Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for July 2020

Tapering slowly

I have alerted my Rheumatologist and GP to the fact that I would like to reduce from 10mg to 9mgs over a seven week period (thanks DorsetLady) when the time...

I have alerted my Rheumatologist and GP to the fact that I would like to reduce ...

ChinaWuntoo

•4 years ago

29 Replies

Inflammation levels

Hi, I wondered if anyone else aside from having raised ESR’s and crop has had high levels of ferritin. Mine are very raised and as they are also related to...

Hi, I wondered if anyone else aside from having raised ESR’s and crop has had hi...

Tuppence55

•4 years ago

3 Replies

Paranoia postponed.

Last week I paranoid about flashing lights and fear of GCA return. This week is better. My GP organised an emergency appointment for me at the local Eye...

Last week I paranoid about flashing lights and fear of GCA return. This week is ...

doubtfully

•4 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Hello to everyone!

My first post was a question to which I got fabulous response and I thank everyone who helped me. I realized I had not made any sort of introduction so here...

My first post was a question to which I got fabulous response and I thank everyo...

Richnroo

•4 years ago

36 Replies

Flu jab- yes or no?

Just had a message from the school office that our flu jabs will be available as per when the team are in to immunise the children in Novemver. Advice seems to...

Just had a message from the school office that our flu jabs will be available as...

artisam

•4 years ago

58 Replies

Leflunomide

I believe it was "Bob the Builder" who responded to my initial questions and said that he managed to switch from prednisone to leflunomide and I just wanted to...

I believe it was "Bob the Builder" who responded to my initial questions and sai...

remission

•4 years ago

2 Replies

Exercise

This question is particularly interesting from a personal point of view because when I gave up active contact sport I took up rugby coaching at amateur...

This question is particularly interesting from a personal point of view because ...

yorkieme

•4 years ago

10 Replies

Advice please. Just don’t know where to go from here on pred dose.

Diagnosed with a PMR March 2019. I’m a 69 year old female living in Scotland who has never had any health problems before. After trying to taper way too fast...

Diagnosed with a PMR March 2019. I’m a 69 year old female living in Scotland who...

Loyd

•4 years ago

30 Replies

PMR re Diagnosis

After finally getting a telephone appointment with my main GP. He agreed with me that I had a flare up of PMR and I should go back on a trial of Prednisilone...

After finally getting a telephone appointment with my main GP. He agreed with me...

sailboatstewart

•4 years ago

2 Replies

How to get support without feeling whiny...

Ok so maybe it has been a bad day here..but just curious how everyone manages getting that all important family support ...without sounding pathetically...

Ok so maybe it has been a bad day here..but just curious how everyone manages ge...

Knitwit2020

•4 years ago

29 Replies

First Post from a newbie

Hi all I was diagnosed with PMR a few weeks ago now after a trip to the walk in centre when, what they thought was an OA flare let me in severe pain and...

Hi all I was diagnosed with PMR a few weeks ago now after a trip to the walk in...

Bcol

•4 years ago

2 Replies

Perception of taste

Hi my Mum is finding that a side effect of Pred seems to be that many things taste weirdly sweet including water unless it's very cold from the fridge, so we...

Hi my Mum is finding that a side effect of Pred seems to be that many things t...

Sefu

•4 years ago

7 Replies

Blood Spots

Since starting Steroids back in August last year for GCA I have been getting Blood Spots or purpura (I think that’s what it is)on my arm’s every now and then,...

Since starting Steroids back in August last year for GCA I have been getting Blo...

Phed

•4 years ago

34 Replies

Does this sound like pred withdrawal?

Good evening, I hope you are all well. I have started the slow withdrawal plan that PMRpro shared with us. At present I am on 7mg slowly moving towards 6mg...

Good evening, I hope you are all well. I have started the slow withdrawal plan t...

Jlml

•4 years ago

28 Replies

PAPER SPREADSHEET

PMR TAPER Is there a spreadsheet on this subject?

PMRGCA19

•4 years ago

1 Reply

HealthUnlocked sponsored post

It looks like HealthUnlocked's new sponsored post trial has begun - see the Echo post below - the one with medicines spelt incorrectly ;) (although I'm sure...

It looks like HealthUnlocked's new sponsored post trial has begun - see the Echo...

Fran_Benson

Partner•4 years ago

12 Replies

What to do if you're not getting you HU emails

There have been a few instances lately of people not receiving their regular emails from HealthUnlocked - the ones with a digest of recent posts. I'm really...

There have been a few instances lately of people not receiving their regular ema...

Fran_Benson

Partner•4 years ago

3 Replies

Vasculitis

Hi I saw that there was some evidence that PMR was a form of vasculitis. Can’t find the link! Is there anything else I can access about the pathology of this...

Hi I saw that there was some evidence that PMR was a form of vasculitis. Can’t ...

Hughie1951

•4 years ago

20 Replies

Dr not available-what next step?

So CRP of 8.5 and on 13mg of steroids. Tried to talk to my doctor about what to do only to find he’s not available for two weeks. Can’t get through to the NHS...

So CRP of 8.5 and on 13mg of steroids. Tried to talk to my doctor about what to ...

Griggser

•4 years ago

6 Replies

What should I do

I got PMR in September 2017. I was down to 5mg for 2 months then started alternating 5 one day and 4 the next day. I did that for 30 days then started having...

I got PMR in September 2017. I was down to 5mg for 2 months then started alterna...

Sadie1024

•4 years ago

4 Replies

Hip replacement so far so good

Dear friends I thought I’d update you on my hip surgery as we’d had a discussion recently about the impact on PMR it might or might not have. I’m only in my...

Dear friends I thought I’d update you on my hip surgery as we’d had a discussion...

Casia

•4 years ago

21 Replies

face masks for moon faces

Well, now that the government have decided we must wear face masks and I am plucking up courage to go to a shop, please has anyone found a mask that will fit...

Well, now that the government have decided we must wear face masks and I am pluc...

Content1

•4 years ago

31 Replies

New to PMR and wondering about prednisone dosage

Hello, this surely seems like an informative group! I’m sure someone out there will be able to give me some input as I have yet to meet anyone personally who...

Hello, this surely seems like an informative group! I’m sure someone out there w...

Richnroo

•4 years ago

33 Replies

Cognitive function

I cannot find anything about this and wondered if anyone had experienced any diminution in their cognitive abilities. If so is it due to the PMR or the pred?...

I cannot find anything about this and wondered if anyone had experienced any dim...

DogAgilityObsessed

•4 years ago

19 Replies

Update on arm pain

Hi all I’ve had ultra sound scan and my Gp has decided I have many problems with bones in shoulders all come on over night two months ago not long after my mum...

Hi all I’ve had ultra sound scan and my Gp has decided I have many problems with...

Twinkle26

•4 years ago

12 Replies

High Red Blood Count

I again had my blood work done and my ESR and CRP are excellent but I still have a high red blood cell count. I am down to 2mg of prednisone so that really...

I again had my blood work done and my ESR and CRP are excellent but I still have...

Robinsnest72

•4 years ago

6 Replies

After Tocilizumab what next?

Has anyone completed their year on Tocilizumab for GCA? Were you then prescribed a 'step down' medication for six months, such as low dose Methotrexate, to...

Has anyone completed their year on Tocilizumab for GCA? Were you then prescribed...

Katiecatweazel

•4 years ago

11 Replies

How do I know when PMR is gone?

I was diagnosed in May 2019 and started on 15mg pred. Down to5 now, up from 4 after recent relapse. My question is how do I know when it’s gone? Am I just...

I was diagnosed in May 2019 and started on 15mg pred. Down to5 now, up from 4 a...

Juebates

•4 years ago

9 Replies

Has anyone used this product called LifeAdvantage?

I’ve been asked to try this supplement to turn on my antioxidants. Anyone try this?

I’ve been asked to try this supplement to turn on my antioxidants. Anyone try th...

singingloud

•4 years ago

14 Replies

Cause of diarrhoea and pain after antibiotics?

My mum has just finished her (either 4th or 5th) course of antibiotics and the UTI has finally cleared up but she has been ill most of the weekend with...

My mum has just finished her (either 4th or 5th) course of antibiotics and the U...

Jeromekjerome

•4 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

Tapering slowly

Inflammation levels

Paranoia postponed.

Hello to everyone!

Flu jab- yes or no?

Leflunomide

Exercise

Advice please. Just don’t know where to go from here on pred dose.

PMR re Diagnosis

How to get support without feeling whiny...

First Post from a newbie

Perception of taste

Blood Spots

Does this sound like pred withdrawal?

PAPER SPREADSHEET

HealthUnlocked sponsored post

What to do if you're not getting you HU emails

Vasculitis

Dr not available-what next step?

What should I do

Hip replacement so far so good

face masks for moon faces

New to PMR and wondering about prednisone dosage

Cognitive function

Update on arm pain

High Red Blood Count

After Tocilizumab what next?

How do I know when PMR is gone?

Has anyone used this product called LifeAdvantage?

Cause of diarrhoea and pain after antibiotics?

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