Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,636 members • 38,787 posts

All posts for January 2020

Antibiotics.

Is there any link between antibiotics and the onset of GCA?

Kailacobweb

•4 years ago

6 Replies

Tooyoung1

Hi I just got diagnosed with GCA 10 days ago & started on Prednisone 60mg. Im still in shock as been told Im too young to have this diagnosis at the age of...

Hi I just got diagnosed with GCA 10 days ago & started on Prednisone 60mg. Im st...

Poppy1647

•4 years ago

63 Replies

Newly Launched Clinical Trial PMR

ROME — A newly launched clinical trial is examining whether adrenal insufficiency contributes to the pathology of polymyalgia rheumatica. If the study yields...

ROME — A newly launched clinical trial is examining whether adrenal insufficienc...

Hidden

•4 years ago

19 Replies

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Travelling and tapering.

Diagnosed April 2019, I've tapered using Dorset Lady's Slow Taper. I'm now trying 8.5mg, and feel under the weather and PMR-ish. Or steroid-withdrawal-ish....

Diagnosed April 2019, I've tapered using Dorset Lady's Slow Taper. I'm now tryin...

HelenDaisy

•4 years ago

12 Replies

Is GCA knocking on my door?

Every few days or so I get moderately sharp pains in my temple areas that last for a few seconds and then go away. Not very bothersome at all. But I wonder,...

Every few days or so I get moderately sharp pains in my temple areas that last f...

skipspmr

•4 years ago

8 Replies

A Grateful reply and update from Aunty Bee to all those who have sent private messages and well wishes to me during my current illness

I just wanted to send a thank you message to all the kind people whom have sent me private messages asking how I am and offering me their caring , positive...

I just wanted to send a thank you message to all the kind people whom have sent ...

Blearyeyed

•4 years ago

47 Replies

Steroid shakes

Thank you to the gentleman who suggested wrapping up and getting warm to stop post depomed injection tremors. Tried this and it really works I am feeling so...

Thank you to the gentleman who suggested wrapping up and getting warm to stop po...

Popernity

•4 years ago

1 Reply

Forms of magnesium and their benefits

Some information go those in the forum inquiring about the differences in magnesium- hope this helps 😊

Some information go those in the forum inquiring about the differences in magnes...

bunch1974

•4 years ago

12 Replies

Tapering again.

Hello to all you lovely people who have helped me over the last week. Things have now progressed further and this morning I noticed a rash where the pain had...

Hello to all you lovely people who have helped me over the last week. Things hav...

Seraphina56

•4 years ago

4 Replies

And now my hips ache too ...

(I started this post a week ago and my hips are fine now!) For the last few days my hips have been a bit achey. At first i thought it may have been stiffness...

(I started this post a week ago and my hips are fine now!) For the last few day...

Louisepenygraig

•4 years ago

5 Replies

Travel insurance

Is there a need to include PMR for travel insurance?

Blues1

•4 years ago

8 Replies

Pain 'managed'?

I'm currently on 6.5mg Prednisolone, I've been gradually reducing from 15mg a year ago, but seem to be stuck here. My question is, after looking at the NICE...

I'm currently on 6.5mg Prednisolone, I've been gradually reducing from 15mg a ye...

Madcatlady7

•4 years ago

14 Replies

Have you successfully tapered with the DSNS approach? (For newsletter.)

Hello everyone, in the next edition of our member newsletter we are covering steroid tapering particularly at the lower doses and we are really keen to include...

Hello everyone, in the next edition of our member newsletter we are covering ste...

Fran_Benson

Partner•4 years ago

5 Replies

PMR & Global Transient Amnesia

Hi, I have joined this forum as my Dad is struggling with his PMR. he is experiencing episodes of Transient Global Amnesia and I am trying to find out if this...

Hi, I have joined this forum as my Dad is struggling with his PMR. he is experie...

Scfc1863

•4 years ago

3 Replies

Not polymyalgia!

After 5 years of taking steroids, gaining 2 stone and lots of pain, I was told that I had compressed fracture of lower spine and needed a knee replacement!...

After 5 years of taking steroids, gaining 2 stone and lots of pain, I was told t...

brooksey

•4 years ago

4 Replies

Pemphigoid

Have you a forum for pemphigoid

Hidden

•4 years ago

2 Replies

FLARE

Flare Had tapered to 4 1/2 at Christmas. Pains returned. So upped dose of Pred to 5 1/2 made no difference so upped to 7. Can I just drop again to 5 1/2 in...

Flare Had tapered to 4 1/2 at Christmas. Pains returned. So upped dose of Pre...

Suffererc

•4 years ago

4 Replies

PMR/Pred and neurological symptoms

My Gp has referred me to a neurologist for numb patches rhs body, tingly numb feet at night and clumsiness. Has anybody come across these symptoms linked to...

My Gp has referred me to a neurologist for numb patches rhs body, tingly numb fe...

Enfin

•4 years ago

17 Replies

Spring...

Spring can come in many forms, it isn't just the weather. For me spring means change and the coming of something new and fresh...it may mean feeling better or...

Spring can come in many forms, it isn't just the weather. For me spring means c...

Grammy80

•4 years ago

7 Replies

Cataracts

Getting mine done. Both eyes very bad and my 13 days on pred really made them grow. Dr said it was okay to do even if on high prednisone dose. I am off pred 7...

Getting mine done. Both eyes very bad and my 13 days on pred really made them gr...

Libertylane

•4 years ago

19 Replies

Can PMR come back after 3 month?

I have been off Prednisone for 3 month after just 5 month of PMR with the help of my Homeopathic Doc. Blood tests came out negative on inflammation. I feel...

I have been off Prednisone for 3 month after just 5 month of PMR with the help o...

km5yx7

•4 years ago

6 Replies

How best to reduce Steroids

Is it better to wait until all symptoms have completely gone before reducing steroids or just until symptoms are manageable? What level of head pain, scalp...

Is it better to wait until all symptoms have completely gone before reducing ste...

Kailacobweb

•4 years ago

3 Replies

Help tapering advice

Help please in muddle with my tapers-was trundling along on 5 mg not wanting to admit gad overshot the dose needed and as winter drew on pain got worse going...

Help please in muddle with my tapers-was trundling along on 5 mg not wanting to ...

bakingD

•4 years ago

7 Replies

Prednisolone dose advice

Hi I’ve reduced from 12 to 11 over the last couple of weeks aa well as starting ‘Our Path’ healthy eating programme (low carb) and I’ve been feeling amazing -...

Hi I’ve reduced from 12 to 11 over the last couple of weeks aa well as starting ...

Enfin

•4 years ago

17 Replies

MSM

Has anyone tried MSM as a supplement to help on joint pain with PMR and if so how much daily ?

Has anyone tried MSM as a supplement to help on joint pain with PMR and if so ho...

Scarter770

•4 years ago

25 Replies

Cataract Operation. A success so far

Five years with GCA and all the usual side effects of pred. One eye diagnosed in need of a cataract operation. That filled me with all sorts of fear and panic...

Five years with GCA and all the usual side effects of pred. One eye diagnosed in...

Roy46

•4 years ago

71 Replies

Pain! What todo?

Today started off well. Beautiful morning. Had Steroids,(Now up to 17.5mgms) rest of meds, breakfast, bath, set off with dog for walk ( about a mile,) Came...

Today started off well. Beautiful morning. Had Steroids,(Now up to 17.5mgms) res...

Jane-s

•4 years ago

13 Replies

Cardiff meeting

The next meeting is on Tuesday, 28th January at 11.30 in the Central library, 3rd floor.

The next meeting is on Tuesday, 28th January at 11.30 in the Central library, 3r...

slewis

•4 years ago

1 Reply

Goodbye to prednisolone thanks to Leflunomide

I promised to report on how helpful Leflunomide was in tapering off pred. I was fortunate and didn't have any ill effects, in fact it helped remove many of...

I promised to report on how helpful Leflunomide was in tapering off pred. I was ...

43tripandskip

•4 years ago

53 Replies

Do I taper if I’m coming down with a cold?

I started the “Dead slow” method of prednisone tapering - went down to 7.5 (for 1 day) from 8; the first 2 days were OK, some nausea, but by mid week was fine....

I started the “Dead slow” method of prednisone tapering - went down to 7.5 (for ...

GratefulBailey

•4 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Antibiotics.

Tooyoung1

Newly Launched Clinical Trial PMR

Travelling and tapering.

Is GCA knocking on my door?

A Grateful reply and update from Aunty Bee to all those who have sent private messages and well wishes to me during my current illness

Steroid shakes

Forms of magnesium and their benefits

Tapering again.

And now my hips ache too ...

Travel insurance

Pain 'managed'?

Have you successfully tapered with the DSNS approach? (For newsletter.)

PMR & Global Transient Amnesia

Not polymyalgia!

Pemphigoid

FLARE

PMR/Pred and neurological symptoms

Spring...

Cataracts

Can PMR come back after 3 month?

How best to reduce Steroids

Help tapering advice

Prednisolone dose advice

MSM

Cataract Operation. A success so far

Pain! What todo?

Cardiff meeting

Goodbye to prednisolone thanks to Leflunomide

Do I taper if I’m coming down with a cold?

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