When I started with GCA in 2017 I had the severe headaches and scalp tenderness, as well as the chronic fatigue and general unwellness. However I didn't have jaw pain. After taking pred I developed tooth sensitivity as one of the side effects.
In recent weeks I've experienced much stronger painful sensations in my jaw when eating, which at first I took to be the pred side effects. Now I'm wondering if in fact it's a flare up of a fresh GCA symptom, even though it isn't one I had originally. The pain is dull and intense and doesn't feel like nerve pain, unlike the normal sensitive teeth sensation. It goes away after eating.
As always, any useful comments or advice would be very welcome.
Little bit more info please.
You don't get 'jaw pain' once you are on pred and the correct dose. What dose are you currently on.
Were you prescribed AA?
I'm now taking 5 mg pred per day - have been fora few weeks (from an original dose of 60 mg). I was prescribed AA but only took it twice.
AA good that you dropped it. It can cause jaw necrosis.
Your Rheumy should be taking calls - no harm in leaving a message with his Secretary and ask s/he can call you.
You say 2017, (late or early) which ever it is 3 years and down to 5mg is fast in my eyes.
I had GCA for 5 years and I did not get that far down until around the beginning of the 5th year. Now we are all different and I recognise that all the time.
I would up your pred to 10mg for two or three days, and see if the jaw pain subsides. If it does, then it looks to me that you are on too low a dose to keep it in check.
It won't done you any harm and if it does not do the trick you need medical advice.
What ever you do, watch out like a hawk for a blurred vision or intermittent vision.
Meant to add, try this for your acid reflux, take one unwaxed lemon, microwave for 1 minute (triples the juice) then divide juice into three and take with water before meals.
A Yoghurt with a teaspoonful of honey with your breakfast helps.
The GCA started in March 2017 and was diagnosed in July. As for AA a little bit of research into its potential side effects determined me to tackle my bone density problems by lifestyle choices. I have taken an extra 5 mg of pred today and will again tomorrow. I'll also give the hospital a call.
Thanks for the lemon tip. It seems a bit counter-intuitive to take an acid to deal with an acid, but I've just googled it and a lot of people seem to agree with you, so I'll certainly try it. It has to be better than taking medication on a long-term basis. Plain full fat yogurt is one of the staples of my diet.
What is aa