Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for July 2020

Lower back pain

Hi, Everyone , have pmr since jan, on steroids since march. But lat six weeks have an overwhelming pain in my lower back spine area, kills when i bend forward...

Hi, Everyone , have pmr since jan, on steroids since march. But lat six weeks ha...

Gellybabie

•4 years ago

2 Replies

ITCHING

Does anyone with PMR diagnosis suffer from an onset of diabolically itching ears, back, legs?

Does anyone with PMR diagnosis suffer from an onset of diabolically itching ears...

Bennijax

•4 years ago

13 Replies

Very depressed with pain and not knowing what to do

Hello all, Please excuse this unorganized post. I’ve had sacral pain for a few months now, and also neck, shoulder pain which seemed to worsen...

Hello all, Please excuse this unorganized post. I’ve had sacral pain for a ...

Mstiles

•4 years ago

24 Replies

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PMR versus prednisolone induced pain/symptoms

Diagnosed with PMR June 2019. Been tapering down from 20mgs of Pred and now at 6mgs (12th July 2020). Never been completely free of symptoms but my philosophy...

Diagnosed with PMR June 2019. Been tapering down from 20mgs of Pred and now at 6...

Jones3

•4 years ago

11 Replies

Biotin supplements ?

Just wondering if anyone takes Biotin or any other supplements to support healthy hair growth whilst taking Pred ?

Just wondering if anyone takes Biotin or any other supplements to support health...

CarolF1312

•4 years ago

3 Replies

Starting PMR journey. So many questions/fears

First off, I want to say hello. I'm thankful that I found what seems to be a very caring and informative group. I haven't even officially been diagnosed yet....

First off, I want to say hello. I'm thankful that I found what seems to be a ver...

Scooter4645

•4 years ago

14 Replies

Symptoms of PMR

I’m still in denial . GP just took raised plasma levels as meaning PMR. I don’t have any pain in neck, shoulders & arms , just achey hips , painful knees &...

I’m still in denial . GP just took raised plasma levels as meaning PMR. I don’t...

Aries789

•4 years ago

12 Replies

Low carb cooking

SheffieldJane mentioned a low carb cookbook a few days ago and several people asked for more info. I can’t see a response so wondering if it got lost in the...

SheffieldJane mentioned a low carb cookbook a few days ago and several people as...

DogAgilityObsessed

•4 years ago

15 Replies

That old song ... What the world needs now is love, sweet love.

Feeling your love. Imagine if love went all over this world. Blessed be.

alvertta

•4 years ago

7 Replies

Side effects update

I have had my tests done and received some results. My stomach is inflamed due to long term steroids. Only way to improve it is by getting off steroids. Still...

I have had my tests done and received some results. My stomach is inflamed due t...

shazstep

•4 years ago

17 Replies

PMR and Ethnicity

This subject was raised in a recent thread - it has been on my mind very recently. During a literature search I discovered that southern climes do not have...

This subject was raised in a recent thread - it has been on my mind very recentl...

ChinaWuntoo

•4 years ago

24 Replies

Questions

This PMR has been going on for two years. I was down to 7.5 mg prednisone about 3- 4 months ago. Now I’m back up to 40 for two days now and having horrible...

This PMR has been going on for two years. I was down to 7.5 mg prednisone about ...

ndstephens49

•4 years ago

5 Replies

Intractable flare

Hi. Sorry to bother you all again I posted this three days ago and got some good advice but I’m afraid this flare won’t let go and I don’t know what to do. I...

Hi. Sorry to bother you all again I posted this three days ago and got some good...

Seraphina56

•4 years ago

9 Replies

Improving at last.

Since my diagnosis in November last year and another bad flare, I’m back to 15 mg Prednisilone. It is working well and I start reducing at the end of next...

Since my diagnosis in November last year and another bad flare, I’m back to 15 m...

BPlady

•4 years ago

15 Replies

Unbelievable!

I woke this morning feeling dreadful - aching all over, head buzzing and really fed up. I thought this was just the effect of long lock down until I looked...

I woke this morning feeling dreadful - aching all over, head buzzing and reall...

maria40

•4 years ago

17 Replies

Strange Development

Good morning all, it's a lovely day on Englands south coast and the sun is shining. Getting to my question, I need advice please. Newly diagnosed in early May...

Good morning all, it's a lovely day on Englands south coast and the sun is shini...

Gunflash

•4 years ago

27 Replies

The USA is trying to catch up..

I've said repeatedly that if it wasn't for the knowledge on this forum, I would have been lost on my journey with GCA, at the end of the month will be the...

I've said repeatedly that if it wasn't for the knowledge on this forum, I would ...

Grammy80

•4 years ago

10 Replies

Update

Day 5. On 50 mg now for a month. Damage in right eye seems to have stopped at 50%. Doctors all think this should be stopped but no 100% guarantee. On...

Day 5. On 50 mg now for a month. Damage in right eye seems to have stopped at...

alvertta

•4 years ago

19 Replies

Increase steroids?

So had a blood test today, first since December and I have a CRP level of 8.5. Currently on 13mg of pred. Started on 15mg 6 years ago! In constant pain and...

So had a blood test today, first since December and I have a CRP level of 8.5. C...

Griggser

•4 years ago

7 Replies

Blood Pressure

Does anyone mess around with BP meds? I don't know whether it's anything to do with PMR, or even OA, mine yo-yos like mad so I 'adjust' accordingly. Had a...

Does anyone mess around with BP meds? I don't know whether it's anything to do w...

Constance13

•4 years ago

24 Replies

Night sweats with pred

I was diagnosed with pmr and have been taking prednisone since May, currently 14 mg. I take my pred in two doses, split am and pm as it was not covering the...

I was diagnosed with pmr and have been taking prednisone since May, currently 14...

PmrQ

•4 years ago

18 Replies

A book you should read by Dr Alyson J. McGregor. Sex Matters: "How male-centric medicine endangers women's health and what we can do".

I groaned and thought another feminist issue, will it never go away. Since I was 18, I have been arguing for equal rights in one way and another. I then...

I groaned and thought another feminist issue, will it never go away. Since I wa...

jinasc

•4 years ago

13 Replies

Still on Prednisone after almost 3 years will I ever be off it

Hi I joined this group and it's giving me a lot of information over the last two-plus years I was diagnosed with PMR and GCA I believe I started at 30 mg of...

Hi I joined this group and it's giving me a lot of information over the last two...

Roxyart

•4 years ago

61 Replies

HealthUnlocked annual survey

Hi everyone, just to let you know that the survey that some of you have been sent from HealthUnlocked today is genuine. This is an annual event and it appears...

Hi everyone, just to let you know that the survey that some of you have been sen...

Fran_Benson

Partner•4 years ago

9 Replies

Set back. Day 4.

the good news ..my eye seems the same as yesterday. Top half still good. I dragged myself over to the pool and did my usual water aerobics. I slept so...

the good news ..my eye seems the same as yesterday. Top half still good. I d...

alvertta

•4 years ago

16 Replies

Methotrexate duration

Can anyone tell me when you’ve finally tapered off prednisalone what happens to the methotrexate I take , does it stop as well?

Can anyone tell me when you’ve finally tapered off prednisalone what happens to ...

Kingstontown1

•4 years ago

17 Replies

Thermostat gone ??

Hi does anyone else have huge fluctuations in how hot/ cold they feel, without actually running a temperature?? I am experiencing a feeling of very hot head...

Hi does anyone else have huge fluctuations in how hot/ cold they feel, without a...

Devoid

•4 years ago

22 Replies

Skin scrapes

The effects of ageing, (I’m 73), and Pred mean that I have to be very careful not to scrape the skin - but that doesn’t always work. So I am a mini expert on...

The effects of ageing, (I’m 73), and Pred mean that I have to be very careful no...

Thelmarina

•4 years ago

9 Replies

Update on set back. Day 3.

3000 mg prednisone over 3 days ..done. Now just wait and see. Or not see. So far the eye seems the same today. Have to say the medical teams at the OWEN...

3000 mg prednisone over 3 days ..done. Now just wait and see. Or not see. So f...

alvertta

•4 years ago

12 Replies

Leg Satsuma Update

Over the last couple of days my pain has become excrutiating. To the point I feel sick. I have called NHS 24 who referred me back to GP surgery as they had...

Over the last couple of days my pain has become excrutiating. To the point I fee...

Singr

•4 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

Lower back pain

ITCHING

Very depressed with pain and not knowing what to do

PMR versus prednisolone induced pain/symptoms

Biotin supplements ?

Starting PMR journey. So many questions/fears

Symptoms of PMR

Low carb cooking

That old song ... What the world needs now is love, sweet love.

Side effects update

PMR and Ethnicity

Questions

Intractable flare

Improving at last.

Unbelievable!

Strange Development

The USA is trying to catch up..

Update

Increase steroids?

Blood Pressure

Night sweats with pred

A book you should read by Dr Alyson J. McGregor. Sex Matters: "How male-centric medicine endangers women's health and what we can do".

Still on Prednisone after almost 3 years will I ever be off it

HealthUnlocked annual survey

Set back. Day 4.

Methotrexate duration

Thermostat gone ??

Skin scrapes

Update on set back. Day 3.

Leg Satsuma Update

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