Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2020

Foot issues

Hi Everyone. Hope your day is going well! I thought I had a foot stress fracture. One day I couldn't walk it was so painful. Went to foot dr. took xrays said...

Hi Everyone. Hope your day is going well! I thought I had a foot stress fracture...

Linny3

•4 years ago

8 Replies

Jaw pain

Does anyone suffer pain in their jaw. I have in the past suffered from pain when eating and GP raised my Pred to 30mg. The pain I have now is slight and...

Does anyone suffer pain in their jaw. I have in the past suffered from pain whe...

Suffererc

•4 years ago

19 Replies

Upping dose ?

I am going through some Health issues and feel a mild flare slight - head pain, ear (jaw) tenderness. I know it’s stress , wondering if 2 mg more a day would...

I am going through some Health issues and feel a mild flare slight - head pain, ...

aladymo

•4 years ago

10 Replies

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Diagnosis

I ve been suffering significant issues with my shoulder and extreme pain in my upper arm . I have arthritis in my feet and some joints but the shoulders are...

I ve been suffering significant issues with my shoulder and extreme pain in my u...

Christie22

•4 years ago

22 Replies

Advice please

I have a problem, could I ask for advice please from those that know far more about this issue than me. Started at 15 mg, reduced to 12.5 after 3 weeks no...

I have a problem, could I ask for advice please from those that know far more ab...

Gunflash

•4 years ago

11 Replies

A little sigh of relief ....

First of all, I'm so thankful for every one of you...I go to the 'almost ready to cave point' but all of your input kept me from accepting what I knew in my...

First of all, I'm so thankful for every one of you...I go to the 'almost ready t...

Grammy80

•4 years ago

50 Replies

PMR Diagnosis

Can I be diagnosed with PMR if I have all of the physical symptoms, but normal bloodwork?

Can I be diagnosed with PMR if I have all of the physical symptoms, but normal b...

bmaschino5

•4 years ago

24 Replies

Omeprazole (again)

I’m on week 6 and due to start reducing next week. So far I’ve resisted GP, nurse and pharmacist who all said I should take Omeprazole. But I’ve now started...

I’m on week 6 and due to start reducing next week. So far I’ve resisted GP, nurs...

DogAgilityObsessed

•4 years ago

29 Replies

Confused and angry... and scared...

I received an email from my rheumatologist this morning telling me that he does not believe the blurry vision is the result of GCA and not to take the 20 mg...

I received an email from my rheumatologist this morning telling me that he does ...

Grammy80

•4 years ago

25 Replies

Decreasing Preds

Hi all. Question. I am doing okish at the moment, not sleeping well but I can cope with that. Still some aches and pains in shoulders/arms and neck,...

Hi all. Question. I am doing okish at the moment, not sleeping well but I can co...

Bcol

•4 years ago

9 Replies

Rectogesic

I have GCA and the GP prescribed the above but when I collected it the Pharmasist said I could get a headache,feel lightheaded and palpitations. I have had...

I have GCA and the GP prescribed the above but when I collected it the Pharmasi...

joat

•4 years ago

6 Replies

When will energy return?

I've been on 10mg for 18 weeks and expect the rheumy to review this in 6weeks with a view to a taper. I will be arguing for DSNS, 1mg in 7 weeks. Today I...

I've been on 10mg for 18 weeks and expect the rheumy to review this in 6weeks wi...

ChinaWuntoo

•4 years ago

10 Replies

Severe leg cramps

Started my tapering yesterday from 20 mg so far so good ..since Dr still on holidays and pharmacy wouldn't supply 1mg pred without Dr's ok..had to take 17.5...

Started my tapering yesterday from 20 mg so far so good ..since Dr still on hol...

Knitwit2020

•4 years ago

20 Replies

Latest flare progress.

Just an update on my latest flare which knocked me for six. I am still on 16mgs of Prednisilone and will stay there till at least August, All going well at...

Just an update on my latest flare which knocked me for six. I am still on 16mgs ...

Whippetygirl

•4 years ago

14 Replies

The bottom line...

Well, I've lost more of my vision in my right eye. Anything I try to read is jumping or spotty...it is not clear...but it doesn't look like the smeared world...

Well, I've lost more of my vision in my right eye. Anything I try to read is ju...

Grammy80

•4 years ago

31 Replies

Update 3 years in

Hi everyone I have written for a while but thought I would update on the my progress. Down to 1 mg of steriod. I am taking 10mg Amitriptyline at night. It...

Hi everyone I have written for a while but thought I would update on the my pr...

JulieR2

•4 years ago

28 Replies

Imminent vaccine for Covid19

It seems the vaccine could be available in the autumn. How and when will we know if it will be safe for us GCAers and PMRers? Any thought?

It seems the vaccine could be available in the autumn. How and when will we know...

MamaBeagle

•4 years ago

6 Replies

Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19

Just to let you know that the UK government have produced a new guidance - COVID-19: guidance on shielding and protecting people defined on medical grounds as...

Just to let you know that the UK government have produced a new guidance - COVID...

piglette

•4 years ago

18 Replies

An update on my tocilizumab experience.

Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of...

Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my...

LemonZest11

•4 years ago

19 Replies

PMR and Myopathy?

Hi, I'm new here and wonder if anyone else has been diagnosed with myopathy following the apparent end of PMR? Having decreased steadily over 20 months from...

Hi, I'm new here and wonder if anyone else has been diagnosed with myopathy foll...

Pmrflower

•4 years ago

23 Replies

Thrush

Now it seems I have an oral thrush. Does anyone have an easy solution? I guess it is a pred side effect

Now it seems I have an oral thrush. Does anyone have an easy solution? I guess i...

Caloo650

•4 years ago

16 Replies

Hi Dorset lady. How are you it Ritter here .

Ritter here

ritter

•4 years ago

1 Reply

Elevator speech for PMR?

Hello, does anybody have a quick elevator speech that they use to explain PMR to friends and coworkers that ask about the condition? You know, when somebody...

Hello, does anybody have a quick elevator speech that they use to explain PMR to...

Richnroo

•4 years ago

42 Replies

You have all been so caring and wise...

My view of things is a bit clearer today...better than yesterday. I wound up taking 24 mg yesterday because toward the late afternoon...my cheeks ached and...

My view of things is a bit clearer today...better than yesterday. I wound up tak...

Grammy80

•4 years ago

5 Replies

I am so tired,

hi,everyone,i am on 15mg.prednislone,and am very tired,dont know what to do with myself.also get these funny tingiining in my legs.has anyone got any ideas to...

hi,everyone,i am on 15mg.prednislone,and am very tired,dont know what to do with...

Flosy

•4 years ago

6 Replies

Leg muscle pain / weakness

Hi diagnosed GCA 30 months ago. On 3rd attempt at reducing. Am down to 3mgs but lower l go the worse my lower leg pain and weakness gets. Can only hobble now...

Hi diagnosed GCA 30 months ago. On 3rd attempt at reducing. Am down to 3mgs but ...

Alwynk

•4 years ago

34 Replies

Reducing prednisolone

Hi I have recently been diagnosd with PMR. My consultant wants me to reduce pred from 12.5 mg to 10 mg - is that too big a jump? I have read on the forum 10%...

Hi I have recently been diagnosd with PMR. My consultant wants me to reduce pred...

Juliey43

•4 years ago

10 Replies

Update to very depressed and having pain, not knowing what to do

Hello everyone, In my previous post I was having quite a lot of shoulder, neck, and sacral pain at 8 mg and had increased pred to 11 mg for 6 days. At 11...

Hello everyone, In my previous post I was having quite a lot of shoulder, n...

Mstiles

•4 years ago

13 Replies

Is there anything written by the way of a history of PMR/GCA?

Is there a written history of PMR/GCA? What did people do for it back in the 1950s? When were they recognized as separate but very closely related autoimmune...

Is there a written history of PMR/GCA? What did people do for it back in the 195...

LIVEORDIEHEREIAM

•4 years ago

41 Replies

Alcohol

Hate to make an association but I gave up alcohol about 5 weeks ago and leading up to that point reduced my intake and it may be coincidence but am much more...

Hate to make an association but I gave up alcohol about 5 weeks ago and leading ...

bakingD

•4 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

Foot issues

Jaw pain

Upping dose ?

Diagnosis

Advice please

A little sigh of relief ....

PMR Diagnosis

Omeprazole (again)

Confused and angry... and scared...

Decreasing Preds

Rectogesic

When will energy return?

Severe leg cramps

Latest flare progress.

The bottom line...

Update 3 years in

Imminent vaccine for Covid19

Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19

An update on my tocilizumab experience.

PMR and Myopathy?

Thrush

Hi Dorset lady. How are you it Ritter here .

Elevator speech for PMR?

You have all been so caring and wise...

I am so tired,

Leg muscle pain / weakness

Reducing prednisolone

Update to very depressed and having pain, not knowing what to do

Is there anything written by the way of a history of PMR/GCA?

Alcohol

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