Not polymyalgia!: After 5 years of taking steroids... - PMRGCAuk

PMRGCAuk

20,124 members37,706 posts

Not polymyalgia!

brooksey profile image
4 Replies

After 5 years of taking steroids, gaining 2 stone and lots of pain, I was told that I had compressed fracture of lower spine and needed a knee replacement! Since stopping steroids I have lost 2 stone, told I have Osteoarthritis, less pain and feel much better. Linda

Written by
brooksey profile image
brooksey
To view profiles and participate in discussions please or .
Read more about...
4 Replies

Oh my goodness!!!!!! A huge waste of time, energy, dealing with med side effects, etc, but that is GREAT news!!!!

SheffieldJane profile image
SheffieldJane

I am glad that they have you on the right track now and that you are feeling much better. It is confusing that they missed this, but all we can do is press on. The weight loss is brilliant.

PMRpro profile image
PMRproAmbassador

How did they come to diagnose PMR in the first place?

HeronNS profile image
HeronNS

It's possible you did have PMR at the beginning but the recurrence of OA pain as you tapered down your pred muddied the waters and it was thought the PMR was still continuing. Have experienced this effect to some extent myself so I do understand. However I doubt that it was "only" OA at the beginning so not an entirely wasted experience of taking the steroids. At the worst you (and I too, I think) took the steroids a bit longer than we might have if it had been PMR only.

You may also like...

Polymyalgia

Would very much appreciate connecting with someone who has opted for Non steroidal treatment for...

Polymyalgia

get pain in my foot which I think is related to the gout. I also have osteoarthritis in my knee....

Polymyalgia

with 6 prednisilone which relieved excruciating pain every morning,but gave massive depression at...

Polymyalgia

condition usually lasts up to 3 years. Because the steroids keep me pain free how do you know if...

Is it Polymyalgia?

it so stopped the gym to let the pain subside. Alas, here I am eight weeks later and the pain is...