Sorry not sure if I have asked this before πππbut does anyone take LDN along with their prednisone and if so how do you did it TIA πππ
LDN: Sorry not sure if I have asked this before... - PMRGCAuk
LDN
We are currently deliberately suppressing our immune system because it is attacking us. Isnβt it contradictory to take something to build it up? It has gone rogue.
This is link to a previous post -
We have had a couple of people in the past who tried LDN for PMR - they didn;t come back and tell us it was a great success. I believe it is sometimes used in one of the Scandinavian countries - again, if it worked well I'm sure they would have published some evidence.
I know one person said that they had had it for a year while on pred and it did not make a blind bit of difference.
I trialled it for a while about 10 years ago? but it made maybe just a littlecdiff..maybe no more than a low placebo effect. However, after a while I think it caused anxiety? (I think from memory) so I had to stop. I tried it two or three times..titrated it myself. I was not on pred at the time either so not much help but I doubt it will help.