years ago

9 Replies

Out of the Woods! Touch Wood!

My third covid jab was ok . The only side effect was a very sore upper arm for about 4 days. The PMR flare experienced several weeks ago responded to the 5 mg...

My third covid jab was ok . The only side effect was a very sore upper arm for a...

Cyclegirl54

•2 years ago

5 Replies

Article from the Daily Telegraph today.

I’m so glad I refused the Omeprazole and took the excellent advice from someone here to take my pred with natural, live yoghurt instead . DOCTOR’S DIARY A...

I’m so glad I refused the Omeprazole and took the excellent advice from someone ...

Uke1

•2 years ago

88 Replies

Holistic ways to manage PMR

Hello, I have been recently diagnosed with PMR, which I have been suffering from since I had Covid last December. After my second vaccine my symptoms seemed to...

Hello, I have been recently diagnosed with PMR, which I have been suffering from...

Hidden

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Covid and Flu, Covid then Flu.

Those of you with GCA what does 'bilateral temporal arteries were pulsatile' mean?

Happy Thanksgiving

Itching: steroid side-effect?

Omeprazole again!

Desperate for a diagnosis

Leeds Ilkley Yorkshire Support Group Meeting

Calcichew and K2

Anyone of you lovely people onStatins and taking Pred. Is it OK.

Doctor re sodium.

Weight gain/loss

Delayed reaction to COVID/flu jab

Early Warning Symptom Perhaps?

Dexa scan report

Sleepless in Seattle

Confused flare or not

What now???

Relapse and dose ?

Thrush

Sjogrens syndrome

Just recently diagnosed with PMR. Symptoms started 1 week after this years “senior” flu vaccine. Just turned 65! Anyone else experience this

Sorry to be annoying - can't find link that says milk does not have much calcium in it....

Steroid sparers

Help for Trochanteric bursitis

Rheumatologist Appointment

How do you know when you are ready to come off steroids completely?

What else can I do?

Out of the Woods! Touch Wood!

Article from the Daily Telegraph today.

Holistic ways to manage PMR

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