Night Sweats: Hello Has anyone experienced... - PMRGCAuk

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Night Sweats

Athena2020
Athena2020

Hello

Has anyone experienced increased night sweats on prednisone. Any information would be greatly appreciated.

Thank you

32 Replies
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PMRpro
PMRproAmbassador

Yes - but I also had night sweats with PMR and now increases in night sweats in the early morning are a sure sign that the PMR is flaring.

Athena2020
Athena2020 in reply to PMRpro

Do you get PMR flare ups even though you are on prednisone ?

PMRpro
PMRproAmbassador in reply to Athena2020

Yes - there are two reasons for flares: one is that you reduced too far or too fast and the other is due to the underlying autoimmune disorder that causes the symptoms we call PMR become more active for some reason. That can include stress or being unwell with an infection or trauma. The pred has no known direct effect on the actual disease process - it just mops up the inflammation and relieves the symptoms.

Athena2020
Athena2020 in reply to PMRpro

Thank you very much for your information .

Jan_Noack
Jan_Noack in reply to PMRpro

thanks for that info. I get those early morning night sweats...

yorkieme
yorkieme in reply to PMRpro

Sorry to break the thread but I promise to be brief. This is the second time I have read your comment about reasons for sweating, i,e, the inflammation is still rampant.

I suffer quite a lot during the day with sweat,( not every day or all day,)sometimes the type resulting from heavy exercise/working etc, but other times that cold clammy horrible sweat.

It has yet to be decided if I have PMR or not,the original presenting symptoms were typical but I haven't had a repeat since February this year but my rheumy always uses the phrase systemic inflammation.

Could it be as you say the sweating is the inflammation still rampant but not necessarily PMR ? I am taking 100mg Zomorph/day with Oramorph as a back up when needed,this to cover a broken T4 and crushed disc L4 with surrounding damage. 15mg Pred' for PMR ? Bumetanide for Odema,Omeprazole,Folic and Alendronic acid,and now Methotrexate. I also have Osteoporosis of the spine so Adcal and D3.

Could the sweating just be a side effect to some or all or a mix of the above medication ?

I really would appreciate any advice as I am having one almighty fight trying to understand why nine months on I don't know for sure what I do have,or what I am actually being treated for.Big thank you in hope rather than anticipation.

PMRpro
PMRproAmbassador in reply to yorkieme

I know it isn't much consolation - but not so long ago the average time to diagnosis for autoimmune disorders was as much as 10 years! No idea if it has improved now. And sweats are a very common symptoms in a/i disease. So yes - that's what your rheumy is saying, there is some inflammation somewhere in the body but he can't tell where and either the 15mg pred may not be enough or, more likely, the actual a/i disorder is the cause of the sweats.

It is awful I know - it is silly but having a label is somehow a comfort isn't it?

yorkieme
yorkieme in reply to PMRpro

Thank you for the reply and apologies to Athena2020 for butting in.

It does help sometimes to have a label but I find more and more the one major piece of the jigsaw often missing with this disease is a reliable source of information, fortunately we have one in people like you and many others on this forum.

Once again thank you. By the way how is Mr PMRpro,or as you ladies often prefer the OH. I think between you a book would be worth reading. Wish you both all the best for a nice week end.

PMRpro
PMRproAmbassador in reply to yorkieme

Dr PMRpro is doing rather better than most of 2020! Taking a while but getting there!

yorkieme
yorkieme in reply to PMRpro

Good to hear it. Keep fighting,both of you. x

I sweat day and night. On exercise, sweat a lot. I think Prednisone makes us sweat more.

Athena2020
Athena2020 in reply to alvertta

I found that as well , during the day when it is hot.

Athena2020
Athena2020 in reply to alvertta

Thank you for your reply

Bcol
Bcol in reply to alvertta

Ditto, can go with that.

Yes, especially when on 15mg of pred, it's happening less often at lower doses. Physical activity brings it on in the daytime. I don't remember this happening before I was on pred.

PMRpro
PMRproAmbassador in reply to Purpleazalia

I think it probably depends on how quickly you got a diagnosis - and whether you were perimenopausal when PMR appeared ;)

Yes pretty much every night around 5am unless I've been extra tired, then I don't wake up until a more normal time and I'm sweaty and clammy because I didn't wake up to fan some air under the quilt!

Hi Athena ,you will see plenty of posts on here RE sweating ! My sweating is not just night sweats it can happen at any time of the day or night with me ! Just to give you an example. Thursday was the first cool /wet day we have had this year, most people had a jacket/ mac on . I had a tshirt cotton trousers and sandles ! I had been walking slowly for about 10 minuets . I know when its coming as a hot flush starts to creep up and then thats it the flood gates open ! i feel as i have a heater strapped to my back ! I still cant work out about the Pred v PMR All i know is that this is my second bad flare up of PMR and both times i have had the awful side affects of sweating . If its any help it does lesson as you drop the dose . Plus last time when i was off Pred the sweating stopped ! So i think its the pred with me ! Sorry for the long reply , hope this helps as i really feel strongly about this. Awful side affect ! Good luck , it does get better.

PMRpro
PMRproAmbassador in reply to Viv54

Light bulb moment: the sweats improving as you lower the pred may also be because the disease activity is easing off - and allowing you to manage on less pred.

Viv54
Viv54 in reply to PMRpro

Exactly as I said who knows , it's a mystery that sadly non of us know the real answer and I'm beginning to find out neither to the professionals😟

PMRpro
PMRproAmbassador in reply to Viv54

You can say that again!!!

Athena2020
Athena2020 in reply to Viv54

I agree I do not think the professionals know either .

Yes! You may want to read some if the ‘related posts’ as this topic arises so much. I commented at length in about 4 of them. Short answer, dreadful head sweats during day, soaking whole body sweats at night. No longer convinced it’s the pred. as reduced from 15mg to 8mg & no different. Think head sweats in day seem to occur when I overdo it or do something the body doesn’t ‘like’, gardening, housework etc. Doesn’t happen when go for long walks! It was one of the first symptoms that I had a new disease last year. Hope this helps, I’d love to know if it is the pred, or the disease telling me to stop what I’m doing, or both? Good luck!

Athena2020
Athena2020 in reply to Pixix

I too feel a lot sweats when I am doing housework . Thank you for your reply

Pixix
Pixix in reply to Athena2020

I did wonder if it’s mentally induced as I hate housework...but I love gardening & have the sane problem there, too! I think housework uses a lot of muscles, some which aren’t used when hiking or cooking, for example, so my body revolts against it!

PMRpro
PMRproAmbassador in reply to Pixix

I think anything we struggle with doing has an effect. I've just been trying to work out what to do about our landlord insurance - something I have only ever done by phone but they have only given me an 0345 number and that doesn't work from here of course! Despite the fact the policy is supposedly for UK landlords who live abroad...

I can feel the heat welling up - and now I've postponed the evil moment I feel better.

Pixix
Pixix in reply to PMRpro

Interesting, thanks. Impossible to avoid ‘situations’ like that occurring, that’s for sure, I’ve never been one to suffer from stress, but bound to struggle in our current environment a bit, too! S x

PMRpro
PMRproAmbassador in reply to Pixix

I never "did" stress either - it was a manifestation of PMR, I can remember the first "heated" phone call with a rather esasperating client! We normally got on well and had worked together for years but he had got himself into a right fankle with timing on a submission and expected me to to catch up the missing time by translating something overnight that would take 3 days to type, never mind adding in the additional time for translation!!!! In the meantime it has improved a lot but there are things I simply can't do.

On a brighter note - finally got through to the west of Scotland and a very sensible young man!! All sorted - and an online account now set up which may or may not make it easier in future!

Pixix
Pixix in reply to PMRpro

Interesting...food for thought...& glad you got through to Scotland & got sorted, that’s good news! S x

I sweat early morning 4am-8am in cleavage and around neck. It’s been like that since I was diagnosed and put on pred. More annoying than uncomfortable and I’m glad to only have this and a few other minor side effects.

I get night sweats, morning sweats, afternoon sweats and evening sweats. It is a misery. Some days are better than others. I was on actemra and that caused awful sudden sweats. I have been off of it for 4 weeks or so but the really bad sweats continue.

Good Luck with it all.

Pixix
Pixix in reply to Linny3

Sympathy & understanding! I agree, it’s a misery. Plus I simply don’t have the energy to change the bed linen every couple of days! Take care.

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