Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,612 members • 38,758 posts

All posts for July 2021

Shielders were eight times more likely to contract infection, study finds

I am not sure if I believe this, seems strange....

piglette

•3 years ago

53 Replies

Persistent numbness

I wonder if anyone can help as to why the sole of my left foot has been numb for nearly 4 months. Have more or less weaned myself off pred but still on methx....

I wonder if anyone can help as to why the sole of my left foot has been numb for...

Emmylou3

•3 years ago

128 Replies

How do I reduce my cpk levels and keep them low?

I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenolate (3000mg) but the cpk levels aren’t consistently staying reduced. My...

I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenola...

Lobby123

•3 years ago

6 Replies

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Has anyone been offered the Pneumococcal vaccine?

Just had a call from my GP surgery offering me this vaccine saying that I qualified for this due to my medications. I’ve asked for more information so will...

Just had a call from my GP surgery offering me this vaccine saying that I qualif...

Lochy

•3 years ago

16 Replies

Need an explanation of shorthand please.

I have just been reading a report where the shorthand TAVI and NSTEMI are used. I would be very grateful if one of you learned people could enlighten me as to...

I have just been reading a report where the shorthand TAVI and NSTEMI are used. ...

prunus

•3 years ago

2 Replies

Trying turmeric and fish oil as anti-inflammatory

I experimented for over a month with a high amount of turmeric and fish oil to try and lessen the inflammatory load in my system and hopefully to get a little...

I experimented for over a month with a high amount of turmeric and fish oil to t...

Linny3

•3 years ago

62 Replies

So what do I do now?

My hips, shoulders, hands are all painful and I’m on 16mg of pred. Just got my latest blood results back and my CRP is 2 and everting else was in the normal...

My hips, shoulders, hands are all painful and I’m on 16mg of pred. Just got my ...

Griggser

•3 years ago

8 Replies

What is the prevelance of PMR and GCA?

What is the prevelance or prevelance rate of PMR and GCA in major countries like the US, Canada, the UK, and other European countries? Asking for the research...

What is the prevelance or prevelance rate of PMR and GCA in major countries like...

gketan30

•3 years ago

39 Replies

Slap on the wrist

Our really helpful and understanding Nurse Practitioner ordered all kinds of blood tests and I went to give the blood yesterday. This morning I got a message...

Our really helpful and understanding Nurse Practitioner ordered all kinds of blo...

ChrisinNam

•3 years ago

11 Replies

Stiffness in ribs / chest area

Hi All, I'm currently slow tapering from 7mg to 6.5mg following a flare when I got down to 4.5mg. I'm experiencing some slight stiffness in my shoulders and...

Hi All, I'm currently slow tapering from 7mg to 6.5mg following a flare when I g...

CarolF1312

•3 years ago

9 Replies

PMR and Biologics/Infusions

Hi, I'm 14 months in now. I tapered off the Pred 2 months ago and within a week the pin was back in full force. So went back on 5mg. Pred to taper every 30...

Hi, I'm 14 months in now. I tapered off the Pred 2 months ago and within a wee...

suzirandy

•3 years ago

7 Replies

Creatine

Hi, please can I ask if anyone takes Creatine on here? I've read that it can be beneficial for muscles, particularly for those who exercise. I don't want to...

Hi, please can I ask if anyone takes Creatine on here? I've read that it can be ...

Booboos171

•3 years ago

9 Replies

knee pain

I have yet another question. I am not on prednisone at the moment and do not have any pain to speak of in the areas where it all started - shoulders, pelvic...

I have yet another question. I am not on prednisone at the moment and do not hav...

SandyBoots

•3 years ago

9 Replies

Update and everything you need, FAQ

This group means everything to me....and so many others. These chronic illnesses are a difficult journey that can be made a little smoother armed with...

This group means everything to me....and so many others. These chronic illnesse...

Grammy80

•3 years ago

13 Replies

Adrenal deficient

I had a test to check if my adrenals were working. It just took half an hour. Few days later I had a telephone call to say they needed to see me and my...

I had a test to check if my adrenals were working. It just took half an hour. Fe...

SuziCutie

•3 years ago

59 Replies

Ear infection again

Hi all, well I'm on my 4th prescription for antibiotics since January for ear infection, never had so many antibiotics until now, cant remember ever having...

Hi all, well I'm on my 4th prescription for antibiotics since January for ear in...

Hidden

•3 years ago

8 Replies

Can PMR cause fevers?

I've been here before with question about fever that starts around 6-7 pm goes upto 100-101 and is normal again in AM.The sweats have almist gone but fever has...

I've been here before with question about fever that starts around 6-7 pm goes u...

ancientprune

•3 years ago

9 Replies

“You are NOT Alone” - DVD made specifically for Patients, Family and Friends

You come out of a consultation, probably no longer than 15 mins. You have never heard of PMR or GCA, and are a bit bewildered and confused. It’s 13 years since...

You come out of a consultation, probably no longer than 15 mins. You have never ...

Skinnyjonny

•3 years ago

1 Reply

You are not alone: A special announcement made on behalf of jinasc about a very special DVD

‘You are NOT Alone” - A DVD made specifically for Patients, Family and Friends. You come out of a consultation , probably no longer than 15 mins. You have...

‘You are NOT Alone” - A DVD made specifically for Patients, Family and Friends. ...

PMRpro

Ambassador•3 years ago

22 Replies

Ultrasound scan of armpits tomorrow

Seen by registrar two weeks ago , slotted in early as symptomatic again. Shoulder and upper arms terrible at night, unable to get a good night's rest....

Seen by registrar two weeks ago , slotted in early as symptomatic again. Shoulde...

Pamela60

•3 years ago

12 Replies

Feeling defeated

So my rheumy thinks it’s «unlikely I have PMR. I have some osteoarthritis which is part of the pain. All my markers are low normal and my pain should be...

So my rheumy thinks it’s «unlikely I have PMR. I have some osteoarthritis which...

Here1am

•3 years ago

10 Replies

Alendronic acid query

Hi All, apologies if this has already been covered, but since being diagnosed with PMR 3 months ago, I was automatically prescribed alendronic acid, but thanks...

Hi All, apologies if this has already been covered, but since being diagnosed wi...

Coco63

•3 years ago

33 Replies

Too many ‘cooks in the kitchen’? Could my diagnosis be false?

Diagnosed with PMR in late 2010 - almost four years following my husband’s death. I have never been a good decision maker, so guess stress related to this may...

Diagnosed with PMR in late 2010 - almost four years following my husband’s death...

Elvisginger

•3 years ago

10 Replies

Another Scam

Latest scam - no end to what these scumbags will try! important - Official invitation for your Covid-19 Passport - UK Digital COVID-19 Certificate |...

Latest scam - no end to what these scumbags will try! important - Official invit...

artisam

•3 years ago

2 Replies

Could this be a PMR flare? Or Biologic infusion issue?

Hello everyone. Having been settled on 3mg Pred for many months - other than a short couple of increases whilst in hospital for Crohns (sick day rules) I...

Hello everyone. Having been settled on 3mg Pred for many months - other than a s...

Songbird69

•3 years ago

3 Replies

Stress - cortisol - light and rest

Brief resume - I’m 53 - dx PMR April 2019 symptoms bilateral shoulder pain. Muscle aches. Went from very fit to very slow and in constant pain. I’d had several...

Brief resume - I’m 53 - dx PMR April 2019 symptoms bilateral shoulder pain. Musc...

Daisyfield

•3 years ago

24 Replies

Blood Tests

Just a quick query, how often should you have ESR or CRP blood tests? When I was first diagnosed (about 11 years ago) I used to have them fairly regularly but...

Just a quick query, how often should you have ESR or CRP blood tests? When I was...

Hollybee21

•3 years ago

4 Replies

Itchy skin. PMR, Pred, or something else?

Hi All. On 27.5 mg pred down from 30 mg ten days ago and hoping to reduce to 25 mg this week. All OK do far but I have developed an itchy skin over the last...

Hi All. On 27.5 mg pred down from 30 mg ten days ago and hoping to reduce to 25 ...

LBM1953

•3 years ago

7 Replies

Insomnia

Hi I don’t know if it’s related to PMR at all but I’ve always been a great sleeper. But now I’ve developed insomnia, at first it was once or twice a month but...

Hi I don’t know if it’s related to PMR at all but I’ve always been a great sleep...

Abbey17

•3 years ago

41 Replies

Polymyalgia Rheumatica and Steroid Side Effects: New Findings

Interesting article I came across in a FB PMR group today: "A significant proportion of those with the condition were on low-dose steroids for many years....

Interesting article I came across in a FB PMR group today: "A significant propor...

AyJayBass

•3 years ago

34 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Shielders were eight times more likely to contract infection, study finds

Persistent numbness

How do I reduce my cpk levels and keep them low?

Has anyone been offered the Pneumococcal vaccine?

Need an explanation of shorthand please.

Trying turmeric and fish oil as anti-inflammatory

So what do I do now?

What is the prevelance of PMR and GCA?

Slap on the wrist

Stiffness in ribs / chest area

PMR and Biologics/Infusions

Creatine

knee pain

Update and everything you need, FAQ

Adrenal deficient

Ear infection again

Can PMR cause fevers?

“You are NOT Alone” - DVD made specifically for Patients, Family and Friends

You are not alone: A special announcement made on behalf of jinasc about a very special DVD

Ultrasound scan of armpits tomorrow

Feeling defeated

Alendronic acid query

Too many ‘cooks in the kitchen’? Could my diagnosis be false?

Another Scam

Could this be a PMR flare? Or Biologic infusion issue?

Stress - cortisol - light and rest

Blood Tests

Itchy skin. PMR, Pred, or something else?

Insomnia

Polymyalgia Rheumatica and Steroid Side Effects: New Findings

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