Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2021

Alendronic acid tablets

Although I was diagnosed with PMR over a year ago I was not prescribed alendronic acid tablets until a month ago due to an oversight at the surgery However I...

Although I was diagnosed with PMR over a year ago I was not prescribed alendroni...

AnniesRyder5

•3 years ago

9 Replies

Reduction

Hi I’m quite new to this site, my rheumatologist told me to find out all I needed to know here, my problem is I have reduced from 15mg when first diagnosed in...

Hi I’m quite new to this site, my rheumatologist told me to find out all I neede...

Peggy16

•3 years ago

7 Replies

Reactions after 1st Pfizer vaccine while taking tocilizumab for GCA

This is just to let others in a similar situation know that I had my first Pfizer vaccine 11 days ago (a week past Friday). My tocilizumab injection was due...

This is just to let others in a similar situation know that I had my first Pfize...

Frenchduck

•3 years ago

5 Replies

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Stomach problems

Hi all For the past two months my stomach has become very acid. I do take 40 mg of Pantoloc every morning. Anyone have any advice? I am on 4.5 mg pred in the...

Hi all For the past two months my stomach has become very acid. I do take 40 mg...

tinydes234

•3 years ago

16 Replies

TMD

Today went to the dentist after two months of jaw popping. First question Do you have Arthritis? He took X-rays and did exam and felt it was muscular known as...

Today went to the dentist after two months of jaw popping. First question Do you...

Robinsnest72

•3 years ago

14 Replies

Dose change

Hi all, spoke to dr today from tomorrow got to go from 10mg to 11mg for few wks due to pain from hips down to feet, not sure if I feel annoyed with myself...

Hi all, spoke to dr today from tomorrow got to go from 10mg to 11mg for few wks ...

Hidden

•3 years ago

3 Replies

Dizziness

Have tapered gradually from 20mg to 3mg over 15 months but started having dizzy spells which begin with tingling in lips, fingers and toes and then feeling...

Have tapered gradually from 20mg to 3mg over 15 months but started having dizzy...

granofthewest

•3 years ago

17 Replies

GCA and numbness in left arm

My brother in law with GCA has reduced pred 60mg to 20mg over 2 months - could there be a strong connection with sudden large weightless and numbness in left...

My brother in law with GCA has reduced pred 60mg to 20mg over 2 months - could t...

choirsinger1986

•3 years ago

3 Replies

Wired UP 24 X 7 ON PRED

Hi.On Pred 60 mgs for past 8 days and feel so ill.Have not slept at all for past 3 nights..not even 10 mins and I feel so wired up and pounding heart.Even as I...

Hi.On Pred 60 mgs for past 8 days and feel so ill.Have not slept at all for past...

LaPainting

•3 years ago

10 Replies

Technical issues: 504 error messages

Quite a few of you are experiencing intermittent "Bad Gateway 504" or 504 Gateway Timeout" error messages throughout the site. HealthUnlocked technical team...

Quite a few of you are experiencing intermittent "Bad Gateway 504" or 504 Gatewa...

Fran_Benson

Partner•3 years ago

32 Replies

Doctors dismiss my PMR

i was diagnosed about 6 years ago with PMR from clinical doctor he put me on steroids i was on high dose of prednisolone for 2 yrs . I was told i would be...

i was diagnosed about 6 years ago with PMR from clinical doctor he put me on ste...

amilou2006

•3 years ago

8 Replies

Appeal from PMRpro to the rest of you for help

For the last 2 weeks I have been unable to edit my posts or replies. I reported it 10 days ago and was assured that the bug would be attended to "as a...

For the last 2 weeks I have been unable to edit my posts or replies. I reported ...

PMRpro

Ambassador•3 years ago

27 Replies

In remission 👏👏👏

GCA ...... in remission , hooray ! Off of steroids now after 41/2 years , still having methotrexate weekly as I have Rheumatoid ,and will have to take blood...

GCA ...... in remission , hooray ! Off of steroids now after 41/2 years , still ...

Islandgirl50

•3 years ago

4 Replies

Is pred really the holy grail?

Ok I’ll admit it up front I’m confused, and that’s not the pred talking! Seven years in on this journey and still struggling to get below 12mg. I read every...

Ok I’ll admit it up front I’m confused, and that’s not the pred talking! Seven y...

Griggser

•3 years ago

11 Replies

Has anyone tried CBD oil for pmr pain

Wondering if anybody has had help from CPD oil whilst reducing prednisolone?

Bobbikins

•3 years ago

3 Replies

Facial Hair from steroids

Hi, I've been on prednisolone for about 6 months now and have got facial hair because of it. I just wondered if anyone who got this has found anything to...

Hi, I've been on prednisolone for about 6 months now and have got facial hair be...

Roryfederer

•3 years ago

43 Replies

Taking Vit D at the same time as prednisolone

Apologies if this had been asked before. In your opinion is it OK to take Vit D alone, i.e. without calcium, at the same time as prednisolone? Thanks

Apologies if this had been asked before. In your opinion is it OK to take Vit ...

Pr0jection

•3 years ago

4 Replies

Can reducing meds be the cause feeling like I’m stressed and in fight or flight mode?

Hi everyone may not be at all associated but since I reduced to 9 mg from 10 mg originally 15 mg reducing since October. I am now suffering for past 2 weeks...

Hi everyone may not be at all associated but since I reduced to 9 mg from 10 mg ...

Littlejan22

•3 years ago

2 Replies

Muscles

Hi all sorry not been on for a while even though I do read the posts. I got down to 4mg and tried my best for 2 weeks with no luck flare ups all over 😭😭 went...

Hi all sorry not been on for a while even though I do read the posts. I got down...

Margaret1951

•3 years ago

23 Replies

Would love your expert advice

I have read a bit about posts regarding piriformis syndrome, but am unsure as to that is what my issue is. Basically since Wed I have had pretty bad issues...

I have read a bit about posts regarding piriformis syndrome, but am unsure as to...

Sophiestree

•3 years ago

30 Replies

Sudden stiffness.

Hi all - here for advice again. I have done very well in terms of PMR flares / stiffness for a long time now. Other health issues not so much I have managed...

Hi all - here for advice again. I have done very well in terms of PMR flares / s...

Slosh

•3 years ago

9 Replies

PMR Journey

Reading everyone’s posts every day made me think about my diagnosis just over 3 years ago. I know we have all experienced such a mixed bag of medical care. But...

Reading everyone’s posts every day made me think about my diagnosis just over 3 ...

Abbey17

•3 years ago

59 Replies

Blistering

Hi all - I had no idea what to call this post but yesterday I had a tiny cut to my finger whilst I was using a blade to score my bread - it bled for most of...

Hi all - I had no idea what to call this post but yesterday I had a tiny cut to ...

Fiddlersmum

•3 years ago

7 Replies

Pain in heels

After tapering down from 8mg to 7 two weeks ago I developed some muscle pain in my legs so quickly jumped back up to 8mg. That has almost taken care of the leg...

After tapering down from 8mg to 7 two weeks ago I developed some muscle pain in ...

Caloo650

•3 years ago

14 Replies

Fuzzy Brain whilst on Prednisolone for PMR

I was diagnosed with PMR in October 2020 and have been tapering down from 30mg of Prednisolone, now on 17.5mg. (Although still in quite a bit of pain and...

I was diagnosed with PMR in October 2020 and have been tapering down from 30mg o...

Hidden

•3 years ago

26 Replies

Tapering after a flare

Hi all, I have just discovered this forum and have been devouring the information here. So many of my questions re side effects, etc. have been answered in...

Hi all, I have just discovered this forum and have been devouring the informatio...

Babysingstheblues

•3 years ago

33 Replies

An explanation for my absence

First of all I apologize for any misspellings and grammatical errors that will come from my dictating this to my phone. Today is Saturday and I've been in the...

First of all I apologize for any misspellings and grammatical errors that will c...

Grammy80

•3 years ago

40 Replies

Jaw Popping

Hello All. I have been suffering from jaw popping and I wrote about this a while ago. Just giving update. It has now been two months and I have had about 7...

Hello All. I have been suffering from jaw popping and I wrote about this a while...

Robinsnest72

•3 years ago

3 Replies

TIA

I suffer with GCA I've never got lower than 20mg of pred I've just come out of hospital after having a TIA I'm 71yrs old such a shock , I'm nervous all the...

I suffer with GCA I've never got lower than 20mg of pred I've just come out of h...

Touting

•3 years ago

15 Replies

Flaring after Covid vaccine

Hello all...I had my second Covid vaccine this past Thursday at noon. That evening I just had a sore arm and fatigue. Yesterday (Friday) the fatigue was much...

Hello all...I had my second Covid vaccine this past Thursday at noon. That eveni...

bunch1974

•3 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2021

Alendronic acid tablets

Reduction

Reactions after 1st Pfizer vaccine while taking tocilizumab for GCA

Stomach problems

TMD

Dose change

Dizziness

GCA and numbness in left arm

Wired UP 24 X 7 ON PRED

Technical issues: 504 error messages

Doctors dismiss my PMR

Appeal from PMRpro to the rest of you for help

In remission 👏👏👏

Is pred really the holy grail?

Has anyone tried CBD oil for pmr pain

Facial Hair from steroids

Taking Vit D at the same time as prednisolone

Can reducing meds be the cause feeling like I’m stressed and in fight or flight mode?

Muscles

Would love your expert advice

Sudden stiffness.

PMR Journey

Blistering

Pain in heels

Fuzzy Brain whilst on Prednisolone for PMR

Tapering after a flare

An explanation for my absence

Jaw Popping

TIA

Flaring after Covid vaccine

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