I've been on 10mg for 18 weeks and expect the rheumy to review this in 6weeks with a view to a taper. I will be arguing for DSNS, 1mg in 7 weeks.
Today I finally found the mental energy to do some wallpapering. Just over an hour felt enough. A couple of hours later I realised it was too much.
My question is: when might I expect energy to replace fatigue and lethargy as I begin the slow taper from 10mg?
I know we are all different but any thoughts will be welcomed.
There really isn't an answer - everyone is so different in every respect. Patience - after a year you will look back and see how far you have come. It may not be the bits that you want to have improved - but it will be better!!!
I suppose I should listen to my family who keep reminding me that I am over 80. I have always been an active person. But I'd like to see some light at the end of the tunnel.
So are you, for instance, saying that I would be advised to try the DSNS regimen and see how it goes?
Thanks.
This may be a better read first:
healthunlocked.com/pmrgcauk......
But obviously I will support the use of DSNS - or any other slowed taper!
How encouraging!
Oh ChinaWuntoo - I resonated so much with your post as I tried to paint the outside of our house some weeks ago. I did around a quarter and my PMR body said "No".
I am seventy but when I read you are over eighty - come on!!!
I too have always been a very active person. It's hard I know but patience will win out in the end. It's a bit like the Tortoise and the Hare - Slow and Steady wins the race!
Good luck with your taper from 10 mgs - I am on 7 mgs (3 years in) and am determined to go slow, respect this disease and be guided by all the wonderful people on this site. GP and rheumy much appreciated but the contributors on this forum are invaluable!
Yes, well. You will know that you cannot leave a room half papered!! So today I did a little more: learning from yesterday's 75 minutes, I did 60 minutes. What? Stupid. Tomorrow I will do a little less and hope to finish. Mrs Wuntoo is a help but she is older than me and has other health challenges.
And then I will have time and energy to finishing reading your links PMRpro, thank you.
I gave that lark up when I was in my late 40s - I did it all, OH couldn't even help measure a strip of paper! I fell off a stepladders and he didn't even come from the next room to see if I was OK. So since then I have kept proressionals in business - that is what they are for after all!
No, I couldn't leave a house one third painted blue & the rest a grubby cream! I called in the troops- eldest son & his lovely wife both long distance runners & super fit! They had it finished with 2 coats in a day. I'm lucky I know. I have 5 children all of whom live within 15 minute's drive from me and any or all would have done the same.
Good luck with your papering but DO take care.....
My energy levels come and go tbh especially just after a taper when I am back to taking daily naps! Have been on Pred since sept last year and still expect it will be a while before I get back to normal!
Daily naps (sometimes 2)are always a part of my PMR regime. Couldn't do without them.
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