I just wanted to send a thank you message to all the kind people whom have sent me private messages asking how I am and offering me their caring , positive wishes over the last few weeks during my absence from the forum .
I am sorry that I haven't been able to answer you all personally , but my symptoms are making it difficult for me to do so , so I hope this message to everybody will let you know I have received your messages , what is going on and how much I appreciate your support .
I'm coming through a pretty severe viral infection , which could not have come at a worse time , when my immunity was already very low after the UTI and Cellulitis I had before Christmas.
As you may know , I have Ehlers Danlos , Fibromyalgia and Cardiac Issues on top of the GCA / PMR , so the constant coughing and sickness have taken quite a nasty toll on my system as a whole , regularly disjointing my ribs and jaw , causing a virtually constant level of full body pain , migraines, dizziness and visual disturbances and generally increasing the symptoms of my Chronic Conditions as a whole.
I'm at an all time low , probably lower than I felt when first hit with GCA or Tachycardia , relying on my body supports , braces , bed rest , and assistance from the family to keep me moving to prevent any other circulatory issues until this current issue passes.
To protect myself emotionally , I'm living from day to day on Autopilot , just going through the motions and trying not to think too much about how bad this is all making me feel . Just holding on to that tiny glimpse of Hope , as we have all sometimes had to do, that this too will pass and I can start back on the road to recovery and be my old self again.
It's feeling like a steep road to climb on this occasion though , so that's why the kind words and support have meant so much to me , and , why I wanted to give you my deepest thanks . Seeing the odd message from my forum friends is reminding me that I'm still connected to the world , and your fond wishes and positive thoughts have often soothed the pain just at the right moment , even if just for a little while, you have all helped make me feel a bit more human again. That really was a very precious gift for you to give me.
Thank you all , and please keep safe and well , hugs , Aunty Bee xxx
Written by
Blearyeyed
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You are so courageous and always thinking of others, let alone your superb way with words and comfort. You are missed of course but you are so right to take each day with its small rewards and setbacks. If anyone can cope with this it is you. 👍❤️🌺 xx
Ohh Bee! I had no idea that you were ill. I am so so sorry! I ‘m waving my magic wand for you and praying that you will improve very very quickly and soon feel your wonderful and humorous old self.
Dear Bee, I noticed your absence, of course, but I had no idea what you were struggling with. I wish you a steady recovery and return to strength and wonderful humour that I find so life-enhancing. Stay strong and look after yourself. Vxx🌸
Life can be so cruel. You are right to take one day at a time, small steps up that steep road and hold on tightly to ‘hope’. Hopefully all the love and good wishes here can help to buoy you up in these difficult times. A good cry and a rant can also help so don’t be afraid to let it all out when it all gets to much! Thinking of you 💐
Oh no! I didn’t realise. Out here on my selfish holiday in the sun I haven’t been reading the forum as often a S usual Really sorry to read this, sending you gentle healing hugs, and hope you improve very soon. S xxx
I really am overwhelmed by all the replies , private messages , and emails I have received in the last day in response to my post . I can't believe how lucky I am to be in contact with such a lovely caring bunch of people , especially as many of you are suffering your own illnesses and setbacks at the moment and have even taken time out of your holidays just to send me your support.
I even got a wonderful get well eCard from Jinasc which cheered me and the Family up no end , I just wish I was tech savvy enough to share it with you.
Let's just say , she doesn't just dance up a storm in a Sombrero but is a Funky Lady too, I'm glad I had my support on when it arrived in my Inbox.
You have really helped me gain a bit of my old self back again in the last 24 hours and boosted my Spiritual strength , even if I have a way to go physically I have found my smile.
Thank you all so very much , hugs and kisses , Bee xxx
So sorry you are having to cope with sooo much.You are indeed “connected to the world “and to us here. Very best wishes for a speedy recovery dear Blearyeyed
So sorry you are feeling bad Bee. You are always on here with kind words and common sense . You always have time to answer questions in a very detailed way.
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New to GCA and still in shock
A big thank you to all pmr sufferers who have supported me.
Blood,Sweat, and Tears.
A holiday with PMR?
