Hello All You Lovely People!
I have had PMR for over 3 years and am tapering, using DSNS method, down to 6 and a half from 7 mgs pred. I also have inflammatory arthritis for which I take Meloxicam (7 mgs daily). I also take 10mgs Amitriptyline supposedly to help me sleep but "may also help with your pain" (Rheumy).
I live in Tasmania so it is winter here and I don't do so well in winter. I have a problem with my right hip (which sometimes goes to the left) I see a physio for this and do gentle exercises. I also do gentle aqua aerobics, short cycling trips and some Tai Chi. Presently my hip is so bad I waddle like a penguin and I can't climb stairs.
The worst thing is the aching in my hips and legs which starts around 2 in the morning and keeps me awake. I often get up then and take 5 mgs pred. I have tried taking the other 2 mgs later in the day (instead of lunchtime when I normally take it) but it hasn't made any difference. Anybody got any idea why I should have this aching only at night when I am lying down? It feels like PMR and is like the ache you get when you do too much at the gym.
I am reluctant to continue the taper while I am not doing so well. does anyone think I should up the dose of pred for a while?
Thank you in anticipation for all your wonderful help.