My sure fire system is not so sure!: Over the... - PMRGCAuk

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My sure fire system is not so sure!

IdasMum profile image
6 Replies

Over the weekend (2/3 days) I felt so unwell, in pain (bilateral, shoulders) neck etc. head felt like it was in a vice and my energy levels plummeted. I thought I was having a flare.

My blood test was due this morning but I went yesterday with a view increasing my steroids as soon as poss to get on top of my symptoms but not before getting a true reading of my CRP. By the time I left the nurses office I was beginning to feel better and this continued through the day and evening. Slept like a log last night (pain free ish) Today I feel back to normal (my normal)

I had a phone call just now from my Dr who wanted to know how I was. By this time I was able to tell him I think I might have missed steroids on Thursday or Friday!

My CRP is/was 55! It's normally less than 9. I hope he was reassured I am okay (he didn't sound it). I am reassured but need to come up with a fool proof system.

I used a Dossete dispenser labelled Mon thru Sunday. I have a vague memory of looking and wondering why all the doors were closed. I cannot think of anything better than a Dossete system. Maybe someone here can. Having a poor memory is not helpful.

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IdasMum profile image
IdasMum
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6 Replies
Noosat profile image
Noosat

I ue a very very hot shower on my back. It helps my lower back function with less pain/discomfit

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Got an iPhone? Set a daily reminder

PMRpro profile image
PMRproAmbassador

I use a daily dosette box, filled every evening as I go to bed, because I have 5 different med times. I also set an alarm for two of those times which do have to be at specific times because of drug interactions. I have 3 alarm options on my very basic phone but it does work most of the time! I have been known to switch it off and forget the tablet ...

There are also dosette boxes with built-in alarms.

jinasc profile image
jinasc

Yes I got a dossette box for Joan with an alarm. 🤔 Been looking for it..........

IdasMum profile image
IdasMum

D box with alarm some sounds like a good plan. I take all my meds when I get up and before going any further than my desk or down to let the chickens out. I don't know how I didn't do this but I am pretty sure I did.

A phone alarm would only alert me to the box, it wouldn't explain to me why the doors are all closed. I normally do the box when it's empty and dish out 8 x tablets taking that mornings dose as I prepare the box. I failed on that count by prepping the night before and then assuming I'd taken the dose already.

jayemmemm profile image
jayemmemm

I use a weekly Dossete box and ask Alexa for reminders each day. I have four Alexas around the house because I'm rather deaf, but I always hear one of them. Best of luck.

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