Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,312 members • 38,049 posts

All posts for July 2020

Knee Satsuma

... and so the knee saga continues. Tried painkillers. No difference whatsoever. I’m now in excruciating pain. So does that mean it’s a PMR withdrawal...

... and so the knee saga continues. Tried painkillers. No difference whatsoever...

Singr

•4 years ago

12 Replies

Should Pred take away my tiredness or not?

Hello All, I've only posted once before but I read the post most days and see that many are about tapering Pred. I was diagnosed with PMR in January 2020 and...

Hello All, I've only posted once before but I read the post most days and see th...

Safariqueen

•4 years ago

7 Replies

ADVICE PLEASE

I have both PMR and sero negative inflammatory Arthritis as well as OsteoArthritis in knee. At the beginning of May Hydroxycloroquine was cut from 400 g to...

I have both PMR and sero negative inflammatory Arthritis as well as OsteoArthrit...

PMRGCA19

•4 years ago

10 Replies

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Burning scalp

Hi there, me again, my last post was a couple of weeks ago regarding headaches, cheek pain etc, I had my blood test results, my ESR was 7 and my CRP was 12.5,...

Hi there, me again, my last post was a couple of weeks ago regarding headaches, ...

Poppylop

•4 years ago

16 Replies

How confusing!!!

Having been on the shielded list for the past 3 months have today received a letter from the NHS telling me the new sheilding rules from 6th July and 1st...

Having been on the shielded list for the past 3 months have today received a let...

jaycee444

•4 years ago

36 Replies

Drastic update

I’ve was diagnosed about a year ago as I had all the classic symptoms. I have gradually reduced my pred from 15 to 4 but with flare ups and steps back along...

I’ve was diagnosed about a year ago as I had all the classic symptoms. I have gr...

Fozzes

•4 years ago

12 Replies

Eyes burning, bloodshot, blurred eye sight.

I woke up with a shock late last night, with incredibly painful eyes. They appeared very bloodshot and were watering copiously. I was unable to open the worst...

I woke up with a shock late last night, with incredibly painful eyes. They appea...

SheffieldJane

•4 years ago

57 Replies

Follow up to soft swelling in neck ? Steroids

Firstly thank you to everyone for your helpful replies to my query. What would I do without you! My blood tests are all normal (except for slightly raised...

Firstly thank you to everyone for your helpful replies to my query. What would I...

Vaggers

•4 years ago

5 Replies

Should I see a Rheumatologist?

I was diagnosed with PMR in January. Started on Prednisolone 30mg and now down to 20mg. I am also on blood thinners, anti cholesterol, stomach protection and...

I was diagnosed with PMR in January. Started on Prednisolone 30mg and now down ...

Chuz

•4 years ago

35 Replies

Follow up question to high CRP

When there are few symptoms how to know if the high inflammation is from which disease? Maybe GCA is stable and no need to go on Actemra

When there are few symptoms how to know if the high inflammation is from which d...

Darcy2000

•4 years ago

4 Replies

High CRP?

I have both PMR and GCA I am on a tapering Pred schedule very slowly and currently I am at 17.5 having started at 50 about a year ago. Feel generally well with...

I have both PMR and GCA I am on a tapering Pred schedule very slowly and current...

Darcy2000

•4 years ago

6 Replies

22 months after TIA/GCA diagnosis

I wrote to you on 18/6/19 as I was absolutely panicking, nobody seemed to know what to do and the general correspondence became an enormous help, and now,...

I wrote to you on 18/6/19 as I was absolutely panicking, nobody seemed to know w...

ragdollcat4

•4 years ago

5 Replies

Back pain ?

Morning all ! I have experienced lower back pain centre spine area, so when i bend forward i have severe pulling stretching pain, for last five weeks. Its with...

Morning all ! I have experienced lower back pain centre spine area, so when i be...

Gellybabie

•4 years ago

3 Replies

Lymphatic drainage massage

Just wondering If anyone has tried lymphatic drainage massage or dry brushing as a way of flushing toxins out of your system to help with inflammation (in...

Just wondering If anyone has tried lymphatic drainage massage or dry brushing as...

PmrQ

•4 years ago

5 Replies

Tingling in jaw

I feel like I’ve read that some others with PMR have experienced tingling in their jaws. Is that correct?

I feel like I’ve read that some others with PMR have experienced tingling in the...

Whitner

•4 years ago

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Hives

Does anyone suffer with Hives on prednisolone and itching . I amTapering down . Now on 7mgd

Does anyone suffer with Hives on prednisolone and itching . I amTapering down . ...

Caradomben

•4 years ago

14 Replies

CBD OIL

I have read a lot about CBD oil and know some of you take it. But I just found this article that said it interfers with prednisone making it stronger. Do you...

I have read a lot about CBD oil and know some of you take it. But I just found t...

yogabonnie

•4 years ago

8 Replies

ANOTHER FLARE + LOW HAEMOGLOBIN

After 4-1/2 years I thought I was about clear of PMR when in mid-May I managed to taper to zero prednisolone. I felt all right for two weeks and then the...

After 4-1/2 years I thought I was about clear of PMR when in mid-May I managed t...

RolyB

•4 years ago

4 Replies

Tired and stiff with a normal ESR

Hi. I think I need a bit of help. I tapered from 10 to 9 mg of pred over the 26 days slow taper and have been on 9 for two weeks. Stiffness and aches have...

Hi. I think I need a bit of help. I tapered from 10 to 9 mg of pred over the 26 ...

Seraphina56

•4 years ago

13 Replies

Meeting up

Hello to all you lovely people. As some of you will know,I ve moved to Worthing for a new job. I m having real problems with my doctors surgery,not getting any...

Hello to all you lovely people. As some of you will know,I ve moved to Worthing ...

Canarylady

•4 years ago

18 Replies

Rheumy nurse looses the plot (I think)

I called rheumy a few weeks ago to say I was not going to take my Methotrexate as, in March, my GP told me to pause it during a nasty (?!?) chest infection....

I called rheumy a few weeks ago to say I was not going to take my Methotrexate a...

Dontwannabesick

•4 years ago

24 Replies

Dizziness

This is my first post on this forum I was diagnosed with PMR in January and was initially taking 30 mg of pred ,I have been reducing it gradually since then...

This is my first post on this forum I was diagnosed with PMR in January and was ...

BabiBach

•4 years ago

10 Replies

Tapering

I know alot has been asked and answered about tapering and have read very interesting and informative advice on this forum. I'm on 6mg pred now, reduced...

I know alot has been asked and answered about tapering and have read very intere...

granofthewest

•4 years ago

2 Replies

Tapering down from Prednisone

Under GP instruction I am tapering down my dose of prednisone from 2.5mg to 2mg a day , resulting in agony in all the usual places , but I am most concerned...

Under GP instruction I am tapering down my dose of prednisone from 2.5mg to 2mg ...

Bagama

•4 years ago

8 Replies

Kate Gilbert’s book. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition.

I just had to write to say how good this book is and I couldn’t recommend it more highly. I know many of you will already know it well but I’ve only just read...

I just had to write to say how good this book is and I couldn’t recommend it mor...

Seraphina56

•4 years ago

14 Replies

Medication choice?

Hello. I've not posted before but read all comments with interest. I was diagnosed initially with PMR in October but it has now progressed to Polyarthritis and...

Hello. I've not posted before but read all comments with interest. I was diagnos...

dottydoris28

•4 years ago

4 Replies

Update on arm pain & dizzy/faint

Completed 14 day heart monitor. Little dizzy spells but no fainting while on it. Electrophysiologist said doesn't feel pacemaker is needed. Yippee! Said it's...

Completed 14 day heart monitor. Little dizzy spells but no fainting while on it....

Spanky2019

•4 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

Knee Satsuma

Should Pred take away my tiredness or not?

ADVICE PLEASE

Burning scalp

How confusing!!!

Drastic update

Eyes burning, bloodshot, blurred eye sight.

Follow up to soft swelling in neck ? Steroids

Should I see a Rheumatologist?

Follow up question to high CRP

High CRP?

22 months after TIA/GCA diagnosis

Back pain ?

Lymphatic drainage massage

Tingling in jaw

Hives

CBD OIL

ANOTHER FLARE + LOW HAEMOGLOBIN

Tired and stiff with a normal ESR

Meeting up

Rheumy nurse looses the plot (I think)

Dizziness

Tapering

Tapering down from Prednisone

Kate Gilbert’s book. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition.

Medication choice?

Update on arm pain & dizzy/faint

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