Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2020

Shingles and vaccinations

Sorry folks.... this is a long post !! The Shingles vaccine used in the UK is Zostavax, available to over 70s as a single dose. It contains...

Sorry folks.... this is a long post !! The Shingles vaccine used in...

Suzita76

•3 years ago

19 Replies

Suspected GCA - Seeking advice

Hello - I am in need of your advice/opinion on a suspected case of Temporal Arteritis / Giant Cell Arteritis. I am only 35 years old ( live in USA), but...

Hello - I am in need of your advice/opinion on a suspected case of Temporal Arte...

HealMe1111

•3 years ago

31 Replies

Diabetes update

Hello All, Just thought I’d share with you the results of my two months on the diabetes awareness course, courtesy of the OVIVA organisation in conjunction...

Hello All, Just thought I’d share with you the results of my two months on the...

Rokerman

•3 years ago

49 Replies

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Bilateral pain just below scapulas.

Hi I have pain like a stabbing ache on my back as above. If I press on it it’s extremely sore. Is this a PMR thing pls, I’ve had it for 3 months now and chest...

Hi I have pain like a stabbing ache on my back as above. If I press on it it’s e...

Wraysbury

•3 years ago

5 Replies

Tingling in muscles

Hi. I have developed a tingling in muscles around inside knees. Started with left but now on right too. It started a few weeks ago and initially thought it was...

Hi. I have developed a tingling in muscles around inside knees. Started with lef...

Suedeshayes

•3 years ago

3 Replies

Cold legs

Hi , did the xtra pred, no change in pain but very shaky hands, and cheeks appear a bit red and feel tender, dropped off the xtra back to 15mg. Suddenly...

Hi , did the xtra pred, no change in pain but very shaky hands, and cheeks appea...

Shandkydd

•3 years ago

6 Replies

NHS eye service

I was reading one of these very useful threads which mentioned the existence of an NHS eye service which could be useful for GCA patients. I can't for the life...

I was reading one of these very useful threads which mentioned the existence of ...

humlies

•3 years ago

3 Replies

Hi.I am on 8mg period.

Hi.i have just gone back to work,for mon and tue is it safe to carry on,as just had 8 months off.but we have gone back into lockdown,I work in s care home but...

Hi.i have just gone back to work,for mon and tue is it safe to carry on,as just ...

Flosy

•3 years ago

4 Replies

Advice on reduction whilst ESR higher

Hi, my last two blood tests showed ESR at 25 and I would like to try a reduction from 4mg to 3-1/2mg should I wait until ESR is lower? Advice appreciated,...

Hi, my last two blood tests showed ESR at 25 and I would like to try a reduction...

Jo1947

•3 years ago

15 Replies

Shaky and faint in the emorning.

Hi All, I am currently on 5.5 mg - for last 4 days. The last two mornings I have been rather shaky and faint. I have had coffee both morning - but this...

Hi All, I am currently on 5.5 mg - for last 4 days. The last two mornings I hav...

Slosh

•3 years ago

40 Replies

Blepharitis

For many months my eyes tended to be a little itchy especially the right side but not tearing. I’ve had dry eyes for years and use cyclosporine eye drops....

For many months my eyes tended to be a little itchy especially the right side bu...

Karenjaninaz

•3 years ago

21 Replies

Pmr remission success

Hi first of all this site has helped me so much already since I joined, can somebody tell me what percentage of people with PMR achieve remission and get of...

Hi first of all this site has helped me so much already since I joined, can some...

Amilee

•3 years ago

18 Replies

Shielded they done the right thing

Well my work have done the right thing and have decided to shield me for the month.I thought i would have a Battle on my hands as i said in another post but...

Well my work have done the right thing and have decided to shield me for the mon...

rustyrussell

•3 years ago

13 Replies

Another Methotrexate question!

Hi, I’m currently taking 5&1/2mg prednisone doing a very slow taper and MTX 15mg weekly. My liver enzyme ALT is at the highest level and I would really like to...

Hi, I’m currently taking 5&1/2mg prednisone doing a very slow taper and MTX 15mg...

EeneeBee

•3 years ago

10 Replies

How soon can I start the slow taper?

I was diagnosed in August after 4 months of pain. I was put on 15mg prednisolone for 3 weeks, then 10mg for 4 weeks, and then reduced to 7.5mg. My...

I was diagnosed in August after 4 months of pain. I was put on 15mg prednisolon...

Pr0jection

•3 years ago

27 Replies

All the tick boxes for GCA with ringing in the ears?

Hello everyone, After nearly three weeks since the preliminary diagnosis for GCA and taking 40 mgs Prednisolone, temporal arteries are still pronounced though...

Hello everyone, After nearly three weeks since the preliminary diagnosis for GCA...

strawclutching

•3 years ago

8 Replies

LDN

Sorry not sure if I have asked this before 🙈🙈🙈but does anyone take LDN along with their prednisone and if so how do you did it TIA 😘😘😘

Sorry not sure if I have asked this before 🙈🙈🙈but does anyone take LDN along ...

Maggie69

•3 years ago

10 Replies

Scared

Hi everyone just returned from my rheumatologist routine appointment I have PMR and was doing well down to 6 mg prednisone started at 20 in April I was...

Hi everyone just returned from my rheumatologist routine appointment I have PMR ...

Mychis

•3 years ago

24 Replies

Anaemia and PMR/GCA

I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and...

I am new here and this has probably come up before but I am trying to find out ...

springeramber

•3 years ago

26 Replies

Hydroxychloroquine treatment for PMR?

I have just started hydroxychloroquine (HCQ) treatment after my rheumy rejected an original PMR diagnosis in favour of connective tissue disease. Under her...

I have just started hydroxychloroquine (HCQ) treatment after my rheumy rejected ...

Hidden

•3 years ago

31 Replies

Dull Pain in upper back , shoulders , and diaphragm .

I was prescribed Prednisone by my Doctor and started taking prednisone at 20 mg, at the end of July and styed on 20 Mg for two weeks , I was having a hard...

I was prescribed Prednisone by my Doctor and started taking prednisone at 20 mg...

Athena2020

•3 years ago

13 Replies

Biphosphonates, yey or ney

Hello o wise and wonderful ones. I put in an email prescription request for more Pred this week and included my diary spreadsheet which has a complete record...

Hello o wise and wonderful ones. I put in an email prescription request for more...

Bcol

•3 years ago

30 Replies

Methotrexate question

I’ve tapered to 6 mg of pred over 3 and 1/2 years for PMR. I’m taking 15 mg of MTX 1x/wk. MTX is a steroid sparer and at what dose of prednisone can you...

I’ve tapered to 6 mg of pred over 3 and 1/2 years for PMR. I’m taking 15 mg of M...

karegodd

•3 years ago

21 Replies

Is it normal to feel tired when reducing. Also my head tingles

Hi everyone I was diagnosed with PMR July 2019. I hadn’t heard of it before my diagnosis. I was reducing successfully by 1mg per month until I got to 5mgs. I...

Hi everyone I was diagnosed with PMR July 2019. I hadn’t heard of it before my...

Darlingbuds1

•3 years ago

21 Replies

US election & a reminder about no politics

Hi everyone, just a reminder in advance as America votes for a president that however it unfolds, this isn't the place to come and vent about the outcome -...

Hi everyone, just a reminder in advance as America votes for a president that ho...

Fran_Benson

Partner•3 years ago

Top of foot pain following hip replacement

I'm 7 weeks into my recovery from left anterior hip replacement. I'm doing ok except for pain on the top of my left foot. I'm not using any crutches but could...

I'm 7 weeks into my recovery from left anterior hip replacement. I'm doing ok ex...

Golf123

•3 years ago

6 Replies

Celery Juice to fight inflammation

Is there anyone on here who has any experience with drinking fresh celery juice every morning- for its general healing powers as well as defence against...

Is there anyone on here who has any experience with drinking fresh celery juice...

Siral

•3 years ago

32 Replies

Fight With a Star Picket......

Three weeks ago I fell over a short star picket which was acting as the stand pipe for our garden hose. It had a jagged rusty edge. I kind of hooked onto it...

Three weeks ago I fell over a short star picket which was acting as the stand pi...

Louisa1840

•3 years ago

15 Replies

Prednisone fat face

I am hopeful that after my Pred is reduced gradually of course my face will stop looking like I am “stuffing nuts for winter”. I think losing the mid drift...

I am hopeful that after my Pred is reduced gradually of course my face will stop...

Darcy2000

•3 years ago

22 Replies

Prof Dasgupta webinar re diagnosis of PMR

Professor Dasgupta is running a webinar on 25th November 3-4pm GMT on the Approach to Diagnosis of PMR. It's primarily aimed at health professionals although...

Professor Dasgupta is running a webinar on 25th November 3-4pm GMT on the Approa...

Fran_Benson

Partner•3 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Shingles and vaccinations

Suspected GCA - Seeking advice

Diabetes update

Bilateral pain just below scapulas.

Tingling in muscles

Cold legs

NHS eye service

Hi.I am on 8mg period.

Advice on reduction whilst ESR higher

Shaky and faint in the emorning.

Blepharitis

Pmr remission success

Shielded they done the right thing

Another Methotrexate question!

How soon can I start the slow taper?

All the tick boxes for GCA with ringing in the ears?

LDN

Scared

Anaemia and PMR/GCA

Hydroxychloroquine treatment for PMR?

Dull Pain in upper back , shoulders , and diaphragm .

Biphosphonates, yey or ney

Methotrexate question

Is it normal to feel tired when reducing. Also my head tingles

US election & a reminder about no politics

Top of foot pain following hip replacement

Celery Juice to fight inflammation

Fight With a Star Picket......

Prednisone fat face

Prof Dasgupta webinar re diagnosis of PMR

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