Except for my 10 minutes bursts every hour in the mornings I am afraid I find myself sitting/reclining for too long for the rest of the day. The result is "I have FAR less pain than I have had for ages"!!!
They say "exercise, exercise, exercise"! I can't win can I??
Where does it say exercise, exercise, exercise? Too much exercise or the wrong sort isnt good for your pmr so maybe thats why you are getting less pain now you are doing less or maybe more of the right sort?!!
We are sheilded due to OH (this could lead to murder in the not too distant future) but decided we do need to take slightly more exercise than our garden can give us so we are now very occasionally having a little stroll over a bit of the old airfield in our village which is mostly deserted. If it was used a lot we wouldn't do this but as it is spread over 1000's of square meters we are fairly sure we are not going to see anyone let alone go near them!!
Hope you continue with less pain but maybe when you can take more exercise you can look st what you are doing and how much. Either that or have pro tell you off!!🤣🤣
The times you have "threatened" your poor OH!?! Shame on you!😂😂😂
I think relaxing is what I will be doing more in future. What better future than less pain?
Pro only tells me off if I try to reduce. I'm in her good books at the moment!😇
She is dreadful, and he's such a nice man, I don't know how he puts up with her.
Hes been telling his friends hes dug a hole for me so he deserves to be threatened!! Love him dearly really, sometimes!!
Don't you think we recognise that??
I would love to know what he thinks of her comments. I suspect silence would be the answer - but note he is digging a little more often lately.😂
😂
The same reason you put up with me!! I am all soft and cuddly really!! Just like a rottweiler puppy🤣🤣
Are we talking about the same person?
Probably not.!! But then again you thankfully havent tried giving me a belly rub or played with a tennis ball near me!!
😱
Horrible thought isnt it? Well that's my fun for the day, leaving forum members wishing they hadnt questioned how cute I was🤣😂🥳🥳
Ummm!🤨
I am a cute gentle quiet unassuming individual who just happens to give the impression that I can be a complete bitch with no provocation!!xx
YBB 😇??
A saint!! At last my perfection has been recognised.
Welcome to the club! 😅
You too, eh ?
Seems to be a few saints around here.🤣😇😇😅
While exercise may prevent some aspects of arthritis, there is a balance, And in the case of PMR, exercise, exercise, exercise is NOT the way to go...
And yes - what better future than less pain?
‘They’ may tell you to exercise for your arthritis - but you probably have been doing too much for your PMR..... it a very fine balancing act trying to keep both happy!
And me! Happy!😂
I'm trying to do fifteen times up and down my stairs each day as I'm not supposed to go beyond the front door. Seems to be doing my arthritic knees some good. I do space out the times - every couple of hours or so. I shall have to venture beyond the front door tonight as bins are collected early tomorrow morning.
Wow! Freedom for a few minutes then. 🤣😂
I totally know what you mean. I have managed to reduce to 3 mgs Pred mainly because my physical demands are less and my OH is now trained in the art of thorough bathroom cleaning etc. It flies in the face of all that is drummed into us.
3mg? Oh im so jealous! Thats great. Would it be pain or fatigue that would stop you normally from reducing?
Pain and stiffness. The fatigue I deal with by sleeping. I imagine that might outlive PMR until the Adrenal function properly gets going and we rehabilitate properly. Mind you I still have the little matter of large cells in the armpit, which will probably upset the applecart completely. One day at a time.
Yes absolutely. Well done though!
After 10 days I finAlly seem to be adjusting to 4.5 mg. fatigue has been a major issue (again) but am so fortunate that I can nap during the day. I have a hospital appt in May which I guess won’t happen or will be a telephone conversation. By then I should be at 4 / 3.5 mg and I assume that any test on my adrenal glands won’t be possible. Both my gp and rheumatologist seem confident that I won’t have a problem because I started on a relatively small dose and have tapered slowly without any problems so far. Have to say that I am keen to avoid hospitals for the moment but I guess what will be will be
It is by no means part of this disease to be given a Synacthen Test, routinely. I asked for one partly because I had, had Thyrotoxicosis in the past and partly because I was astonished by the fatigue of autoimmune diseases. In some ways I regret it as unnecessary and it interrupted the steady progression of my treatment with my very skilled Rheumatologist. My Adrenals have the potential to work normally, I am on 3 mgs. I would not be worried if I had your advice. I suspect time alone will deal with our fatigue.
Thank you, that is reassuring to hear
I have a timer, which hangs around my neck - I put it on when I know I am going to be sitting down for a while..............then when it rings, every hour..........get up and walk around the 5 mins.
This tip was given to my Mam about 30 years ago by a District Nurse. I remembered it and so the oven reminder, which I use when I am in the garden so it is now dual purpose. ⏲⏱⏰
My Mam was a bit different. She was up and down all day - it sent
me mad when she was older!
My mum was the same, we called it 'justing' as in 'I'm just going to ...' Dad was of an armchair nature and could read peacefully all day with his little wife popping up and down. 'Yes, dear' he'd say.
I think I just might give this timer thing a try. 
Did you get your pred sorted out? I owe you a reply, will do it asap. xx
Who was the question to jinasc? sometimes they are apart from the one you wish to speak to!!
It was nugini Constance she posted previously about being in Panama and was talking about getting her pred sorted out as her home country is Canada.
xxx
I'd run out of Lodotra so ordered 100 tablets (as usual) just to find out I had an unopened box in my medicine box.
Do you think it might be age creeping in twin😂)???
It does usually say who the person is replying to - like this:
Constance13 in reply to jinasc
Ooooer - does it usually? Not on my iPad it doesn't! Surely I couldn't miss a thing like that - I'm not that senile! No I'm not!!
I wonder why they have to make the different apps different - if you see what I mean!!!!
It does seem to completely change the platform in every guide!
I'm not worrying about the pred for now as I have an 8 month supply at my current dose. If we can't get out of Panama in the next 3 or 4 months, I'll discuss the issue with a GP we know here and/or the Canadian Embassy.
Looking forward to your reply. xoxoxox
That's a good stash. 8 weeks would be a problem for me but at least (supposedly) I can get prescriptions easily.
I have the opposite experience....the less exercise I do, the worse I feel (and the more weight I gain back I worked so hard to lose, sigh). Doesn’t help that I’ve been baking (and eating) more, in part for treats for OH, and out of boredom.
Time to get back on track with the eating habits and do more dancing inside when the weather is awful. Playing cards, ping pong, and singing just isn’t cutting it.
Hope you continue to have far less pain....that really does contribute to a better quality of life.
Weight has never been a problem for me. I am one of the lucky ones that 'lost' weight from Pred. 1 1/2 stone (10 kilos). I've even lost a couple of kilos more just lately. I'm never hungry. Probably age!
Lost weight from pred? Goodness. Thats one less thing for you to bother about! Keep well.
Wish age was doing that for me! My appetite seems undiminished at almost 80! The digestive biscuits have been taking a hammering in the past couple of weeks.
Hope they were chocolate ones 😋
Yes unfortunately that’s what I’ve been doing - baking for husband and family members but certainly eating what I’ve baked when it’s stayed here!
No such problem in the UK it seems - empty flour shelves makes baking a bit difficult!
The grocery run yesterday revealed no flour on the shelves either here in Ontario, Canada. I had bought a huge bag back just before Christmas, so still have lots on hand.
I find that the more I sit down the worse I feel, aching all over and stiff. If I go out for a walk which involves hills, I feel really achy, but somehow manage to walk it off. I am achy again when I’m back at home. One of the problems for me is that I have to question whether it’s the polymyalgia or the osteoporosis.
Confession- My physio gave me exercises to do, and at this point only have the good intentions.
I suppose it depends a little on age. I used to be the same when I walked too far or exercised too much. As I have now reached the age when one slows down anyway I feel better with more rest than movement.
I’m 79, ( how did I get here!) but my partner is a few years younger, and I find myself walking to places I wouldn’t venture to alone. I often ask why we can’t walk on the paths like other people. I always take my trusty pole to help in keeping me upright! Anyway as I said, if I keep moving I’m ok, but have to prise myself up after watching TV. Still don’t know if it’s the poly or the osteoporosis 🤔
I always think, and this past month has shown me, that having some uneven paths on a walk does keep more muscles flexible. I can feel I am not getting my little muscle sets going and everything stiffening up. 👣🌻
Most of the paths I walk on are uneven, but I have to keep looking down because of loose rocks and stones, and no good for posture!
Yes posture does suffer. But I have found £40 over the years by having to look down. I walk a few steps then.stop and have a good look round. Walking and looking up inevitably leads to disaster!
I have never found more than sixpence.
The worst was the other day when I wanted to return home across the field. But no, we had to walk down the very steep and stony path through the woods. The flooding had loosened them even more, and washed some of the path away. I don’t think I looked up once. Better the field of cows.
Didn’t see any money, but I bet nobody else is daft enough to walk down.
Think you need a serious talk with your partner. He may not be too happy looking after you with a broken hip/knee.🤔
That’s what I keep saying, but he’s usually too far ahead to hear me!
I agree with Constance - I hate walking down steep smooth surfaced paths - uneven on the flat is bad enough. Uneven, steep and wet - no!
I tend now to find out where he’s going in advance. If it’s the edges where the climbers go, I let him go alone. There are paths at the top, but if there’s a hard way.....
With the social distancing walking/exercise we have tended to go together, more locally now.
We have flat smooth walks as well but loads of cobble stones too. Why they put cobble stones in the middle of a Spa park that has five clinics for rheumatism and orthopaedics I don't know.
I really struggle walking on cobbles - and I wear solid, flat shoes.
You should see me with my rollator. I have to keep steadying IT instead of the other way round.😂
If ever you find out let me know. 😂
I've had PMR for 8 years and Polyarthritis for longer than that - and I haven't found out either!!
I don’t know about polyarthritis, because I only discovered I had osteoporosis after a scan. Likewise with Polymyalgia, had never heard of it until I had the typical overnight symptoms. I am down to 1 mg again, but it doesn’t seem to make much difference on a higher dose like 4mg, so just carry on.
If I ever find out, will let you know, that’s if I ever get to the doctors again!
Osteoporosis is rarely painful unless it has cause spontaneous fractures. What were your t-scores?
I don’t know off- hand. Memory like a sieve. Will have to look through my medical file! I wonder why people aren’t checked before they reach the osteoporosis stage.
Don't get me started!!!! My husband had the machine in his department - it needed replacing and he had a donor to fund the capital cost, it was already been covered in his budget for maintenance and technologist etc etc. The CEO said no - he was later done for fraud and a few other delictions. Will never know if there was connection there - but he was determined to wipe out the entire department which extended across several hospitals ...
It is the opposite for me...My husband and I are confined to the inside as well but that was so much easier when we were in Florida before all this hit. We walked twice daily, swam, but mid March lockdowns started in our home state and we had to return home to Michigan, I have found even the once daily walking here is making me stiff, sore knees and barely able to climb the stairs after. I got a knee brace for now (can't get in to see my orthopedic surgeon he cancelled all appointments) but I find this freezing, snowy "spring" weather isn't helping either. I'm at 4.5 mg prednisone split dose. "Saw" my rheumy over the phone and of course she always counsels dropping the pred but I just got down from 5 to 4 1/2 so I won't lower it or up it unless i feel a flare is approaching. Stress from this pandemic is what sets me back as I'm sure it does all of us! I do get out and carefully walk amongst the deer in the woods surrounding our lake...rarely encounter a person and if I do I move far far away...mask on as well for walks. I love the idea of getting up moving every hour!
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