Nearly in Club Zero

[JulianJ]

Well after some time I took what could be my penultimate dose of pred last night.

I got to this point with the help of this site, I got the courage to tell the doctor how I was going to deal with my tapers. I'm glad he was receptive and allowed me to manage my own reductions.

And of course, thanks to this site and all the help I've received particularly the tapers I got from here.

So If I can do it, others can as well.

[SheffieldJane]

Good news JulianJ!

[JoLou12]

That’s so good to hear! How long have you been on pred? Hope you’ve got some bubbly on ice to celebrate?!

[JulianJ in reply to JoLou12]

I think I've been on pred for over 2.5 years. Things got a lot easier once I got here.

[PMRpro Ambassador]

Fingers crossed it sticks!!

[JulianJ in reply to PMRpro]

Well and truly crossed. I hope it does stick. I have been busy, fitted an alarm system over the weekend, so that added some new stuff for me. More stuff seems to be returning to a more normal level.

I was very nervous about trying to reduce from 1mg, but it all seems to be going well.

[SusanJF]

Such good news Julian, I to am so grateful for the help on this too! Take care.

[Blearyeyed]

Good luck with Club Zero , just keep pacing yourself , take care , Bee

[Rimmy]

All the best Julian !

[piglette]

Get out the champagne! I might celebrate for you as well, even though I am nowhere near my penultimate dose, but it is a good excuse!

[Hollyseden in reply to piglette]

😆

[PMRCanada]

So thrilled to hear of your news and successful taper to 0. I’ve appreciated all of your communications and personal sharing along the way.

Even though you may be on your way free of pred, do keep us updated with your future progress.

All the best,

L

[JulianJ in reply to PMRCanada]

Just because I could be in club zero I won't be leaving this or any other place.

[Arflane97G]

Well done, must be a great feeling 😄

[JulianJ in reply to Arflane97G]

I am feeling good and I can do more of the simple things. I know is sounds simple, but I've struggled putting jumpers on, now I can again

[scrambledegg]

Fantastic news. I guess we all hope we will be there one day. Hope it's successful for you.... and me too some day in the distant future!

[JulianJ in reply to scrambledegg]

Time is a good thing, that and listening to your body. I also had doctors that allowed me to do my own thing.

[sondya]

Well done. Welcome to the club, Julian. I had my last (for GCA) on June 2018.

[Lafete]

Great to hear. I have ever crossed for you.

[Nolsie]

Congrats on reaching zero. Did you use only pred during those 2.5 years or any other meds to assist with the tapering?

[JulianJ in reply to Nolsie]

Only pred plus stuff for calcium.

The tapers from here helped a lot as well.

[Daffodilia]

Agree - well done

[hoganjohn]

Fantastic news Julian am delighted for you

[Jackoh]

Really good news Julian. Wishing you well.

[Suet3942]

Well done Julian. And good luck.

[Musiclady18]

Great news Julian, you offer us all hope! And yes this forum has been a Godsend!

[Dewdrop456]

Good news .I’m happy for you.

[enan-illuc]

Julian,

Well done! You are an inspiration.

[Hollyseden]

Well done ⭐

[bunnymom]

Wonderful news. Hope your life gets back to normal quickly 😘

[Lochy]

Well done you! You give us all hope but I fear I’m sometime away from club zero. Good luck!

[JulianJ in reply to Lochy]

I'm still amazed at how fast it seem to come around, one day I was taking 5mg and then in what seemed like no time I'm here with my last 1mg to be taken tomorrow.

I do now that I could be back on at any time, but I'm so looking forward to some time without taking pred.