Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2020

hypnotism

Has anyone tried hypnotism as a means of reducing stress? I strongly suspect excess stress is leading to returning PMR symptoms for me. I had stopped smoking...

Has anyone tried hypnotism as a means of reducing stress? I strongly suspect ex...

ignatz

•4 years ago

12 Replies

Sore tongue linked to Pred and/or GCA?

For some months now I have had a really sore tongue .. feels like I’ve eaten something that’s too hot or keot a fizzy sweet on my tongue. Initially GP thought...

For some months now I have had a really sore tongue .. feels like I’ve eaten som...

Phoenix51

•4 years ago

10 Replies

Laxatives

There seem to be two kinds of laxative. Lactulose which comes in liquid form in a bottle and the other is a white powder which comes in sachets. Does anyone...

There seem to be two kinds of laxative. Lactulose which comes in liquid form in ...

prunus

•4 years ago

23 Replies

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Another funny photo

Who can relate?

tangocharlie

•4 years ago

8 Replies

How long for increased steroids to work?

Hi. I tapered from 10 to 9 of Pred over a month and seemed to have all the stepmoms of a flare. Desperately tired and weak with aching across my hips. And...

Hi. I tapered from 10 to 9 of Pred over a month and seemed to have all the stepm...

Seraphina56

•4 years ago

8 Replies

Update on setback.

FIRST. THANK YOU SO MUCH FOR ALL THE KIND WORDS OF ENCOURAGEMENT. YOU MADE ME CRY!! A happy cry. Day 2. Another 1000 mg prednisone by IV at the hospital....

FIRST. THANK YOU SO MUCH FOR ALL THE KIND WORDS OF ENCOURAGEMENT. YOU MADE ME C...

alvertta

•4 years ago

23 Replies

PMR pain due to stress

I was diagnosed with PMR in mid May. I was prescribed 15mg Prednisolone and it was miraculous. The pain disappeared really quickly and I feel 'normal'. I...

I was diagnosed with PMR in mid May. I was prescribed 15mg Prednisolone and it ...

Henrynumber3engine

•4 years ago

21 Replies

Experiences of recovery after gall bladder removal?

How long does it take for your body to adjust to no gall bladder and the continuous stream of bile into the gut? What are other peoples experiences. I am a...

How long does it take for your body to adjust to no gall bladder and the contin...

HILG

•4 years ago

5 Replies

So many questions..re PMR

Hello from Canada..1st post..full disclosure I am a Retired Registered Nurse who up until three weeks ago had never had any exposure to this disease..I was...

Hello from Canada..1st post..full disclosure I am a Retired Registered Nurse who...

Knitwit2020

•4 years ago

36 Replies

Help sleep eludes me

Here I am. It's 2am here in Sydney. I went to bed at 10am and I'm still awake. I guess it's the recent start on 30mg of pred following diag of GCAand PMR. Does...

Here I am. It's 2am here in Sydney. I went to bed at 10am and I'm still awake. I...

Caloo650

•4 years ago

53 Replies

How am I doing?

So first week down and I'm feeling much better. Sharp pain in my shoulders gone as has that horrible deep ache down my arms and into my wrists. I go to bed...

So first week down and I'm feeling much better. Sharp pain in my shoulders gone ...

artisam

•4 years ago

24 Replies

Trapped on prednislone

I’ve been on pred for 6.5 for pmr I’ve got as low as 6.5mg and have no problems from pmr symptoms but always start to have mental health problems I notice the...

I’ve been on pred for 6.5 for pmr I’ve got as low as 6.5mg and have no problems ...

Hidden

•4 years ago

13 Replies

Is it returning, am I paranoid ?

GCA diagnosed about 5 years ago. Biopsy was insufficient so diagnosis on basis of symptoms. I had Ben on pred for 6 week for Pmr by then anyway any the...

GCA diagnosed about 5 years ago. Biopsy was insufficient so diagnosis on basis...

doubtfully

•4 years ago

15 Replies

Newby seeks advice: what to do next after failed course of prednisone to treat PMR?

I was diagnosed with PMR a bit over a year and 4 months ago (actually, I deduced it myself from internet research, and my primary doctor agreed with my...

I was diagnosed with PMR a bit over a year and 4 months ago (actually, I deduced...

benhemp

•4 years ago

5 Replies

Bad Flare when I thought it was over

I got down to 0 after 4 years but pain continued to grow. I was on 2 mg and my ra felt it was just osteoarthritis and said add tylenol. Big mistake I want no...

I got down to 0 after 4 years but pain continued to grow. I was on 2 mg and my r...

Ronswife

•4 years ago

11 Replies

Set back.

I was down to 9 mg. GCA. Started at 60 October 2018. Today right eye sight started disappearing from the bottom 1/3. Off to emerg. Saw Opthomologist who put...

I was down to 9 mg. GCA. Started at 60 October 2018. Today right eye sight star...

alvertta

•4 years ago

58 Replies

CRp

Sometimes I think I will never understand this illness, 6 years of raised CRP 185 at the onset of GCA, I was told by my first Rheumatologist that it may never...

Sometimes I think I will never understand this illness, 6 years of raised CRP 18...

EdithWales

•4 years ago

12 Replies

Are there other medications to take for PMR other than prednisone ?

Im currently taking 8 mg of prednisone and doing nicely at that level . My blood work showed my glucous levels are a bit high. My rhumi suggested in an email...

Im currently taking 8 mg of prednisone and doing nicely at that level . My blood...

Paperroses

•4 years ago

11 Replies

Prednisone Tapering

Another question regarding tapering. I have had PMR since April 2018, a couple of rocky events with rheumys, but have tapered from 15 to 4 mg., feeling quite...

Another question regarding tapering. I have had PMR since April 2018, a couple o...

fishingnut

•4 years ago

3 Replies

Steroid withdrawal symptons vs flare up

I am down to 4.5mg of Prednisolone per day for the last two weeks from 60mg a year ago and am feeling the effects. Problem is I don’t know if it is normal...

I am down to 4.5mg of Prednisolone per day for the last two weeks from 60mg a y...

Slowday

•4 years ago

3 Replies

PMR

I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Prescribed 15mg of Prednisilone and the pains in my shoulders and thighs...

I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Pr...

sailboatstewart

•4 years ago

17 Replies

How do I get diagnosed I’m suffering with bad pain.

Hi don’t know if this is what I have but I’ve had excessive pain in upper arms both sides and progressed to shoulders around clavicle and back of neck. I’m...

Hi don’t know if this is what I have but I’ve had excessive pain in upper arms b...

Twinkle26

•4 years ago

19 Replies

Flare-up not under control and just don't know what to do

Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed 2 years ago in October. Been on a steroid reduction scheme but developed...

Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed...

EscapedtoWales

•4 years ago

23 Replies

Histamine link?

Hi everyone I'm struggling to reduce my pred, had to go up to 20mg in Feb after the PET scan to get the flare under control, got down to 15mg and have had to...

Hi everyone I'm struggling to reduce my pred, had to go up to 20mg in Feb after ...

Coffeebeans

•4 years ago

67 Replies

Feeling terrible and need advice on dose to go back up to

Hi my fellow PMR people. I know I have been remiss in sharing my story, and I've been thinking I will sit down and do that soon so anyone with the weird side...

Hi my fellow PMR people. I know I have been remiss in sharing my story, and I've...

PMRinUSA

•4 years ago

15 Replies

More about Petros and Covid

I hope Petros doesn't mind me telling you about this article: https://www.theguardian.com/society/2020/jul/05/is-there-a-better-way-to-die Warning - or...

I hope Petros doesn't mind me telling you about this article: https://www.thegua...

PMRpro

Ambassador•4 years ago

12 Replies

What can I expect?

Hello, new boy here, 70 yrs old, fit, suddenly floored with PMR, woke up a couple of weeks back with a sore right arm, next day sore left arm then sore...

Hello, new boy here, 70 yrs old, fit, suddenly floored with PMR, woke up a coupl...

Mollbhan

•4 years ago

14 Replies

Frustrated

I have been on Pred for 18 months. Got down really quickly to 10mg, then very slowly down to 6mg but can't get past this. A bit like a yo yo - 6, 7, 10mg then...

I have been on Pred for 18 months. Got down really quickly to 10mg, then very sl...

sweathead

•4 years ago

9 Replies

Fatigue and PMR

I'm extremely fortunate, haven't had any pain in months.. Probably due to 15 mgs daily of prednisone! But my oh my! This fatigue comes out of nowhere! I eat...

I'm extremely fortunate, haven't had any pain in months.. Probably due to 15 mgs...

Swannrise

•4 years ago

16 Replies

GCA?

I have had PMR for over three years now and had been hovering around 2.5 Pred until I had another flare up and increased to 3.5 about 6 months ago. This seems...

I have had PMR for over three years now and had been hovering around 2.5 Pred un...

Jamie751

•4 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

hypnotism

Sore tongue linked to Pred and/or GCA?

Laxatives

Another funny photo

How long for increased steroids to work?

Update on setback.

PMR pain due to stress

Experiences of recovery after gall bladder removal?

So many questions..re PMR

Help sleep eludes me

How am I doing?

Trapped on prednislone

Is it returning, am I paranoid ?

Newby seeks advice: what to do next after failed course of prednisone to treat PMR?

Bad Flare when I thought it was over

Set back.

CRp

Are there other medications to take for PMR other than prednisone ?

Prednisone Tapering

Steroid withdrawal symptons vs flare up

PMR

How do I get diagnosed I’m suffering with bad pain.

Flare-up not under control and just don't know what to do

Histamine link?

Feeling terrible and need advice on dose to go back up to

More about Petros and Covid

What can I expect?

Frustrated

Fatigue and PMR

GCA?

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